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Author Topic: Waiting for a confirmation call - may have a kidney/pancreas today!  (Read 50780 times)
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #250 on: September 18, 2009, 07:48:45 AM »
Great news!  Thanks for the update!  Please let her know that her IHD family members all over the world have her in their caring thoughts and are just hanging in there with her. :grouphug;
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
okarol
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« Reply #251 on: September 18, 2009, 08:40:14 AM »
 :cheer: Great to hear!  :cheer:
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paris
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« Reply #252 on: September 18, 2009, 09:37:33 AM »
Thank you for sharing good news   :2thumbsup;   I hope this is the turning point and it is smooth sailing for her now.  Give her our love    :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
cherpep
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« Reply #253 on: September 18, 2009, 09:42:36 AM »
Great news!!  I've been so worried.  Thanks for the updates, we really appreciate them.   
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Chris
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« Reply #254 on: September 18, 2009, 10:35:55 AM »
Good news that she's up and walking. I also hope that her blood sugars are normal now throughout the bout.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Romona
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« Reply #255 on: September 18, 2009, 01:18:37 PM »
Nice update! :2thumbsup;
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Wenchie58
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Always carrying the big silly grin!
« Reply #256 on: September 18, 2009, 02:29:34 PM »
 :thumbup;  :flower;   :thumbup;  :flower;
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
willieandwinnie
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« Reply #257 on: September 18, 2009, 02:54:58 PM »
 :cheer: Thank you, I have been so worried. Please give her our love.  :cheer:
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"I know there's nothing to it, but I want to know what it is there's nothing to"
kimcanada
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« Reply #258 on: September 18, 2009, 04:41:19 PM »
Love the good news!!!!  :cuddle; JBeany  :cuddle;
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cariad
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What's past is prologue
« Reply #259 on: September 18, 2009, 04:52:57 PM »
Hooray for the post-transplant walk!  :bandance;  :bandance;  :bandance;

Keep feeling better, jbeany!
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
pelagia
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« Reply #260 on: September 19, 2009, 06:59:44 PM »
 :flower;  I'm happy to be catching up with the GOOD NEWS!  :flower;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Jessmomto3
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Logan's mom!
« Reply #261 on: September 21, 2009, 08:13:09 PM »
YAY!  I'm so glad to hear the good news!   :bandance; :cheer:
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Jessica--mommy to Cristian (8), Jaden (4), and our miracle boy Logan (2/23/08)

Logan had PD cath, g-tube, and mediport placement at 4 1/2 months-- 7/2008
started PD at 5 1/2 months--8/2008
Listed--12/2008--inactive
Activated--8/2009

Cadaveric Kidney Transplant 9/4/2009 (18 months old)!!!!!
okarol
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« Reply #262 on: September 22, 2009, 01:53:46 PM »
 :2thumbsup; Update on JBeany:
I just spoke to Janel. She's been in the hospital for a month now. Today she's been doing physical and occupational therapy and was pretty tired from all that hard work! She said her creatinine is now 2.8 and the hope is that it will continue to go down. There are no more blood sugar level issues - all is normal - thanks to the lovely new pancreas! She is still retaining a lot of fluid so they will continue to try and remedy that. Janel is very appreciative of the cards and balloons and thanks all the IHD members who have sent her something. I told her we are all pulling for her!

If anyone else wants her address or phone number please send me a PM.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
willowtreewren
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My two beautifull granddaughters

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« Reply #263 on: September 22, 2009, 03:48:22 PM »
I am so glad she is continuing to improve. What a rough road she has had!

Jbeany, I look forward to your return home and to IHD!

 :cheer: :grouphug; :cheer: :grouphug; :cheer:

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Chris
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« Reply #264 on: September 22, 2009, 05:30:30 PM »
Wow! It's been a moth alread and it doesn't seem like it, but I'm sure jbeany knows it  :banghead; and would like to get out for some fresh air to smell the  :flower; (closest to roses  :rofl; )

If we call her, she'll never get any rst  ;D :sarcasm;

Take it easy and don't push yourself to hard jbeany. Just remember to  :Kit n Stik; any of those resident doctors who are idiots.  ;D
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
charee
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« Reply #265 on: September 22, 2009, 06:44:17 PM »
Great news :flower;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
Jessmomto3
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Logan's mom!
« Reply #266 on: September 24, 2009, 08:37:16 AM »
Quote from: Chris on September 22, 2009, 05:30:30 PM
Wow! It's been a moth alread and it doesn't seem like it, but I'm sure jbeany knows it  :banghead; and would like to get out for some fresh air to smell the  :flower; (closest to roses  :rofl; )

If we call her, she'll never get any rst  ;D :sarcasm;

Take it easy and don't push yourself to hard jbeany. Just remember to  :Kit n Stik; any of those resident doctors who are idiots.  ;D


I second the last part.  One of the residents when Logan was in the hospital asked me why Logan was on dialysis.  Hmmmm..... I don't know, thinking we were bored--Had nothing better to do. 
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Jessica--mommy to Cristian (8), Jaden (4), and our miracle boy Logan (2/23/08)

Logan had PD cath, g-tube, and mediport placement at 4 1/2 months-- 7/2008
started PD at 5 1/2 months--8/2008
Listed--12/2008--inactive
Activated--8/2009

Cadaveric Kidney Transplant 9/4/2009 (18 months old)!!!!!
Chris
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« Reply #267 on: September 24, 2009, 01:42:43 PM »
Quote from: Jessmomto3 on September 24, 2009, 08:37:16 AM
One of the residents when Logan was in the hospital asked me why Logan was on dialysis.  Hmmmm..... I don't know, thinking we were bored--Had nothing better to do.

That's bad when they are suppose to be the doctors! Haven't you looked at the chart or have studied a little to know why there is dialysis. Dumb :sir ken;



Hi jbeany :waving;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Jessmomto3
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Posts: 61


Logan's mom!
« Reply #268 on: September 24, 2009, 02:32:10 PM »
Quote from: Chris on September 24, 2009, 01:42:43 PM
Quote from: Jessmomto3 on September 24, 2009, 08:37:16 AM
One of the residents when Logan was in the hospital asked me why Logan was on dialysis.  Hmmmm..... I don't know, thinking we were bored--Had nothing better to do.

That's bad when they are suppose to be the doctors! Haven't you looked at the chart or have studied a little to know why there is dialysis. Dumb :sir ken;



Hi jbeany :waving;

And yes!  Especially when you're in the ER at 3 am after driving 3 hours and he has a hole in his dialysis cath and really just needs to get up to the floor so the dialysis nurse can come and repair it.  Errrrrr.... irritating.  I actually told them, because we were bored. 

and hi Jbeany!!!  I hope you are doing well today!  any more updates?    :cheer: :cheer: :cheer:  and some cheerleaders to help cheer you into getting home soon.
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Jessica--mommy to Cristian (8), Jaden (4), and our miracle boy Logan (2/23/08)

Logan had PD cath, g-tube, and mediport placement at 4 1/2 months-- 7/2008
started PD at 5 1/2 months--8/2008
Listed--12/2008--inactive
Activated--8/2009

Cadaveric Kidney Transplant 9/4/2009 (18 months old)!!!!!
kitkatz
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« Reply #269 on: September 25, 2009, 06:32:52 AM »
I sure hope the recovery happens quickly now.   :bestwishes; :bestwishes;
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Des
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« Reply #270 on: September 30, 2009, 11:32:42 AM »
Any news?

I hope you pee like a racehorse!
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
jbeany
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Cattitude
« Reply #271 on: August 27, 2012, 06:25:17 AM »
 :bump;

Had to come back and reread this today, along with all the other posts on my miserable two months in the hospital, getting my spare parts.  It's been 3 years today!  I've relearned to walk, I survived 4 months of not being able to eat or drink a thing,  and my guts are all nicely tucked back on the inside of me where they belong,  after being visible for over a year under a skin graft.  (And the skin graft didn't go on for ages and ages, so I had a giant open wound for a long time as well.)   I've managed 3 whole years without a rejection episode, even when everything else was going wrong, so I see that a victory, and hope that it means my kidney and pancreas plan to stick around for a long, long time.   
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« Reply #272 on: August 27, 2012, 09:49:20 AM »
Definitely a victory.


Awesome
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
okarol
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« Reply #273 on: August 27, 2012, 11:43:26 AM »
You've come a long way JB!  :yahoo;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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