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Author Topic: What's up guys?! I'M NEW! :D  (Read 5371 times)
MissJazzyEmily
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JAHLO! :D I am deniferfer's sister!

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« on: October 10, 2012, 04:34:00 PM »
Hey! I'm Jasmine McClung. Some of you guys may know me as Jennifer McClung, deniferfer, sister! I met some of you at the Las Vegas convention thingy this year. Y'all must have made quite the impression for me to want to create an account and get to know more about dialysis! My sister was diagnosed with kidney failure when I was 6 years old. I grew up with her but it wasn't until Vegas that I realized she and all of you live in a whole 'nother world. I was soo happy to see her with people who understood exactly where she is coming from. Yeah, I'm her sister but I cannot relate to her situation in the slightest. I am so happy Karol created this forum! It saved my sister's life.  :)
« Last Edit: October 10, 2012, 04:43:21 PM by MissJazzyEmily » Logged
Have a good day! :) x
Rerun
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Going through life tied to a chair!
« Reply #1 on: October 10, 2012, 04:50:17 PM »
Welcome to IHD.  I didn't make it to LV this year but glad you went to support your sister.  We all love her. 

Thanks for joining.

Rerun, Moderator    :welcomesign;
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #2 on: October 10, 2012, 05:07:31 PM »
Hi Jasmine, welcome to our forum. I am so glad deniferfer has a sister who is so supportive!
One correction however. IHD was the creation of a young man who had been of dialysis for 13 years. Epoman (Bill Halcomb) wanted a place where patients could freely share their stories, rant if needed, and not worry about getting their posts deleted like on other sites run by commercial entities. Family, friends and medical professionals were also welcome. Sadly we lost Epoman 5 years ago, but the admin team runs the forum in the spirit in which it was created. You can read his story here http://ihatedialysis.com/forum/index.php?topic=25.0

 :welcomesign;

okarol/admin
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
justme15
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« Reply #3 on: October 10, 2012, 05:46:10 PM »
welcome! deniferfer is awesome! I wish she didn't live so far away!
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MaryD
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« Reply #4 on: October 10, 2012, 07:09:01 PM »
Welcome Emily         :welcomesign;
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Willis
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« Reply #5 on: October 10, 2012, 07:25:31 PM »
Welcome aboard.  :yahoo;

 
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Chris
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« Reply #6 on: October 10, 2012, 07:43:23 PM »
What was said in Vegas I won't repeat  :rofl;
 
Hello again :waving;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
MissJazzyEmily
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JAHLO! :D I am deniferfer's sister!

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« Reply #7 on: October 10, 2012, 08:39:18 PM »
Thank you allll for making me feel so welcomed!   :clap;
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Have a good day! :) x
Traveller1947
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« Reply #8 on: October 11, 2012, 03:49:07 AM »
Hi, Jasmine, and welcome!  Glad to see you here!  All the best to you.
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deniferfer
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My nickname is princess
« Reply #9 on: October 11, 2012, 07:40:54 PM »
Awww thanks for Joining Jazzy!!  :cuddle;

You will like it here too..Everyone is so nice and just great to come and I can as anything or speak my mind and i know they all support me. You will learn so much from others here. 

 
Quote from: Chris on October 10, 2012, 07:43:23 PM
What was said in Vegas I won't repeat  :rofl;
 

What was said in Vegas stays in Vegas....Plus I don't think we CAN repeat what was said.  :rofl; :rofl;
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1981-1995: Perfectly fine
1996: November, started feeling sick
1997: April, creatine at 17 and began dialysis    
1997: May Place on PD
2006: Had to replace PD tube
Chris
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« Reply #10 on: October 13, 2012, 05:38:45 PM »
What was it about purple again?  :rofl; :rofl; :rofl; :rofl;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
lmunchkin
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"There Is No Place Like Home!"
« Reply #11 on: October 14, 2012, 06:18:50 PM »
Welcome Jasmine and GOD BLESS YOU for being there for Denifer!  I don't have this disease either, but my husband does. Its our love that sustains us.  It will see you through alot!!!

Again Welcome,
lmunchkin :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
MissJazzyEmily
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JAHLO! :D I am deniferfer's sister!

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« Reply #12 on: October 14, 2012, 09:39:42 PM »
Quote from: Chris on October 13, 2012, 05:38:45 PM
What was it about purple again?  :rofl; :rofl; :rofl; :rofl;

Hahah like you said..we musn't repeat it!  :shy;
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Have a good day! :) x
MommyChick
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Me & my precious Miracle !!!
« Reply #13 on: October 15, 2012, 05:30:09 PM »
Hello & Welcome  :waving;
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~ Hello All, My names Marna ~

- 1995 - 12 yrs old found out my kidneys were both failing
- 1996 - Dec. 3 I received my 1st kidney transplant at age 13, after 7/mths on the waiting list
- 2005 - In Aug. transplant failed after 9.5 years, had to have a nephrectomy due to being very ill & massive hypertension
           - End of Aug. 1st time on dialysis
- 2006 - Had my fistula placed & ready to go
- 2010 - My little Miracle was born 6/mths into the pregnancy, weighing 2.4 lbs & 13.25 in long
          - Found out my PRA is 100% & I have antibodies that CAN'T be decreased
- 2013 - Oct. 2nd  *** I finally received my kidney!!! ***
          - Dec. 3rd I had 3.5 parathyroids removed, due to them interfering w/my new kidney.
boswife
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us and fam easter 2013
« Reply #14 on: October 15, 2012, 05:54:21 PM »
hi and welcome  :welcomesign;  I am the 'other' half of this sucky desiese as well, and am here supporting my hubby who is on D.   It's good to have others to understand what a mess this can cause.  Bless ya for joining and hope you enjoy and learn too  ;D
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
KarenInWA
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« Reply #15 on: October 15, 2012, 09:51:43 PM »
Hey Jazzy! Good to see you here! You are so awesome to come on here and be a part of all of this  :2thumbsup;

KarenInWA  - part of that Vegas crowd who knows about the purple....
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1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
Poppylicious
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« Reply #16 on: October 19, 2012, 04:28:15 AM »
 :welcomesign; Jasmine!

So, what's all this about purple then?

 :o (< assuming I need a shocked face.)
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
HSM
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« Reply #17 on: October 21, 2012, 08:59:05 AM »
Hey Jasmine,

Firstly welcome aboard! Secondly, I've heard of you. Your sister told me you're one to watch. We may need to keep an eye on you and all the potential mischief you may cause lol! Just kidding. You Vegas lot with your inside jokes lol. Good on you for being honest enough to admit you didn't realise the impact it had on her life until recently. I couldn't spell "Dialysis" before I was on it and didn't give a monkeys about it lol.
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The only reason I attend dialysis is for the tea and the biscuits!

Dialysis wasn't the end, it was just the beginning!

It's about ability, NOT disability!
MissJazzyEmily
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JAHLO! :D I am deniferfer's sister!

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« Reply #18 on: December 19, 2012, 11:41:55 PM »
Hahah hello all! :) Thank you so much for the warm welcome!!  :) And as for the purple thingy..I stepped right into that at Vegas! It was so embarrassing  :shy; but it ended up being an ongoing gag among us. So I guess it isn't all bad! Lol
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Have a good day! :) x
gothiclovemonkey
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« Reply #19 on: December 20, 2012, 02:50:09 AM »
 :welcomesign;

its great to see a family member( that isnt a spouse) join to support! more need to do that!
 :grouphug;
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
TX listed 8/1/11 inactive
LISTED ACTIVE! 11/14/11 !!!
Big E
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« Reply #20 on: December 20, 2012, 03:33:36 PM »
Hi Jasmine,

I drove home with you and your mom and sister from the Olive Garden, remember? It was so nice to meet you and your lovely family -- hopefully we'll be able to do it again in 2013.

So glad you decided to join us on IHD.

 :welcomesign;
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PKD diagnosed June 1996
Started in-center hemodialysis May 2010
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