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I Hate Dialysis Message Board
Dialysis Discussion
Dialysis: Home Dialysis - NxStage Users
Need to vent, not at all happy with NxStage
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Topic: Need to vent, not at all happy with NxStage (Read 12174 times)
Speedy1wrc
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Re: Need to vent, not at all happy with NxStage
«
Reply #25 on:
March 19, 2013, 07:46:25 AM »
Throughout I have not had to miss a treatment fortunately. At the lowest point I always had the option of going in center at the Home Hemo center. The nurse also had a spare machine just for that reason. She keeps one handy for respite care or if someone has an issue with their own machine. As it turns out, I now have her spare.
It's been almost a week and both the cycler and PureFlow SL are holding up. A couple of supply issues but hopefully by this afternoon they should be taken care of.
Years ago when I was evaluated for transplant the surgeon told me since I was going for both kidney and pancreas, that I wasn't a candidate for PD. I have since found out that wasn't true. Now many years down the road, they have been in my belly too many times that I am now truly no longer a candidate.
Being with DaVita, the only option I was offered was the NxStage. I also travel a lot so the Sytem 1 should work better for that. I have yet to haul the cylcer with me in the motorhome, but in theory it should work.
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ianch
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Re: Need to vent, not at all happy with NxStage
«
Reply #26 on:
May 14, 2013, 12:58:13 PM »
Fresenius is fantastic!! Not a single supply issue or broken part in the 6 months I've been using it. Very strict on supplies, I get a text reminding me to order hehe and the orders always arrive on the date scheduled.
Very unimpressed by what I'm hearing about NxStage. Reminds me to get on the political bandwagon and make sure the buyers know whats important - im sure the 4008B will be replaced one day.
Will put up a big fight to maintain Fresenius - not that I think NxStage has a show in NZ (given what I've heard).
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Ian Chitty
ESRD suffer, IT specialist, and business owner
(<2yrs) 1Y in-center, 9 months HomeD, 4 weeks tourism dialysis (Philippines/Singapore)
https://kiwimedtec.com
The aim of KiwiMedTec is to develop online solutions and partnered networks for dialysis patients, to make coping with kidney disease a little bit easier.
JohnJ
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Re: Need to vent, not at all happy with NxStage
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Reply #27 on:
May 14, 2013, 01:55:38 PM »
I've had no problems. We trained on the same machine they brought to the house. The technician along with the office manager delivered it. Setting the two up was easy. I made a batch just in time for the nurse to do our final check out the next day. She hasn't been back. I've replaced 3 control units in 3 1/2 years.
We have had some problems with UPS but as I work for FedEx I know how to get to the correct manager to straighten it out. We haven't had any problems since then.
The whole dialysis process is really quite boring.
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And in the end. The love you take.
Is equal to the love ... you make.
ianch
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Re: Need to vent, not at all happy with NxStage
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Reply #28 on:
May 14, 2013, 03:28:07 PM »
It would be boring, if I was not asleep for the 8 hours, 9 hours, or 10 hours my machine runs. I tend to wake up with 1 minute on the clock.
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Ian Chitty
ESRD suffer, IT specialist, and business owner
(<2yrs) 1Y in-center, 9 months HomeD, 4 weeks tourism dialysis (Philippines/Singapore)
https://kiwimedtec.com
The aim of KiwiMedTec is to develop online solutions and partnered networks for dialysis patients, to make coping with kidney disease a little bit easier.
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