People Trying To Help

[Rerun]

My Co-Workers brought by some books last night for me.  Very nice, but I want the throw the books through the fricken' window!  They gave me a Math puzzle book that is impossible to do and a Journal on becoming a "Better You" like "Finding the VIP within you" and a book called "When God doesn't Make Since."  I'm being a total ungrateful bitch, but I do NOT want to read that crap like I have a future with goals.  I just want to go throw them in their office and tell them to go to Hell!

I have had a call into my Doctor for 2 days now.  She won't call me back.  I feel like just showing up at her office and sitting in her lobby until she sees me.  I'm on sick lieave and have all damn day.  They are so going to wish I was back to work!  Darla

[LifeOnHold]

My aunt informed me that "God was punishing me" with dialysis... I told her that God was punishing me with HER!


Don't even try to do math while you're on the machine... even crossword puzzles will be tough after the second hour.  I've noticed that the first two hours of treatment are ok for me to do puzzles, but after two hours I get sleepy and can't think straight.


Your post gave me an idea:  A public book-burning!  A bunch of dialysis patients could get together and throw all of those 'change your life' books on a nice big bonfire!   


You'll have to keep after your doctor-- nephrologists are all terrible about getting back to you. 

[Epoman]

My Co-Workers brought by some books last night for me.  Very nice, but I want the throw the books through the fricken' window!  They gave me a Math puzzle book that is impossible to do and a Journal on becoming a "Better You" like "Finding the VIP within you" and a book called "When God doesn't Make Since."  I'm being a total ungrateful bitch, but I do NOT want to read that crap like I have a future with goals.  I just want to go throw them in their office and tell them to go to Hell!

I have had a call into my Doctor for 2 days now.  She won't call me back.  I feel like just showing up at her office and sitting in her lobby until she sees me.  I'm on sick lieave and have all damn day.  They are so going to wish I was back to work!  Darla

Rant/vent on!!! This is what this place is here for. Let it all out, we are your audience. As for the doctor well you should go sit in her lobby and not leave until she sees you. I hate doctors like that.

[Rerun]

Dumb questions I've been asked lately:

Are you still on dialysis?

Are you just on once a week?

Do you have to do dialysis until you get a transplant?

Why don't you just sign up for a transplant?  (like it is some Women's Fellowship cookie exchange)

Oh, god, I have to pee, do you?

When you are on the machine can you walk around?

Can't you just skip a session?  (They wanted me to go somewhere with them)

How about Chinese for lunch?

Please add to these!  Life On Hold.... I know you must have some good ones!!   

Darla~

[Epoman]

Dumb questions I've been asked lately:

Are you still on dialysis? What do you think dip-shit?

Are you just on once a week? No actually just once a year!

Do you have to do dialysis until you get a transplant? No only if I want to live!

Why don't you just sign up for a transplant?  (like it is some Women's Fellowship cookie exchange) Why you want to donate TWO?

Oh, god, I have to pee, do you? No but can I crap on your face!

When you are on the machine can you walk around? Yeah I just ask for 1 mile long dialysis lines!

Can't you just skip a session?  (They wanted me to go somewhere with them) Sure I'll skip 3 then you can bring flowers to my funeral dip-shit!

How about Chinese for lunch? Sure than after that how about Banana Chocolate cake?

Please add to these!  Life On Hold.... I know you must have some good ones!!   

Darla~

My replies are in BOLD above. Hope you like them. 

[LifeOnHold]

I get a lot of people who think you can 'wean' yourself off of dialysis.

"So, you're on 3 days a week... so then you'll go 2 days and then 1 day, then you won't need it, right?"  For Pete's Sake, it ain't like being an alcoholic!  Do you think ANYONE would still be going 3 days a week if that was possible?!


My favorite thing to say when people ask, "Will you need to be on dialysis FOREVER?"  is, "Nope... just until I die!"   The conversation comes to a screeching halt right there! 

Why don't you just sign up for a transplant?  (like it is some Women's Fellowship cookie exchange)
(Darla, you are gonna put me out of business if you keep up with the snappy replies!  )

[Rerun]

Never... you are the queen of wise cracks!  I died laughing about the "no I don't have to pee but can I crap on your face?"   

[Rerun]

Medicare - A federal health insurance program for people who are U.S. citizens or permanent residents, age 65 or disabled, or have kidney failure.

That is the true definition.  That is why I/we qualify for Medicare.

I went to sign up for Medicare today.  But, first I went to the dentist... perfect!  Half my face was numb.  No problem qualifying.  Bbbhi I'mbbbll Herebbaa to thine up forrr Meddddatare.

I think I'll schedule a root canal before I go sign up for disability!   

Darla~

[Epoman]

Never... you are the queen of wise cracks!  I died laughing about the "no I don't have to pee but can I crap on your face?"   

Hey that was my post.

Thank you. I thought that was my best one. 

[Marina]

I  sure  can't  believe  how  ignorant  or  uneducated  people  are  about  kidney failure  and  dialysis.                When  I  went  back  to  work  after  I  had  my PD  catheter  placed,  there  were  some coworkers  who  asked  so I  know  you had  surgery,  what  was  wrong?        SO  I  then  went  on to  tell them  I  was  now  on  dialysis.  There  next  question  was  "so  how  long  will you have  to  do that?"       I   didn't  know  whether  to  laugh  or  smack  them.                It's  pretty  sad  that  so  many  people  in  the  world  are  suffering  from  this  disease  yet  so  little  is  know by  healthy  people.
                TIME  TO  EDUCATE  THE  WORLD  I  guess.

[Epoman]

I  sure  can't  believe  how  ignorant  or  uneducated  people  are  about  kidney failure  and  dialysis.                When  I  went  back  to  work  after  I  had  my PD  catheter  placed,  there  were  some coworkers  who  asked  so I  know  you had  surgery,  what  was  wrong?        SO  I  then  went  on to  tell them  I  was  now  on  dialysis.  There  next  question  was  "so  how  long  will you have  to  do that?"       I   didn't  know  whether  to  laugh  or  smack  them.                It's  pretty  sad  that  so  many  people  in  the  world  are  suffering  from  this  disease  yet  so  little  is  know by  healthy  people.
                TIME  TO  EDUCATE  THE  WORLD  I  guess.

Help spread the word about this site and maybe people will learn. 

[Wizard]

I hate it when people say "Are you still doing that?"
Like I was a crack fiend or something.
-or- well "why are you shopping all the time when you are on Medicare?".
-or- "aren't you ever going to get out of bed today?".
-or- if I am going to dinner at someone's house "just exactly what can you eat that won't kill you?".
and last but not least when I get a telephone call from a previous co-worker telling me about who is hiring at the present time.
I usually regard these people as totally ignorant to dialysis and have to explain to them how it truly is and if they don't go get their blood pressure checked and sugar level checked I will reserve them a chair next to me.

[cabarle]

I don't think people try to help. Instead, they are nosey. I'm always asked "How do I feel?" My answer is usually: "I'll feel better once you get away from me". Yes, it's mean response but after several weeks I would hope people I know would get the idea. I had one person ask about my sex life, I smiled and said "Why don't you ask your wife?" After the bewildered look I proceeded to the car....

[LifeOnHold]

 I had one person ask about my sex life, I smiled and said "Why don't you ask your wife?" After the bewildered look I proceeded to the car....

GOOD ONE!

As if your sex life is anyone's business in the first place.  It's like your whole life belongs to anyone who asks how you feel.  "Well, when I got home from dialysis my ass started to itch something terrible!  And how's your son doing in school?"

[Rerun]

God Help Me!  People trying to help.    Bless their hearts.  But...... I don't want their help!  This disabled lady at work gave me an afghan that she made for me.  It must have taken her for EVER.  I wish I could say it is beautiful and I love it and I will use it.  BUT!!!  I WILL NOT use this UGLY thing!  GEEZ! 

I think I feel that everything someone gives me I have to keep forever and incorporate into my life.  Afghans are a piece of art and should be used and cherished.  But.... I hate the color and it is knitted with holes... huge holes...  I will never use this thing even if I'm naked on the side of a mountain at 30 below!

What I've learned.  If I'm going to make someone something.... I'm going to ask them first.  1. Would you like a ......  2. What color would you like  3.  What other things do you like.

I know...... I'm an ungrateful B....   

[Epoman]

God Help Me!  People trying to help.    Bless their hearts.  But...... I don't want their help!  This disabled lady at work gave me an afghan that she made for me.  It must have taken her for EVER.  I wish I could say it is beautiful and I love it and I will use it.  BUT!!!  I WILL NOT use this UGLY thing!  GEEZ! 

I think I feel that everything someone gives me I have to keep forever and incorporate into my life.  Afghans are a piece of art and should be used and cherished.  But.... I hate the color and it is knitted with holes... huge holes...  I will never use this thing even if I'm naked on the side of a mountain at 30 below!

What I've learned.  If I'm going to make someone something.... I'm going to ask them first.  1. Would you like a ......  2. What color would you like  3.  What other things do you like.

I know...... I'm an ungrateful B....   

Ungrateful yes, honest yes, if you don't like the thing give it to your dog or a friends dog. Dogs color blind right?  If she never comes to your house just tell her you have it on your chair in your living room, that will make her happy. But in reality it will be keeping some dogs balls warm at night. 

By the way what's the disabled ladys email address so I can forward this thread to her. 

[LifeOnHold]

I have wasted the past 13 years of my life knitting blankets when I SHOULD have been making afghans to keep dogs' balls warm!

Man, do I feel stupid!   

[toad]

i just happen to work in an industry that sells beer...my boss drops by my plaxe with a 12 pack says to me well the wife is at work kids aren't home lets have some beer to cheer u up...the dickhead knows i have been diabetic all my life and on dialysis.....duh

[LifeOnHold]

i just happen to work in an industry that sells beer...my boss drops by my plaxe with a 12 pack says to me well the wife is at work kids aren't home lets have some beer to cheer u up...the dickhead knows i have been diabetic all my life and on dialysis.....duh

Toad, that sounds like attempted murder to me... he hasn't got a life insurance policy out on you, has he?

[toad]

sure as heck he doesn't my wife would kill me.....lol

[okarol]

Never... you are the queen of wise cracks!  I died laughing about the "no I don't have to pee but can I crap on your face?"   

Hey that was my post.

Thank you. I thought that was my best one. 

hehehehe

[glitter]

This whole thread is hilarious!!!

[MyssAnne]

I have one....how about the looks people give you as you go about your life? I am still working (have to, for the insurance!)
and the staff at the clinic were shocked to hear that! You are still working!!!!??? Oh my gosh, you are so brave!
Oh geez. Give me a break. And some people at work, they give you the concerned looks. I may be on dialysis, but I
am NOT an invalid, thank you very much! Nor do I have any desire to be...

[kitkatz]

I get that a lot from the medical profession. It is like your life ends when you get ESRD and dialysis.  It does NOT end, it gets crazy.