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Author Topic: My Introduction  (Read 2967 times)
LoudyBear
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« on: December 12, 2012, 09:37:50 AM »

Hi, my name on this site is LoudyBear. I do home hemo with a NxStage machine, 5 days a week. I've been on various forms of dialysis over the last 12 years. I had a kidney transplant from a live donor but I found out after the surgery that the donor had Hep C. Now blood tests have shown that I have it. I've tried Interfuron and found it to be intolerable. I was on the list for another kidney but I feel it would be useless to just lose it again to Hep C, so I've been on standby for a while now. I tolerate the dialysis pretty well and right now blood tests are coming back with good numbers. I really do hate dialysis but it keeps me alive.
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tiredandthirsty
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« Reply #1 on: December 12, 2012, 09:50:05 AM »

so sorry to hear this.  i know exactly how it feels to just keep drawing the short stick everytime. welcome.
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WishIKnew
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Alports, dialysis '07-'12,cancer'11,transplant '12

« Reply #2 on: December 12, 2012, 09:55:51 AM »

Welcome LoudyBear!  Glad to meet you but wish it were for another reason.   :welcomesign;
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MooseMom
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« Reply #3 on: December 12, 2012, 10:23:21 AM »

Welcome!

Are you still on the list?  You said you "were", so does that mean you took yourself off?

Are you certain to lose a new kidney to hep C if they already know you have it?  What does your medical team say?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Mr Pink
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« Reply #4 on: December 12, 2012, 05:57:21 PM »

G'day Loudy, tough break on the liver donor transplant, very tough break. I'm a bit surprised that didn't come up before they did the transplant. You're right about dialysis, it's not that bad and it does keep us alive. Welcome to the site.
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lmunchkin
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"There Is No Place Like Home!"

« Reply #5 on: December 18, 2012, 04:44:20 PM »

Howdy Loudy, & Welcome.  So sorry for your trials, but you have done a good job of dealing with it.  Hang in there and post here often.  Iam a Nxstager too, but my husband is the one who dialysis's.

Again welcome & God Bless You,
lmunchkin :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
stringbandbeth
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« Reply #6 on: December 22, 2012, 06:00:51 AM »

Hi Honey!!
   About time ! ( Loudybear is my Bear )  Check out the Dialysis news and articles.
       
                       :guitar:
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caregiver for husband on home dialysis 14 yrs
jbeany
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Cattitude

« Reply #7 on: December 29, 2012, 12:26:40 PM »

 :welcomesign;

So she talked you into checking us out, huh?  Good for her, you, and IHD!   ;D

jbeany, Moderator
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

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