I's been a long battle that hopfully has run it's coarse...

The staff at the center where I receive my dialysis has been talking to me for months about my health, food intake, fluid intake and no matter what I say or do they won't listen to what I say.

Somehow the words magically change from the moment they leave my mouth and seem to change into words I have never said before they enter the ears of the staff member (s) I am talking to. I can never figure out how they do that...

I am quite fortunate, more fortunate than most on dialysis. My health in comparison is pretty good so far. I have been taking a low dose of BP pills, an acid reflex pill, a cholesterol pill, a low dose anti-anxiety pill, low dose Insulin shot. Renal Vitamin and Renvela. They also had me taking low BP pill until I showed a severe alergy to them and they took me off them. The medical staff at the dialysis center has tried since almost day one to tell me and treat me for heart problems. They are constantly on me about my weight, telling me I eat too much, I drink too much and I am going to have serious heart problems if I don't get it all under control...

I changed family Dr's about 2 months ago. I asked her why i am on cholesterol pills when i have never had high cholesterol in my life and none of my family has either. She told me to quit taking them. She figured out the cough I had and changed the medicine causing it. No more chronic cough! This week I saw her again and she took away the acid reflex pill and told me if I have a burning in my throat to start taking them again. (I have never had acid reflex, they gave that to me to try and treat the cough.) AND She told me I DO NOT have hypertension and quit taking my BP pills.

I really enjoyed telling the medical staff that Yesterday. They treat me like a dummy that doesn't know what I am talking about. Our new kidney Dr. was there and confirmed what my family Dr. said to me and told me it would damage my body to take BP pills as needed. That is what they had me doing. If I took the pills when my BP was normal I'd bottom out.

So finally I have some medical power behind what I have been saying for the last 29 months!

As for my diet and fluids... I dismissed the center's dietitian and have been driving 3 hours away to see the transplant hospital's dietitian. They have been tracking my diet and fluids for the past 2 months now.

I am on hold on the transplant list because of my weight... It keeps going up. I have seen the top kidney Dr. in our state and he told me my weight gain is due to the Insulen not my diet. But still no one at my dialysis center is listening.

Today I received an email from the Dietitian I have been seeing at the kidney transplant hospital. She told me my average daily calorie intake was 784 and my protein daily intake is 38. She said I need to be eating between 1,000 to 1,400 calories a day and my daily protein should be 60 and 65.

Finally some people with medical documentation to back up what I have been saying all along. Oh, and for my heart they sent me to a heart specialist about 6 weeks ago for heart lifestyle training and the heart specialist told them what I have been telling them and the tests have been telling them for 29 months. I have never had a stroke, or heart attack and my heart catheter shows my heart valves are clean. I do not need to be treated for a condition I do not have.

I can't wait to hand them a copy of my Email tomorrow. Now with all the medical verifications in, I HOPE they will leave me alone and just do their jobs and do them correctly.

My family Dr. told me I am doing a great job managing my health on my own. I told her to tell that to dialysis. LOL

SG