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Author Topic: Help! Where can I buy sterile water?  (Read 15448 times)
MomoMcSleepy
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My son Roddy McSleepy at 6 months! sry pic sidewz

« on: August 29, 2012, 09:23:33 PM »

Hey all,

I am sitting here very frustrated and miserable.  I haven't been approved for transplant cause I have been getting infections.  I was good from April til last week, when I got another UTI.  I am having a pancreatitis flare up, too, am am crazy weak and sick.  So I have two questions...

First, what can i  eat that's renal and pancreatitis flare-up friendy?  I have hypoglycemia cause of kidney disease, and i'm a wreck, might have to skip work..

second, part of my infection prevention is to irrigate my neo-bladder (made out of my colon), but my new urologist (who i like) wants me to use sterile water.  i used to make my own saline solution.  i paid $15 for a 500 ml bottle from my medical supplier (insurance won't cover it) but the Rx says to use 30 ml twice a week.  The bottle says to dispose of remaining portion, so i'm afraid it will be too germy, even in the fridge (i used to put salinein the fridge).  The nurse I talked to was vague and this particular doctor is tough to talk to on phone or email, im always talking to a no-nothing nurse (recently Urology has gone way downhill, they used to be really good nurses.)

I am half-crazy right now, so excuse my lazy typing.  have to go to bed, appointments tomorrow and already run down.

Anyone know where I can get 30ml containers of STERILE water?  All I find when I search are bacteriostatic (which is wrong) or 500 ml.  I m starting to get really angry.  This has the effect of me just not irrigating.

Thanks, guys, I have been trying to take care of this and thought I'd give the site a try...
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35 years old, first dx w/  chronic renal insufficiency at  28, pre-dialysis

born with persistent cloaca--have you heard of it?  Probably not, that's ok.

lots of surgeries, solitary left kidney (congenital)

chronic uti's/pyelonephritis

AV fistula May 2012
Kidney Transplant from my husband Jan. 16, 2013
Howard the Duck
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: August 30, 2012, 01:46:50 AM »

I thought you could just boil it, but apparently you need a pressure cooker?
http://www.ehow.com/how_7366234_make-sterile-water.html
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Rerun
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Going through life tied to a chair!

« Reply #2 on: August 30, 2012, 04:34:35 AM »

For home dialysis they put an RO unit in my house for the most pure water.  RO means Reverse Osmosis.

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Rain
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« Reply #3 on: August 30, 2012, 04:46:14 AM »

I get 100ml bottles of saline and use it with 30ml syringes.
 I irrigate 3 times during that one use.
Have you talked to the medical place you get your catheter cause they could order you stuff they don't have. 

http://www.amazon.com/Sterile-Saline-Unit-Irrigation-Solution/dp/B003B5F880

https://shop.briggscorp.com/e2wItemMain.aspx?parentId=IT00005330
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1988  Diagnosed with reflux and kidney damage
2006-  Diagnosed with Renal Failure and start dialysis in centre with catheter
2007- Fistula created and in centre hemo with fistula
2012- Fistula clotted and central line inserted
May 2014- Received Kidney from deceased donor
kitkatz
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« Reply #4 on: September 22, 2012, 07:40:12 PM »

http://www.mountainside-medical.com/products/Sterile-Water-For-Injection-Bacteriostatic-Water-30-ml.html
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
MomoMcSleepy
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My son Roddy McSleepy at 6 months! sry pic sidewz

« Reply #5 on: October 16, 2012, 12:01:08 PM »

kitkatz, I love your profile picture!

I can't use the bacteriostatic, though.  I am just going to make my own or get saline.  This pure sterile stuff is hard to get hold of, and doesn't keep well enough for my comfort.

thanks for the link, though!
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35 years old, first dx w/  chronic renal insufficiency at  28, pre-dialysis

born with persistent cloaca--have you heard of it?  Probably not, that's ok.

lots of surgeries, solitary left kidney (congenital)

chronic uti's/pyelonephritis

AV fistula May 2012
Kidney Transplant from my husband Jan. 16, 2013
Howard the Duck
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