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Author Topic: My Doctor is Referring me to The University of Washington for transplant..  (Read 1846 times)
Krisna
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« on: April 11, 2012, 08:11:42 PM »

He said they'll probably want to start from scratch, meaning stress tests and everything!  But since I've been working out somewhat regularly that shouldn't be a problem for me!

It's gonna be a while before I hear from them!  Then a longer while before I can even get in!

My doctor isn't giving more than 5 to 10 yrs if I stay on dialysis.  So, he wants me transplanted to give me the best chance at a long life!

I told him that I've been doing this a log time and have lived longer than anyone ever thought I would.  So, I'm prepared to accept whatever happens.  Meaning if something goes wrong and I die!  My family and I know it's a risk!  We are all prepared for it!

Thanks for all the support!  The UW is the only transplant hospital in Seattle I have not been in so it will be a completely new experience for me!   :grouphug;
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Nov. 1979 - Diagnosed with glomerulonephritis of unknown origin by Dr. Robert
                  Hickman
Dec. 1979 - Diagnosed with Viral Pneumonia
Late Dec. 1979 - Emergency surgery to place a Scribner Shunt in left arm for dialysis
Jan. 1980 - Start hemodialysis until recovered from viral pneumonia
Feb. 27, 1980 - Receive 5 antigen living related transplant from father
Mar. 3, 1987 - PTH removed and part of one placed in left arm.  Fistula also placed in right arm.
Sept. 1988 - Start hemodialysis
Feb. 4, 1989 - Receive 6 antigen perfect match cadaveric transplant
Jan. 1994 - Return to hemodialysis
Oct. 18, 1996 - Receive 6 antigen perfect match cadaveric transplant
Nov. 22, 1996 - Emergency surgery to repair aneurysm to artery in kidney
Dec. 20, 1996 - Emergency surgery to repair aneurysm.  Kidney removed due to infection which has spread down right leg to abt mid thigh.
Apr. 1997 - Arterial bypass surgery to restore arterial blood flow to right leg
July 29, 1998 - Receive 6 antigen perfect match cadaveric transplant
Sept. 6, 2002 - Return to hemodialysis
Dec. 7, 2002 Sm. intestine ruptures while home alone. Still conscious upon arrival at hospital.
Dec. 8. 2002 - Surgery to repair ruptured bowel.  The prognosis is not good.  Surgeon tells family to prepare for the worse.  Spend a week in a coma and 3 months in hospital.  Takes abt a year and a half to completely recover.
KarenInWA
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« Reply #1 on: April 12, 2012, 10:38:04 PM »

Hi Krisna,

I am a recent transplant recipient at the UWMC, my transplant was done on 11/23/11. I just spent a  few days there due to a bullyish hemotoma that decided to squish against my kidney, Lynette, and keep her from doing her job. I had to have emergency surgery to have that removed, and I will now be going back frequently to get blood draws. Lynette is pushing urine, but the creatinine is scary high. I think I will be saying some prayers and thinking positive thoughts to get that train to turn around!

I do have to say, I like the drs and nurses at UWMC. They are the only TC I have known, so I may be biased. But, whenever there is a problem, they are on top of it, each and everytime. My hemotoma was most likely caused by a routine biopsy that went totally text book. It then took an abrupt turn to the worse on Saturday.  Definenetly took me by suprise.

Good luck with your upcoming appointment and feel free to PM me if you have any questions, or ask them here~

KarenInWA
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1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #2 on: April 12, 2012, 11:00:31 PM »

You've been through so much, it's really amazing how you've come through it all.
i hope the new team can help you move toward another transplant.
Good luck!
 :2thumbsup;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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