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Author Topic: I may have Pancreatic Cancer  (Read 11233 times)
mikey07840
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Her royal highness Queen Ruth on her throne, RIP
« on: March 16, 2012, 11:23:36 PM »
I had an ERCP and Endoscopic Ultrasound today, the second set of tests in a few months. My CAT scans show some kind of tumor on the pancreas. I am probably going to need a Whipple surgery where they remove the head of the pancreas, part of the small intestine, the gall bladder, part of the stomach, and lymph nodes near the head of the pancreas. If I need the surgery, I am going to Johns Hopkins for it because they are the best for this kind of procedure.

For the record, I am sick and tired of cancer.

Cancer sucks.
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
cassandra
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When all else fails run in circles, shout loudly
« Reply #1 on: March 17, 2012, 05:39:11 AM »
Oh I'm so sorry to hear that Mikey, will ask my dad for prayers for you. Keep strong etc. Yes it sucks,

love Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
jeannea
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« Reply #2 on: March 17, 2012, 10:37:20 AM »
I hope they're wrong. That is so tough. Hang in there. Be kind to yourself.
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Sluff
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« Reply #3 on: March 17, 2012, 01:23:48 PM »
Sorry to hear that, hopefully they caught it early and can treat it.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #4 on: March 17, 2012, 06:04:37 PM »
 :( Mikey, I am sorry to hear this. I hope you can get the best care possible. Sending you {{{HUGS!}}}  :cuddle; :cuddle; :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
AguynamedKim
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« Reply #5 on: March 17, 2012, 10:59:10 PM »
Mikey, if this ends up being cancer, I hope you are able to act swiftly to fight it.  I wish you all the best and hope to hear about your recovery soon.
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Pre-dialysis - Intro: http://ihatedialysis.com/forum/index.php?topic=20344.0
mikey07840
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Her royal highness Queen Ruth on her throne, RIP
« Reply #6 on: March 26, 2012, 03:51:49 PM »
The GI specialist I am seeing has referred me to the surgeon. He believes that based on what he saw in the recent testing and my history, that I the masses seen are most likely cancer. I have sent my medical records to the surgeon and are waiting for a callback to see the surgeon.
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
Chris
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« Reply #7 on: March 26, 2012, 05:27:19 PM »
Sorry to hear mikey. Hope callback comes soon.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #8 on: March 26, 2012, 11:26:17 PM »
Crap.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MomoMcSleepy
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My son Roddy McSleepy at 6 months! sry pic sidewz
« Reply #9 on: April 04, 2012, 09:40:18 AM »
Good luck in your surgery and treatment, it is a tough break, but you have lots of people praying for you.  So sorry that you have to go through this.  Take care!
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35 years old, first dx w/  chronic renal insufficiency at  28, pre-dialysis

born with persistent cloaca--have you heard of it?  Probably not, that's ok.

lots of surgeries, solitary left kidney (congenital)

chronic uti's/pyelonephritis

AV fistula May 2012
Kidney Transplant from my husband Jan. 16, 2013
Howard the Duck
billybags
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« Reply #10 on: April 07, 2012, 07:52:22 AM »
Mickey sending you lots of hugs. Life is a shit*er.
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lmunchkin
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"There Is No Place Like Home!"
« Reply #11 on: April 07, 2012, 06:58:18 PM »
What have they decided to do, Mickey?  We are all thinking of you!  Please keep us posted and let us know if there is anything we can do?

God Bless,
lmunchkin

 :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
mikey07840
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Her royal highness Queen Ruth on her throne, RIP
« Reply #12 on: April 16, 2012, 05:41:10 PM »
Just a quick update. I saw a surgeon in Philadelphia at Thomas Jefferson University Hospital last week. He has dedicated his life to the Whipple surgery. Because the growths on the pancreas have not been proven to be cancer, I need more tests. I need to confirm cancer or not cancer. So far, tests are inconclusive. I am meeting a second opinion doc next week.

So as of now, I know nothing.

I will keep you posted...
Logged
06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
lmunchkin
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*****
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Gender: Female
Posts: 2471

"There Is No Place Like Home!"
« Reply #13 on: April 16, 2012, 06:16:05 PM »
Thanks for the update, Mikey.  We are praying for you!

lmunchkin
 :kickstart;
Logged
11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
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