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Author Topic: We met big777bill and Patty!  (Read 2968 times)
Desert Dancer
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« on: May 26, 2012, 12:58:25 PM »
Ten days of vacation went by in a blur and we are very unhappy to be back in the desert after reveling in all the GREEN back home. If only there were work out there we'd move back in a flash.

Our vacation had a big highlight, too: we got to meet big777bill and his wife Patty! We met last Friday at a brunch buffet and really had a blast. We sat around talking for two hours while the waitress gave us the stinkeye for sitting there so long.

What wonderful people they are! They have been through so much in their lives and yet they are still the warmest, kindest, most down-to-earth people we've ever met. Even Andy - who is skeptical at best at meeting 'online' people - commented several times afterwards that he had a great time and he was so glad we got together. We are already looking forward to meeting up with them again the next time we're out there. Their company was the best, the conversation flowed as though we were all old friends and we were sorry to have to part with them so soon. If anyone's ever in the South Jersey area, be sure you look them up; I promise you'll come away feeling like you've made new friends with really good people.

I have a few pictures we took together, but I'll wait for Bill's OK before I post them.
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
cassandra
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When all else fails run in circles, shout loudly
« Reply #1 on: May 26, 2012, 03:50:33 PM »
really nice to read about your meeting,

love Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
big777bill
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« Reply #2 on: May 26, 2012, 05:26:48 PM »
 I was, like Andy, somewhat skeptical of meeting someone from online. I'm glad that we went ahead and did it though. We had so much in common it was like we had known them for years. I'm not just talking about doing home hemo. Many of our life experiences were similar. We hadn't done anything in ages such as going out to eat or a movie. It felt good to get out and talk with good people again. I believe we made lifelong friends :cuddle;. I don't think the waitress will be looking forward to seeing all of is walk through the door of their restaurant any time soon. If DD didn't have to get to her dialysis session we probably would have been there another hour or longer.
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liver transplant 3/22/2005
CKD 2008
 
fistula 11/17/2011
 catheter 2/07/2012
 started  hemo-dialysis in center 2/07/2012
 fistula transposition 3/08/2012
 NxStage at home  3/29/2012
 Using fistula at home 6/25/2012
 Using new NxStage S High-Flow cycler 3/04/2014
lmunchkin
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"There Is No Place Like Home!"
« Reply #3 on: May 26, 2012, 07:23:15 PM »
Man, I wish we could have been there too!  It is so wonderful to hear of all these meetings.  IHD is really a fantastic place, with good and gracious folks! So glad you guys got together!

God Bless,
lmunchkin :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Rerun
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Going through life tied to a chair!
« Reply #4 on: May 26, 2012, 07:24:25 PM »
Big Bill?  Can we see pictures?

                 :yahoo;
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Chris
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WWW
« Reply #5 on: May 26, 2012, 07:58:42 PM »
I agree, it is fun meeting other members
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Desert Dancer
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« Reply #6 on: May 26, 2012, 09:08:57 PM »
Here are the pics I got:
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
Jean
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« Reply #7 on: May 27, 2012, 12:50:08 AM »
It is just great when fellow IHD'ers get to meet in person. Glad you all did it.
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One day at a time, thats all I can do.
willowtreewren
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My two beautifull granddaughters

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« Reply #8 on: May 27, 2012, 06:05:15 AM »
I love the pictures!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
lmunchkin
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"There Is No Place Like Home!"
« Reply #9 on: May 27, 2012, 04:08:39 PM »
Quote from: willowtreewren on May 27, 2012, 06:05:15 AM
I love the pictures!

Aleta

Oh man, GREAT pictures, I agree.  I had a pretty good idea that Bill looked like his original Intro Pict, but how awesome to put faces to the names!
Love it!!!!

lmunchkin
Logged
11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
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