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Author Topic: Help! Have to stick myself tomorrow!  (Read 4255 times)
Angiepkd
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« on: March 17, 2013, 03:52:58 PM »
Tomorrow is the start of my third week of training. My HHD nurse says I have to start my buttonholes, and that will require me self-cannulating using sharps. I am petrified! I know I can do it with blunts, but not sure about the sharps. Any advice? Wishing I had access to some Valium lol!   :'(
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
cassandra
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When all else fails run in circles, shout loudly
« Reply #1 on: March 17, 2013, 04:12:11 PM »
Numb your skin with lidocaine spray/creme, or ice or so, and maybe a bit of Valium or something ;D , and find a nice place to stick yourself. After I did it the first time, I felt realy good, and very daft for not doing it 15 years earlier in the first place. I find the sharps just as easy as the BH's. if you go too far in, you'll feel it before you damage something.
Don't be scared, you can do it!

Lots of love Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
MaryD
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« Reply #2 on: March 17, 2013, 04:53:04 PM »
May the force be with you!

From one who wonders how she will do it when her turn comes.
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Angiepkd
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« Reply #3 on: March 17, 2013, 05:49:51 PM »
Thanks!  I am going to keep telling myself I can do it! I'm sure I will post when I get home tomorrow. Probably going to be a restless night!
Logged
PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
Angiepkd
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« Reply #4 on: March 18, 2013, 12:50:19 PM »
So today was the big day! I was so nervous, but managed to put in both needles!  My nurse helped with the arterial, but I did the venous all by myself. It didn't hurt at all, and no numbing cream. I can't believe I got so worked up over nothing.  Thanks for the encouragement!  For any of you considering doing your own needles, I highly recommend it. It hurt so much less than when my nurse did it. Who knew lol?!   :bandance;
Logged
PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
amanda100wilson
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« Reply #5 on: March 18, 2013, 02:41:30 PM »
 :flower; :flower; :cheer:
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ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
Speedy1wrc
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« Reply #6 on: March 18, 2013, 02:57:16 PM »
Excellent!

You are creating your own buttonholes? Hmm. interesting. At my center the nurse establishes the buttonholes, then once the tract is there the patient starts in on it.
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boswife
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us and fam easter 2013
« Reply #7 on: March 18, 2013, 05:26:49 PM »
 :clap;  :clap;  :clap;  :yahoo;   I am so happy to hear :)  came here just to check on ya  :2thumbsup;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
MaryD
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« Reply #8 on: March 18, 2013, 07:40:16 PM »
That's really good news          :yahoo;        :yahoo;        :yahoo;
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Angiepkd
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« Reply #9 on: March 19, 2013, 10:09:04 AM »
Thanks everyone! Picked scabs and did it again today!  I am very proud of myself. It actually hurt more picking the scabs than putting in the needles.  I feel like a huge weight has been lifted knowing I can do it!  The information and support on IHD has been awesome. Thanks again!
Logged
PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
monrein
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Might as well smile
« Reply #10 on: March 19, 2013, 03:29:54 PM »
In no time you'll wonder how or why you'd ever let anyone else do it.  Congrats on these successes.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
boswife
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us and fam easter 2013
« Reply #11 on: March 19, 2013, 05:22:39 PM »
I know im not the 'stick-ee' but i too hate the picking of the scabs worse than the sticking...lol   So glad ya got all that part out of the way.  I still wish hubby would have been able to do it himself but he's just too weak to do it, eyesite bad, and didnt want to try.  Im 'over the hump' and not scarred, and now wouldnt want to let him try..lol  bit possessive of those things... Soooooooooooooo glad your doing this :)
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
cassandra
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Gender: Female
Posts: 4974


When all else fails run in circles, shout loudly
« Reply #12 on: March 20, 2013, 05:57:10 AM »


       :beer1;   Good girl.      B :cheer:



Love Cas
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
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