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Author Topic: CCPD and Tent Camping?  (Read 5297 times)
Wildrose
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« on: July 23, 2012, 12:13:48 AM »
We might be going camping this weekend and what I am wondering is if its safe to hook my cycler up to an extension coord attached to an electrical outlet and do dialysis while sleeping? I know people have done hemo/nxstage while camping and that manual exchanges would be possible while tent camping... but what about the cycler? I just want to make sure it would be safe and I can't find any info. I think my nurse at the PD clinic told me once it couldn't be done, but... I don't see why not.


Rose
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1995 - Diagnosed with 'some kind' of kidney disease during first pregnancy at 16 yrs old due to excess protein in urine
1998 - Biopsy diagnosis of IGA Nephropathy at age 18
2007 - Successful second pregnancy, creatnine of 1.8 something
2009 - Successful third pregnancy creatnine of 2 something
2009-November of 2011 - Somehow went from Creatnine of 2 something to 5.43
November 2011 - Diagnosed with End Stage Renal Disease
3/28/12 - Started Peritoneal Dialysis
5/21/12 - Ended up in hospital for 5 days with PD fluid leaking through hole in diaphragm to right lung
5/25/12 - IJ catheter placed, 5/26/12 - First in center hemo treatment
6/15/12 - Back on PD for three weeks and hemo at same time, 7/7/12 - PD fluid leaked again, off PD and still on hemo, 7/15/12 - on PD again and hemo
7/23/12 - chest xray shows fluid leak again, off PD for one month with possible thoracic surgery in future to fix hole in diaphragm. 5.70 creatnine
8/7/12 - 24 hr urine test shows improved kidney function. 3.47 creatnine - Dr reduced hemodialysis from 3x's to 2xs a week.
Wildrose
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« Reply #1 on: July 23, 2012, 12:44:18 AM »
I put this in the wrong section, hope a mod can move it for me. Sorry!
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1995 - Diagnosed with 'some kind' of kidney disease during first pregnancy at 16 yrs old due to excess protein in urine
1998 - Biopsy diagnosis of IGA Nephropathy at age 18
2007 - Successful second pregnancy, creatnine of 1.8 something
2009 - Successful third pregnancy creatnine of 2 something
2009-November of 2011 - Somehow went from Creatnine of 2 something to 5.43
November 2011 - Diagnosed with End Stage Renal Disease
3/28/12 - Started Peritoneal Dialysis
5/21/12 - Ended up in hospital for 5 days with PD fluid leaking through hole in diaphragm to right lung
5/25/12 - IJ catheter placed, 5/26/12 - First in center hemo treatment
6/15/12 - Back on PD for three weeks and hemo at same time, 7/7/12 - PD fluid leaked again, off PD and still on hemo, 7/15/12 - on PD again and hemo
7/23/12 - chest xray shows fluid leak again, off PD for one month with possible thoracic surgery in future to fix hole in diaphragm. 5.70 creatnine
8/7/12 - 24 hr urine test shows improved kidney function. 3.47 creatnine - Dr reduced hemodialysis from 3x's to 2xs a week.
JLM
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« Reply #2 on: July 23, 2012, 03:41:02 AM »
It's not in the wrong section.  I have seen machines hooked up to extension cords at my clinic.  Mayhaps if you use a heavy duty cord you would be alright.  That's just my opinion.
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amanda100wilson
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« Reply #3 on: July 23, 2012, 05:59:56 AM »
Yes,you would need to have an extension cord with the right power rating.
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ESRD 22 years
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  -Transplant 10 years
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Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

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wbdoug
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« Reply #4 on: July 23, 2012, 11:58:10 AM »
I use an ac extention cord on my machine all the time.

Bill
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8/3/2011 PD Cath installed
Life keeps interfering with my plans
jeannea
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« Reply #5 on: July 23, 2012, 12:07:00 PM »
I used an extension cord on mine but I bought the heavy duty kind not the regular thin ones.
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Joe
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« Reply #6 on: July 23, 2012, 07:19:34 PM »
With a heavy duty extension cord, you should be fine. Will you be connecting to regulated power or are you connecting to a generator? If a generator, you will want to have a surge suppressor between the generator and your cycler to smooth out the power surges you see with a generator.

Have Fun!
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Wildrose
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« Reply #7 on: July 24, 2012, 06:25:04 AM »
Thanks all, good to know it would work with just a good extension coord and yes I was planning on hooking up to regular electricity not to a generator.
Although my Dr just removed me off PD again yesterday as my latest xray shows fluid under the right lung again, so... I won't be doing PD while camping, but I do have hemo scheduled saturday which I can't do since I'll be gone... so now I have to figure that out, lol.
Logged
1995 - Diagnosed with 'some kind' of kidney disease during first pregnancy at 16 yrs old due to excess protein in urine
1998 - Biopsy diagnosis of IGA Nephropathy at age 18
2007 - Successful second pregnancy, creatnine of 1.8 something
2009 - Successful third pregnancy creatnine of 2 something
2009-November of 2011 - Somehow went from Creatnine of 2 something to 5.43
November 2011 - Diagnosed with End Stage Renal Disease
3/28/12 - Started Peritoneal Dialysis
5/21/12 - Ended up in hospital for 5 days with PD fluid leaking through hole in diaphragm to right lung
5/25/12 - IJ catheter placed, 5/26/12 - First in center hemo treatment
6/15/12 - Back on PD for three weeks and hemo at same time, 7/7/12 - PD fluid leaked again, off PD and still on hemo, 7/15/12 - on PD again and hemo
7/23/12 - chest xray shows fluid leak again, off PD for one month with possible thoracic surgery in future to fix hole in diaphragm. 5.70 creatnine
8/7/12 - 24 hr urine test shows improved kidney function. 3.47 creatnine - Dr reduced hemodialysis from 3x's to 2xs a week.
KAF454
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« Reply #8 on: July 24, 2012, 06:40:43 PM »
When you do go back on pd and want to go camping get a heavy duty appliance cord, suitable for a refrigerator or freezer. But you can only put on about a 10 footer without risking damage to your cycler.
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PD catheter inserted 11/2011
CCPD begun 12/2011
Activated on transplant list 01/27/2012
PD efficacy tanked 12/2012. CVC inserted for hemo.
Elected to stay on hemo 01/2013. (10.5 hours per week instead of 8 hours every night? No contest!)

Today I will not worry unless the animals start lining up 2 by 2.
rosebudd85
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« Reply #9 on: December 03, 2012, 12:39:27 PM »
I use a heavy duty extenstion cord all summer everyweekend when we are camping and works fine. :clap;
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