travbug
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« on: June 16, 2012, 12:40:46 PM » |
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How low was your GFR when you started PD willing , not as an emergency?? Getting catheter next week.
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jeannea
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« Reply #1 on: June 16, 2012, 02:41:59 PM » |
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Sorry, I wasn't willing. I woke up from my coma on HD, later switched to PD. I was pissed to say the least.
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MaryD
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« Reply #2 on: June 16, 2012, 06:06:25 PM » |
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Mine was bouncing around between 9 and 13.
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KAF454
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It is what it is today.
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« Reply #3 on: June 16, 2012, 06:16:00 PM » |
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14, dropped from 30 six months earlier. The writing was on the wall and I wanted to get started on dialysis AND get listed before I got in real bad shape.
I'll tell you I felt better physically before I started PD but mentally I was slipping away (i.e poor concentration, forgetfulness, mistakes at work). Now I'm tired but my head is clear and the PD dietary restrictions are much easier to tolerate than the CKD diet was.
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PD catheter inserted 11/2011
CCPD begun 12/2011
Activated on transplant list 01/27/2012
PD efficacy tanked 12/2012. CVC inserted for hemo.
Elected to stay on hemo 01/2013. (10.5 hours per week instead of 8 hours every night? No contest!)
Today I will not worry unless the animals start lining up 2 by 2.
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travbug
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« Reply #4 on: June 16, 2012, 07:36:20 PM » |
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Thank you Mine are 10. Also foggy head. Did not even think about dietary restrictions.
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MaryD
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« Reply #5 on: June 16, 2012, 08:33:46 PM » |
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I have temporarily come off PD (peritonitis). Last PD drain was Thursday 5am. Sunday morning foggy thinking is back.
When I started PD foggy thinking disappeared on day four. Blood tests results were not greatly different to before PD results. So I wonder it the foggy thinking is caused by something which is not measured by the usual tests
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WishIKnew
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« Reply #6 on: June 16, 2012, 09:36:58 PM » |
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Mine was 8 when I started PD.
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KAF454
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« Reply #7 on: June 17, 2012, 09:20:36 AM » |
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Travbug, I went from a 1 oz. per day protein restriction to a target of 10 oz. minimum per day. My neph says I can't eat enough protein to suit him. However, triglycerides can get out of hand quickly.
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PD catheter inserted 11/2011
CCPD begun 12/2011
Activated on transplant list 01/27/2012
PD efficacy tanked 12/2012. CVC inserted for hemo.
Elected to stay on hemo 01/2013. (10.5 hours per week instead of 8 hours every night? No contest!)
Today I will not worry unless the animals start lining up 2 by 2.
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travbug
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« Reply #8 on: June 20, 2012, 08:53:04 AM » |
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This will be interesting because I also eat very little protein and would have a hard time eating more right away.
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billybags
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« Reply #9 on: June 20, 2012, 12:02:37 PM » |
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My husbands GFR was 8 and he felt well, but our neph said he liked to put his patients on dialysis when they did feel OK because they took to it better. I believe he was right.
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travbug
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« Reply #10 on: June 21, 2012, 11:33:55 AM » |
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That is exactly what my neph said also.
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brenda seal
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« Reply #11 on: June 22, 2012, 04:55:37 PM » |
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I am thinking the lower gfr is when starting PD - the less benefit ! Laurie was 7 and six months in he is still not doing well and his creatinine remains high . The sooner you start the better I believe . I am of the firm belief if Laurie had started a year sooner he would be doing a lot better .
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wbdoug
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« Reply #13 on: June 23, 2012, 06:03:02 PM » |
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My gfr was 9 when I got my catheter. I really did not have any symptoms nor was I sick. Due to the fact that wasn't feeling sick I was hesitant to get it done but after reading many, many posts here and my doctor convincing me, I did get it done before I got so sick that I HAD to go on D. It turns out it was the smart thing to do and nobody has ever accused me of being smart  Bill |
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8/3/2011 PD Cath installed
Life keeps interfering with my plans
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laphoenix
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« Reply #14 on: July 28, 2012, 11:24:21 PM » |
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Ditto to everything billybags said. At gfr 8, I still felt ok but neph likes to get us started while we still feel good - less stressful transition to dialysis. I initially complained that dialysis didn't make me feel any better but I was told that was because I was never really that sick....
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KAF454
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It is what it is today.
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« Reply #15 on: July 29, 2012, 09:34:46 AM » |
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I'm glad my neph started me at 14. My last clearance came back at a 6 and I hate to think how bad I'd be feeling without PD.
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PD catheter inserted 11/2011
CCPD begun 12/2011
Activated on transplant list 01/27/2012
PD efficacy tanked 12/2012. CVC inserted for hemo.
Elected to stay on hemo 01/2013. (10.5 hours per week instead of 8 hours every night? No contest!)
Today I will not worry unless the animals start lining up 2 by 2.
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mcclane
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« Reply #16 on: July 29, 2012, 04:11:10 PM » |
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willing to go on pd, zero
gfr just before going on pd, it was 9
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rosebudd85
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« Reply #17 on: December 03, 2012, 12:27:48 PM » |
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I started at 11 I was really foggy and bad memory loss and was getting sick to my stomach about 4 times a week.
after I started fogginess went away and so did the puking! Feeling real good except for the cramping I get while draining.
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