having a hard time walking

[kswatson]

I have been starting to having a hard time walking now that i am on dialysis. I seams to have gradually come on after starting dialysis 2 months ago. It started with my toes being numb now it seams that my leg muscles stay tight all the time. IM not cramping the muscles just stay tight to where i can hardly walk. I don't have any fluid removed because i stay a the same wight. being that I'm only in my late 20s its starting to ware on me with it being hard for me to work. i was just looking to see if any one has had the same type of problem.

[Deanne]

I'm not on dialysis yet (GFR 11), but I've been wondering about my walking abilities for a while. I still walk a lot. I walk about 3.5 miles every Saturday/Sunday, but I feel awkward walking sometimes. I'm not comfortable on stairs. Kind of off balance or something. Like my legs and feet are numb, but they aren't numb to the touch. It feels like I need to be very careful on stairs or I'll fall.

My handwriting is very bad now, too. My fine motor skills don't seem as good anymore. I thought it was mostly psychological, but maybe not. I wonder if this is all the start of what you're experiencing.

[Wat76]

Hi, there,

I was just telling my daughter the same thing, I have been on D for a month and my legs feel the same way.  I keep telling people that I have the D walk.  I can hardly walk from my building to my car, it is getting harder instead of better.  Lets hang in there, our bodies probably need time to adjust to the major change. 

I still work full time, it is a chore on D days, but I just found out if i drink a cup of coffee after D, i Perk right up and don't have that slow stroll.  Hang in there.

[Rain]

Keep in mind muscle wasting happens fast on dialysis.  When I first started a 30 mins walk a day helped keep it in check.  I use to get exhausted a my legs would burn after just a 10 min walk. 

[happyonhemo]

After many yrs of dialysis I'm now in a wheelchair and becoming to be a quadriplegic. 6 months ago I was still walking around taking care of myself for the most part.It started with numbness on the bottom of my feet and then feeling as though I was walking on a waterbed and then no balance at all.My hands had already lost most feeling–a process that came slowly over a couple of yrs. That made it hard to use a walker so here I am and now it seems to be getting worse almost daily. My doc says its beta2m amyloidosis. I've done lots of reading on it but now I'm looking for someone to correspond with who has gone through this themselves or with someone else or even knows a lot about it. Also I would love to answer any questions from anyone who's just curious.

[ninch44]

After approx. 3 months of hemo, and 3 years of P.D., I began to feel a bit of numbness in my right foot in April 2011. typically of most guys, I thought it would go away on it's own. By the end of summer, I could hardly walk at all. The numbness and burning had spread up to my knees in both legs, and both of my hands. I was sent to the University of Iowa hospital where I was diagnosed with C.I.D.P. The neurologist [Dr. Swenson] told me she believes this can be related to Dialysis, especially P.D. I've been through 2 rounds of IVIG treatments, 2 rounds of steroid infusions, and about 8 months of physical therapy. The numbness in my right hand is close to disappearing, and I am SLOWLY getting some feeling back in my legs and feet. Therapy has helped me deal with balance, and i can now get around without my cane. I still wear my leg braces though. I guess what I'm trying to say is fight this as hard as you can. As dialysis patients, we all know how to fight. I am determined to beat this. I have a 10 month old grandson that I plan on taking to ball games, and going to the park and running and running with. O.K. I've rambled a bit long. bottom line............DON'T GIVE UP!!