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Author Topic: Hello My Name Is :  (Read 2986 times)
ctorrez
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« on: November 16, 2012, 03:17:05 PM »

Well I just got the bad news from the doctor three days ago, and here I am. A quick story to bring you all up to date.

   When I was 18 I decided I wanted to serve my country, but when it came time to pass the physical I was told I may have kidney problems and I was not allowed in. Being young and feeling like life was a long term thing I failed to get checked out. Fast fw to 2007 When I was trying to join the union for a job and was once again reminded of my "problem" Long story short on that story, I was denied the job even though they took dues from my check. I was told I could not be given medical clearance. In 2008 I had been working in sales long enough to get insurance so I took the steps to figure out what was going on.
The doctor did some tests and eventually a biopsy. I was told that I had chronic and acute kidney disease but that I would be fine until I was around 60 yrs old. So I kind of took it with a grain of salt. He prescribed predisone to me, but I didn't fully understand what I was taking. I hated the side effects and stopped taking it. Last I recall they where going to call to set up a follow up appointment, but I never received a call. 
   Fast forward to last week I notice blood in my urine. It last for a few days so I scheduled and appointment with a nephrologist. After taking blood and urine samples I was told that I am at stage 5 kidney failure ??? and he estimated  I have 4 months till dialysis is needed.

Needless to say My world kind of went into a tail spin. I am trying to hang in there till some more tests come back, but my fiance is taking it bad. I guess I will have to hope for the best.
 :pray;
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cassandra
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When all else fails run in circles, shout loudly

« Reply #1 on: November 17, 2012, 02:15:47 PM »

Welcome to the site Chris. I hope you have a lot longer than 4 months till D, but glad to hear they start sorting your fistula out.

                        :welcomesign;


take care Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Mr Pink
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« Reply #2 on: November 17, 2012, 09:08:15 PM »

Welcome. Simnilar to most of the rest of us, life has thrown you a curveball, which you obviously need to deal with. Just remember that dialysis isn't the end of the world. The downhill run kind of sucks, but once the big D starts, you'll be feeling a lot better. Good luck.
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Ricksters
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« Reply #3 on: November 18, 2012, 09:14:30 AM »

Welcome to the group, Chris! I agree, it is a shock to the system to find out you have ckd/esrd and need dialysis!  I hope that you end up with longer than 4 monthsto get used to the idea.  I've been on dialysis a little over a year....it is not the endof the world as I thought it would be!

Ricki
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Poppylicious
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« Reply #4 on: November 18, 2012, 10:37:12 AM »

 :welcomesign;
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
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