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Author Topic: Sleepyhead - introducing myself  (Read 3543 times)
Sleepyhead
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« on: November 22, 2012, 09:24:58 AM »

Polycystic kidneys
Peritoneal dialysis 18 months (stopped because of pseudomonas infection - traced it back to sneezing dog - he had hay fever that year!)
Haemodialysis 3 1/2  years (satellite unit, TVs hanging from the rafters, all on different channels - very noisy - has put me off TV for life - well, except for Russell Howard's Good News and Inspector Montalbano)
Polycystic kidneys out - ouch!  They were huge and left a big scar inside and a nasty infection.  Didn't think I'd get through that one without some lasting damage but amazing what your body can bounce back from ....
Home haemo (4 X 4 hours a week) 4 months (I thought I'd be nervous but it went like a dream.  Couldn't believe I was actually at home doing dialysis on my own, with all my books and radio to hand and blissfully peaceful and quiet.  Felt so pleased with myself!)
Nocturnal haemo (4 x 8 hours a week) 8 weeks - I can't sleep!  Help! I'll put up a separate post.
Working 3 days a week
Hobbies - cycling, reading, listening to music, seeing my friends
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Rerun
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Going through life tied to a chair!

« Reply #1 on: November 22, 2012, 09:31:34 AM »

Hi Sleepyhead, and welcome to IHD.  I'm so glad you found us.  This site is so awesome!  I'm glad you are home.  I do nocturnal in center.  Two of the loud guys just left and it is so much nicer.  I can sleep now.

Come post often!

Rerun, Moderator     :welcomesign;
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cassandra
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When all else fails run in circles, shout loudly

« Reply #2 on: November 22, 2012, 04:18:58 PM »


Welcome to the site Sleepyhead    :welcomesign;

take care Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Poppylicious
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WWW
« Reply #3 on: November 23, 2012, 02:50:15 AM »

 :welcomesign; Sleepyhead! Russell Howard's Good News?  Are you here to swell our UK ranks or is he just a popular elsewhere in the world too?!
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Rerun
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Going through life tied to a chair!

« Reply #4 on: November 25, 2012, 11:26:46 AM »

 :bump;
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boswife
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us and fam easter 2013

« Reply #5 on: November 25, 2012, 11:58:45 AM »

 :welcomesign; and nice to meet you 'sleepyhead'  ;D  Its so neat to see all the 'nocturnal' people commen around.  Something we think about but so far have not done.  Not ready for the battle w/center but in time  ;D  Hope someone will help ya with that sleepy stuff as i think that would be an issue here too.  He's just started sleeping through it but thats only 4 hours and he's done with sitten or sleeping.  Cant handle much more (although i look at him right now, after a 4 hour sit on machine and whats he doen?????  sitten watching game anyway..lo) 
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
lmunchkin
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"There Is No Place Like Home!"

« Reply #6 on: November 26, 2012, 06:19:26 PM »

Welcome Sleepy!  Glad you joined IHD.  Lots of people here understand!

Again welcome & God Bless,
lmunchkin :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Sleepyhead
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« Reply #7 on: December 10, 2012, 05:14:07 AM »

Thank you all for your good wishes and, yes Poppylicious, I am from the UK as you guessed.  I don't think Russell Howard has been exported yet! 

Have to go into hospital today for an operation - not kidney-related - it always seems so unfair to get something else although, looking at this site, it is not so uncommon.

Back on line when I get out.


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MaryJoe
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« Reply #8 on: December 10, 2012, 06:02:17 AM »

 :waving;  Welcome Sleepyhead!  I hope your surgery and recovery go smoothly.  I know what you mean about having other medical things pop up, it makes me sad and a little angry at the cosmos when I read that one of my fellow IHDers is having another issue to deal with.   
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
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