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Author Topic: I've got my Kidney !!  (Read 4203 times)
lainiepop
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« on: May 30, 2012, 01:41:42 PM »
 :yahoo;

Well its now 9. 30pm in UK & got my kidney from dad at around 3Pm yesterday. I think it started working right away.

so The figures so far are: Yesterday before the OP my creatinine was 500, got my Kidney at 3pm yesterday & this morn 6am bloods showed at 299! and at 6pm this eve level was 194! Has gone from 9% function to 16% to about 26 ! surgeon was very happy wIth it so far & bladder is draining fine but still need to see what happens when I stand up as my bladder is in different place to normal so its just wait & see. Hopefully kidney's on track now

I had a real adrenalin rush & was a bit hyper & existed but that's crashing now, just worried bout bladder more. am just shattered & scared & am desperate to see dad, maybe tomorrow, he's amazing best dad ever. he sayS elena makes him losing a Kidrey worthwhile & she says grandad to him now :)

Right need some sleep as was Woken every 20 min s last night by beepirg or something. will keep you updated, marie x
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
lainiepop
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« Reply #1 on: May 30, 2012, 01:47:50 PM »
oh trqnsplant nurse said she asked dad if he felt like he'd been his by a bus & he said yes, a double decker bus! love him & am so proud of him, but they told me he's just worried bout how I'm doing aww & was chuffed his kidneys working so quick. me too  :2thumbsup;
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
Mr. B 123
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« Reply #2 on: May 30, 2012, 01:56:06 PM »
Hope everything works out well.  Hang in there!
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Honor God, work hard, and keep show'in up.
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willowtreewren
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My two beautifull granddaughters

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« Reply #3 on: May 30, 2012, 02:28:31 PM »
 :2thumbsup;

Keep the good news coming!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
jeannea
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« Reply #4 on: May 30, 2012, 03:27:16 PM »
Sounds great! Just take everything one day at a time. The people on your team will help you. And no one gets good sleep in the hospital. I was happy to go home.
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Rerun
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Going through life tied to a chair!
« Reply #5 on: May 30, 2012, 03:49:51 PM »
Best wishes to all of you and hope you are home soon.

     :cheer:
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smcd23
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The patient, the baby and the donor - October 2010

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« Reply #6 on: May 30, 2012, 04:56:07 PM »
Yay! I will keep my fingers crossed that everything continues to go well for you both!  :yahoo;
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Caregiver to Husband with ESRD.

1995 - Diagnosed with vesicoureteral reflux and had surgery to repair at age 11. Post surgery left side still had Stage I VUR, right side was okay. Both sides were underdeveloped.
2005 - Discovered renal function was declining, causing HBP. Regular monitoring began.

March 2008 - Started transplant evaluation for preemptive transplant due to declining function.

September 16, 2008 - Transplanted with my kidney.
September 18, 2008 - Kidney was removed due to thrombosis in the vessels in and leading to the kidney.

October 2008 - Listed in Region I

May 2009 - Started in Center Hemo
January 2010 - Started CCPD on Liberty Cycler

June 15, 2012 - Kidney transplant from a 43 year old deceased donor
June 22, 2012 - Major acute rejection episode and hospitalization began
June 27, 2012 - Nephrectomy to remove kidney after complete HLA antibody rejection. Possibly not eligible for another transplant, ever again.

Now what?
mcclane
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« Reply #7 on: May 30, 2012, 07:00:35 PM »
congrats, happy to hear !  :bow;
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Sue
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« Reply #8 on: May 30, 2012, 07:47:26 PM »
Good news !! Best wishes to you and your dad :)
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Life is not measured by the number of breaths we take, but by the moments that take our breath away.
boswife
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us and fam easter 2013
« Reply #9 on: May 30, 2012, 09:35:25 PM »
wow,,, super dad :)  and lucky you!!  so happy for you and cant wait to hear more...   :bandance; :bandance; :bandance; :bandance;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
galvo
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« Reply #10 on: May 30, 2012, 09:45:40 PM »
Ab Fab!!!!!!
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Galvo
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« Reply #11 on: May 30, 2012, 09:47:22 PM »
Congrats and hugs from all of us here on IHD!

 :grouphug;
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Xbox GT: ShonumShogun

CKD due to FSGS 1999
Drop from Stage 4 to Stage 2 ESRD 2000
ESRD 2005
Started Dialysis September 13, 2006
Short Daily Home Hemo March 2009
Back to In-Center Hemo August 2009 (Too Many Hours)
Nocturnal Home Hemo with Remote Viewers  May 2010
Received Transplant March 1, 2012
Transplant Failed in October 2017
Nocturnal Home Hemo with Remote Viewers December 2017
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #12 on: May 31, 2012, 12:44:33 AM »
 :bandance; :bandance; :bandance; :bandance; :bandance;
Congratulations!
Big HUG for Dad too!  :bow;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Poppylicious
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« Reply #13 on: May 31, 2012, 01:55:20 AM »
 :yahoo;

Brilliant!  You must all be so happy ... hope you get to see your dad today, bless him!
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
lainiepop
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« Reply #14 on: May 31, 2012, 04:43:32 AM »
thanks guys! Latest update, 6am bloods this morn showed creatinine drop to 117!  the lowest I ever remember it being is around 12O  or 130 when I. Was about 13. they hope it will continue to fall I im hoping to see dad this afternoon. so proud of him & his Super kidney lol! x
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
brenda seal
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« Reply #15 on: May 31, 2012, 06:51:01 AM »
What wonderful news !
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lainiepop
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« Reply #16 on: May 31, 2012, 03:25:13 PM »
just got my Latest blood results, Creatinine 86, gfr 7O, lowest I've ever had, can't wait to tell dad. I'm half Laughing half crying & it hurts but I don't care !! Just hope it stays this way!x
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
Poppylicious
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« Reply #17 on: June 01, 2012, 01:09:17 PM »
Will you be home in time to wave your flag and enjoy the Jubilee celebrations?!  So pleased about the creatinine!

*huggles* for you and your dad.

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
lainiepop
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« Reply #18 on: June 01, 2012, 04:11:06 PM »
thanks poppy! had emotional reunion with dad yesterday even docs Were cying they said they never seen a Kidney work so well so fast. they did say before 0P dad had super function for his age! he's gone home, i'm very sore & pretty swollen & extra complicated cos of my different bladder structure but hopefully we're on track!
I haven't seen ' myself but am told I look good & about 18 hehe! x
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
SugarBear
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« Reply #19 on: June 01, 2012, 07:05:35 PM »
Thanks for the update, I'm happy it is all going well for the most part.    :clap;
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Xbox GT: ShonumShogun

CKD due to FSGS 1999
Drop from Stage 4 to Stage 2 ESRD 2000
ESRD 2005
Started Dialysis September 13, 2006
Short Daily Home Hemo March 2009
Back to In-Center Hemo August 2009 (Too Many Hours)
Nocturnal Home Hemo with Remote Viewers  May 2010
Received Transplant March 1, 2012
Transplant Failed in October 2017
Nocturnal Home Hemo with Remote Viewers December 2017
lainiepop
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« Reply #20 on: June 06, 2012, 12:49:11 PM »
Hi everyone am 8 days post OP & home with mum dad hubby & Kids. Got to go back for bloods etc & to have my catheter & stent removed by my urologi st cos of my unusual bladder structure.
left on a high with last 2 days creatinine being 79 gfr 78! I know it will fluctuate up but just so amazed it even reached that sort of figure. looking forward to getting some sleep tonight , there was a right snorer on my ward Lol! x
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
jeannea
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Posts: 1955
« Reply #21 on: June 07, 2012, 07:49:59 AM »
There's nothing like sleeping at home! Those darn hospitals. They schedule so much for the middle of the night. Good to hear you're doing well.
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WishIKnew
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Alports, dialysis '07-'12,cancer'11,transplant '12
« Reply #22 on: June 07, 2012, 09:09:46 AM »
Welcome home!  :cheer:

 :flower; :flower; :flower;
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