wvgirl
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« on: May 31, 2012, 03:49:47 PM » |
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Just started dialysis on May 1st and got a call about 12 today from the Transplant center.  I told them I am feeling great and no infections. Waiting for them to call me back and let me know if the crossmatch is good and if I get it. I am so so scared, happy, nervous, sad, and worried. Sitting here watching the telephone. |
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Jeanne
1988- Chronic Kidney Disease
2005- Biopsy showed IGM Nephropathy
10/2011- Fistula surgery, transplant evaluation-gfr 13
02/2012- On transplant list
05/2012- Started in center dialysis with gfr 9
2 calls for a transplant but still waiting...
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boswife
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« Reply #1 on: May 31, 2012, 04:15:48 PM » |
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oh boy oh boy oh boy..... anything yet?  ?? not that much times passed,, but i can feel your anticipation,... soon as ya hear, try to let us know so we can share the excitement.. hopen for ya |
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
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WishIKnew
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« Reply #2 on: May 31, 2012, 04:41:13 PM » |
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willowtreewren
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« Reply #3 on: May 31, 2012, 04:54:19 PM » |
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011.  |
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Melissa19564
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« Reply #4 on: May 31, 2012, 05:31:26 PM » |
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 Hope you get the call soon!!!!!
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wvgirl
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« Reply #5 on: May 31, 2012, 05:33:09 PM » |
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Still waiting. The call came 6 hours ago. How long is it normally between calls? I just did some mopping to get rid of my nervous energy.
After writing the above I finally got a call. They still don't know. They haven't taken the organs yet from the donor. She said for me to not eat or drink after midnight and she is calling the dialysis center to see if they can get me in any earlier than my appt. at 2:30 tomorrow so I can get that done. She is going to call me in the morning and let me know more. So much for sleeping tonight!!
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Jeanne
1988- Chronic Kidney Disease
2005- Biopsy showed IGM Nephropathy
10/2011- Fistula surgery, transplant evaluation-gfr 13
02/2012- On transplant list
05/2012- Started in center dialysis with gfr 9
2 calls for a transplant but still waiting...
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adairpete
Full Member
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Posts: 109
Me and Karl
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« Reply #6 on: May 31, 2012, 06:35:51 PM » |
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 for getting the call!  for having to wait! Hang in there and we're all crossing our fingers for you!
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Diagnosis: distal renal tubular acidosis with medullary sponge kidney
3/4/2010 started hemo via sub-clavian catheter
6/15/2010 listed for kidney (on hold)
8/2/2010 started CAPD
3/20/12 on active wait list for kidney
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jbeany
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« Reply #7 on: May 31, 2012, 07:49:30 PM » |
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I remember that wait! They didn't call me back for something like 11 hours. Hang in there!
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"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality.  |
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MooseMom
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« Reply #8 on: May 31, 2012, 08:02:17 PM » |
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Oh wow!!! A call already! That's tremendous! I can't wait to hear some good news from you!
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"Eggs are so inadequate, don't you think? I mean, they ought to be able to become anything, but instead you always get a chicken. Or a duck. Or whatever they're programmed to be. You never get anything interesting, like regret, or the middle of last week."
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okarol
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« Reply #9 on: May 31, 2012, 08:03:48 PM » |
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 I hope it happens - if it's meant to be your miracle - good luck!
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Mr. B 123
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« Reply #10 on: May 31, 2012, 10:44:01 PM » |
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Good luck!!!! Keep us posted.
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Honor God, work hard, and keep show'in up.
Philippians 4:4-7
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Darthvadar
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« Reply #11 on: June 01, 2012, 05:49:37 AM » |
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Best of luck....
Darth....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
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boswife
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« Reply #12 on: June 01, 2012, 08:58:07 AM » |
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
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wvgirl
Jr. Member
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« Reply #13 on: June 01, 2012, 02:20:22 PM » |
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It has now been 29 hours since the first call. Since then I have gotten 2 more calls. Last call said possibly late tonight. Still waiting....  |
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Jeanne
1988- Chronic Kidney Disease
2005- Biopsy showed IGM Nephropathy
10/2011- Fistula surgery, transplant evaluation-gfr 13
02/2012- On transplant list
05/2012- Started in center dialysis with gfr 9
2 calls for a transplant but still waiting...
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WishIKnew
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« Reply #14 on: June 01, 2012, 02:30:19 PM » |
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lainiepop
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« Reply #15 on: June 01, 2012, 04:08:50 PM » |
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tons of Luck thinking of you!x
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
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wvgirl
Jr. Member
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Posts: 61
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« Reply #16 on: June 01, 2012, 08:05:29 PM » |
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It has now been 33 hours and 5 phone calls. The kidneys have been romoved from the donor  and so far everything is good. A few more tests and the next phone call should say if I need to head for Charleston. Thanks everyone for your thoughts and prayers. |
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Jeanne
1988- Chronic Kidney Disease
2005- Biopsy showed IGM Nephropathy
10/2011- Fistula surgery, transplant evaluation-gfr 13
02/2012- On transplant list
05/2012- Started in center dialysis with gfr 9
2 calls for a transplant but still waiting...
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Sue
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« Reply #17 on: June 01, 2012, 09:19:43 PM » |
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God Bless the donor, and good luck to you |
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Life is not measured by the number of breaths we take, but by the moments that take our breath away.
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boswife
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« Reply #18 on: June 01, 2012, 09:34:21 PM » |
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prayers and more prayers.... anxiously waiting to hear more...
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
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MaryJoe
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« Reply #19 on: June 02, 2012, 03:38:20 AM » |
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Praying this is your miracle and that all goes well!
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
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wvgirl
Jr. Member
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Posts: 61
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« Reply #20 on: June 06, 2012, 05:27:09 PM » |
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Sorry I didn't write for a while. On Saturday morning they called me to tell me the kidney was not functioning properly. I was sad about that, but happy that one of the kidneys was transplanted that morning. I am doing fine with dialysis, I like my center and staff and the patients, who on my first treatment day were so scary and sick looking, I now joke with and have fun. Not gonna give up hope because I know my kidney will come but for now I am good. Thanks everyone for your thoughts and prayers. |
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Jeanne
1988- Chronic Kidney Disease
2005- Biopsy showed IGM Nephropathy
10/2011- Fistula surgery, transplant evaluation-gfr 13
02/2012- On transplant list
05/2012- Started in center dialysis with gfr 9
2 calls for a transplant but still waiting...
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jeannea
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« Reply #21 on: June 07, 2012, 07:47:52 AM » |
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Sorry that didn't work out. Keep waiting for that good match!
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