I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
October 27, 2024, 04:19:51 AM

Login with username, password and session length
Search:     Advanced search
532606 Posts in 33561 Topics by 12678 Members
Latest Member: astrobridge
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Dialysis Discussion
| |-+  Dialysis: Transplant Discussion
| | |-+  8 months post transplant - TB outbreak at my son's school		 0 Members and 1 Guest are viewing this topic. « previous next »
Pages: [1] Go Down Print
Author Topic: 8 months post transplant - TB outbreak at my son's school  (Read 3322 times)
WishIKnew
Sr. Member
****
Offline Offline

Posts: 635


Alports, dialysis '07-'12,cancer'11,transplant '12
« on: September 18, 2012, 09:28:52 AM »
So my son came home yesterday with a letter explaining that there is/are confirmed cases of active tuberculosis at his school.  All students and staff will be tested tomorrow at school.  My transplant team told me to get tested first thing this morning, which I did.  Now waiting for results.  I'm so full of anxiety.  I just feel like ...I don't know.  I guess I just worry all the time about something going wrong.  Can you relate?

 :flower; :flower; :flower;
Logged
okarol
Administrator
Member for Life
*****
Offline Offline

Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #1 on: September 18, 2012, 03:26:22 PM »
I hope it all turns out fine. I was freaked out once when Jenna's sister was at risk for some bad illness (I cannot recall what it was, but very contagious), turned out it was not the case, but stressed us all out waiting. Good luck!  :thumbup;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
cassandra
Elite Member
*****
Offline Offline

Gender: Female
Posts: 4974


When all else fails run in circles, shout loudly
« Reply #2 on: September 20, 2012, 03:41:17 PM »
OMG did you get a result yet?

Good luck, and love Cas
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
WishIKnew
Sr. Member
****
Offline Offline

Posts: 635


Alports, dialysis '07-'12,cancer'11,transplant '12
« Reply #3 on: September 20, 2012, 04:19:11 PM »
Just got our results today.  We are all negative.  Thank goodness.  That was a little "what if-ish!"

Thanks for your concern!

 :flower; :flower; :flower;
Logged
jeannea
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1955
« Reply #4 on: September 20, 2012, 07:38:15 PM »
So glad you're all ok. Tuberculosis is so scary. I would have panicked.
Logged
smcd23
Sr. Member
****
Offline Offline

Gender: Female
Posts: 528


The patient, the baby and the donor - October 2010

WWW
« Reply #5 on: September 20, 2012, 08:49:39 PM »
TB is very scary. The good news is I don't think it is as contagious as it was once thought to be. Just make sure your son washes hands a lot at school and at home and isn't getting coughed on by sick kids. At work, we used to not interview people who had active TB, and if someone called to file a claim for TB we had to call a state registry to see if they were on the active list etc. Now we encourage teleclaims just to be safe, and if someone insists on coming in, or walks in, we have to use hand sanitizer and wipe down the counters with bleach when they leave. Not to minimize the risk or anything, however. Last time we had someone come in who was living with someone who had active TB, my coworkers didn't allow me to deal with them for fear I'd get it, or somehow carry it home and get Tony sick. You can never be too careful, right?

I am sure the school is doing something to sanitize/clean the classroom and common areas the student has been in?

And I am very glad everyone is negative. That is a huge relief I am sure!
Logged
Caregiver to Husband with ESRD.

1995 - Diagnosed with vesicoureteral reflux and had surgery to repair at age 11. Post surgery left side still had Stage I VUR, right side was okay. Both sides were underdeveloped.
2005 - Discovered renal function was declining, causing HBP. Regular monitoring began.

March 2008 - Started transplant evaluation for preemptive transplant due to declining function.

September 16, 2008 - Transplanted with my kidney.
September 18, 2008 - Kidney was removed due to thrombosis in the vessels in and leading to the kidney.

October 2008 - Listed in Region I

May 2009 - Started in Center Hemo
January 2010 - Started CCPD on Liberty Cycler

June 15, 2012 - Kidney transplant from a 43 year old deceased donor
June 22, 2012 - Major acute rejection episode and hospitalization began
June 27, 2012 - Nephrectomy to remove kidney after complete HLA antibody rejection. Possibly not eligible for another transplant, ever again.

Now what?
cassandra
Elite Member
*****
Offline Offline

Gender: Female
Posts: 4974


When all else fails run in circles, shout loudly
« Reply #6 on: September 21, 2012, 07:34:40 AM »
I'm so glad to hear that,

lots of more luck, and love Cas
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
okarol
Administrator
Member for Life
*****
Offline Offline

Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #7 on: September 21, 2012, 10:17:53 AM »
Quote from: WishIKnew on September 20, 2012, 04:19:11 PM
Just got our results today.  We are all negative.  Thank goodness.  That was a little "what if-ish!"

Thanks for your concern!

 :flower; :flower; :flower;

Great!!  :cheer: :cheer: :cheer:
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Pages: [1] Go Up Print 
« previous next »
 
Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!