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Dialysis: Home Dialysis - NxStage Users
Peripheral neuropathy
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Topic: Peripheral neuropathy (Read 3848 times)
JohnJ
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Peripheral neuropathy
«
on:
May 14, 2013, 05:53:57 AM »
Just started
I have tingling and numbness in my right leg along with occasional pain, which was excruciating for 35 hours this weekend. Now my left leg is starting. I've uppped my Gabapentin (Neurontin) to 200mg 3Xday with minimal relief. Has anyone found anything that really works? I don't want any anti-depressants such as Lyrica because of my job (professional driver). Anyone tried acupuncture? Any suggestions?
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And in the end. The love you take.
Is equal to the love ... you make.
chiromac
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Dr. Larry (Chiropractor)
Re: Peripheral neuropathy
«
Reply #1 on:
May 14, 2013, 07:44:45 PM »
Yes and it does help, just make sure you fine someone from or trained in the orient, the training is different than the ones I've been to that were trained in the USA.
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Dr. Larry (Chiropractor)
My life has been drastically changed and I want to get back to the living my life.
I ♥ have ♥ the ♥ most ♥ beautiful ♥ DAUGHTER ♥ in the ♥ world☆•*¨*•.¸¸❤❤¸.•*¨
Back Surgery
Diabetes
Had reaction to Byetta and my Kidneys shut down
Diabetic retinopathy (Countless shots to both eyes & Laser Treatments)
Cataract Surgery on both eyes
Diagnosed with ESRD
Multiple Heart Bipass Surgery
AV Fistula
Dialysis - In center 3 days a week 4:15 at a time
Neuropathy
On Transplant List and Hoping
JohnJ
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Re: Peripheral neuropathy
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Reply #2 on:
May 14, 2013, 09:30:12 PM »
Did you MEDICARE cover it or did you have other insurance?
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And in the end. The love you take.
Is equal to the love ... you make.
Grumpy-1
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Make me the person my dog thinks I am
Re: Peripheral neuropathy
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Reply #3 on:
May 14, 2013, 11:53:45 PM »
JohnJ or Chiromac'
How did you get your peripheral neuropathy diagnosed? I figured that I have it, but haven't gone to a dr for a formal diagnose or treatment. Grumpy
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Make me the person my dog thinks I am
Sugarlump
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10 years on and off dialysis
Re: Peripheral neuropathy
«
Reply #4 on:
May 15, 2013, 12:50:21 AM »
Hi I got peripheral neuropathy bad after catching an infection. It drove me mad.
First numbness, then pins and needles, then squeezing clamplike pains, affecting my hands and feet.
I would cry at night because of the pain.
Then came the lack of grip in the hands, balance in the feet and severe muscle weakness.
I had to take sleeping tablets to help me sleep, but taking Amitryptyllin (which is an anti-depressant) at night only really, really helped.
My first nerve conduction tests showed extensive damage.
Due to have second lot of tests next week, but massive improvement so no longer taking the amitryptylin.
I had physio twice a week to fight the muscle weakness and that helped a lot.
When my back joined in, massage really helped the spasms.
Good luck
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense
Jean
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Re: Peripheral neuropathy
«
Reply #5 on:
May 15, 2013, 01:30:23 AM »
Had it in my left knee, diagnosed after a severe sciatica attack. Went to a chiropractor for awhile, until I could walk fairly well. then I began to walk 2 miles a day and 20 minutes in the hot tub. Worked fine until the nerves started growing back in and I had to face that shooting pain. Now the knee is no longer numb. But, boy it really hurts now. Sometimes it wakes me up at night/ They tell me, it is nearly cured by now. I sure do hope so. I wish you success in whatever plan of action you decide to take.
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One day at a time, thats all I can do.
JohnJ
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Re: Peripheral neuropathy
«
Reply #6 on:
May 15, 2013, 10:05:26 AM »
Now my doctor says it's caused by inadequate dialysis. My KTv usually around 2.5 which, according to him is great.
He wants me to come back to the clinic and dialyze for a month to see if that clears it up. He's suggesting the in-clinic dialysis is better...yet he has patients who are doing in-clinic dialysis and they have the same problem. Does that make any sense?
I need to change doctors I guess.
The pain was bad..real bad last night.
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And in the end. The love you take.
Is equal to the love ... you make.
amanda100wilson
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Re: Peripheral neuropathy
«
Reply #7 on:
May 15, 2013, 07:50:15 PM »
Hmmm, John, I beg to differ with what he says unless he is planning for you to have it with the same frequency. It may suck you clean while you are there but then you have the in-beyween days. why don't you try a few more extra hoursvof treatment if you can fit them in and see if it improves?
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ESRD 22 years
-PD for 18 months
-Transplant 10 years
-PD for 8 years
-NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.
Always look on the bright side of life...
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