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Author Topic: Hey Guys. Long time no see.  (Read 3259 times)
Epokid
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« on: September 11, 2012, 10:08:11 PM »
Hey everybody. Its Nick. and well i just wanted to thank each and every one of you for supporting what my dad started. it truely means so. so much. i cant even begin to explain all ive been through since i was last on here. in fact, i havent been on here since march 2nd 2007. i love each and every one of you, and ill try from now on to be more involved in what Dad began.

so, Hello :)
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Chris
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« Reply #1 on: September 11, 2012, 10:46:44 PM »
Hello back at yah. Seems like you have been on later than 2007 tho.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #2 on: September 12, 2012, 12:44:26 AM »
 :waving; hi Nick!
Good to see you.
Love you too!
Karol  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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Might as well smile
« Reply #3 on: September 12, 2012, 04:44:28 AM »
Hi Nick.  Hope things are going well for you and your Mom...I really enjoyed meeting you both last year and hope that you're staying funny.  xo
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
gothiclovemonkey
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« Reply #4 on: September 12, 2012, 08:10:44 AM »
Hello!
It was wonderful meeting you at Las Vegas meetup last year!
 :cuddle;
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
TX listed 8/1/11 inactive
LISTED ACTIVE! 11/14/11 !!!
Rerun
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Going through life tied to a chair!
« Reply #5 on: September 12, 2012, 10:08:51 AM »
Hi Nick,  Your Dad was so proud of you.  I know you miss the heck out of him and so do I.  He really did a wonderful thing creating this site.

Stay well, say no to drugs, study hard etc.....

Rerun     :waving;
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Darthvadar
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« Reply #6 on: September 12, 2012, 11:19:21 AM »
Good to see you, Nick...

Your dad was before my time on IHD, but I'm grateful always for what he started!...

God bless...

Darth....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
MooseMom
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« Reply #7 on: September 12, 2012, 11:45:44 AM »
Your dad was before my time on IHD, too, but I am so proud of what he accomplished here.  So many people start their very first post with the words, "I am so glad I found this site!"

I got to meet you in LV last October..I'm sure you remember each and every one of us.  LOL!

I do hope you post more often here.  I know you have more interesting things to do with your life, but continuing your dad's presence on IHD would be wonderful.  Maybe even just a quick hello from time to time...!

Thank you for posting, epokid! 
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
glitter
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« Reply #8 on: September 12, 2012, 01:19:28 PM »
 :bandance; glad to see you popping in Nick-I miss your Dad, he had some good strong opinions!! I miss that too!
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
Joe
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« Reply #9 on: September 12, 2012, 02:00:54 PM »
Hi there Nick! Like Darth and MooseMom, I came to this site after the time of your Dad. I'm so grateful for this community that he started and the people that carry it on.

Hope thugs are going well with you and your Mom.
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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
boswife
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us and fam easter 2013
« Reply #10 on: September 12, 2012, 03:18:27 PM »
Super special to 'see' you here Nick!  All of us are so grateful to your dad for starting this place and it flourishes to this day.  We have all been blessed in different ways just in finding our way here.  So, hope to see you arround more.  You too are very special to us all, and feel honored that you show up every now and again  :grouphug;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Poppylicious
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« Reply #11 on: September 13, 2012, 04:11:34 AM »
*waves* to Epokid from across the pond in England! 

I never had the pleasure of 'knowing' your dad but I will be eternally grateful to him for creating a safe place for me to visit, whether in happiness or grumbling mode.  I would have gone insane if I hadn't found this site when I did.

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
plugger
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I only look like a sheep - but I ain't

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« Reply #12 on: September 13, 2012, 10:18:24 AM »
Quote from: Epokid on September 11, 2012, 10:08:11 PM

 i havent been on here since march 2nd 2007. i love each and every one of you, and ill try from now on to be more involved in what Dad began.

so, Hello :)

Dang, I blink and five years go by!  (comes with age)  You can be very proud of your Dad being the spark and inspiration for this site!  (I haven't been able to tear myself away)
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Proud member of DialysisEthics since 2000

DE responsible for:

*2000 US Senate hearings

*Verified statistics on "Dialysis Facility Compare"

*Doctors have to review charts before they can be reimbursed

*2000 and 2003 Office of Inspector General (OIG) reports on the conditions in dialysis

*2007 - Members of DialysisEthics worked for certification of hemodialysis
technicians in Colorado - bill passed, renewed in 2012 and 2019

*1999 to present - nonviolent dismissed patients returned to their
clinics or placed in other clinics or hospitals over the years

On my tombstone: He was a good kind of crazy

www.dialysisethics2.org
Leanne
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« Reply #13 on: September 15, 2012, 05:58:17 PM »
Hi Nick.  I never got to know your dad but Im so glad for this place.  Its great to have a place to be understood and have friends that know what this life is like.  Hugs....
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Leanne

I am more than a patient.  I am a mama, friend, wife, sister, and most of all a person.

41 years old, hemo since November 2011, trained for PD and tried numerous times.  PD did not work for me , it was a nightmare :(
kitkatz
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« Reply #14 on: September 15, 2012, 06:35:03 PM »
Hey Nick, Good to hear from you.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Big E
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« Reply #15 on: September 15, 2012, 07:51:53 PM »
Hi Nick, thanks for staying in touch!
 :waving;
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PKD diagnosed June 1996
Started in-center hemodialysis May 2010
cassandra
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When all else fails run in circles, shout loudly
« Reply #16 on: September 16, 2012, 12:52:22 PM »
Hi Nick, great to hear from you.

take care Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
jbeany
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Cattitude
« Reply #17 on: September 16, 2012, 01:27:02 PM »
You are ALWAYS welcome to pop in whenever you feel the urge to say hi.  We understand that you've got a life outside of this website, but we love it when you come visit! 

Your dad was a huge inspiration for me when I started D, and a large portion of the credit for NxStage program at my local D clinic belongs to him.  If I hadn't read his story on here, and had him helping me push for the better treatment option for myself and everyone in my area, I'm not sure it would have ever happened. 
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
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