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Author Topic: Vitamin D  (Read 9413 times)
Cordelia
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Posts: 2012
« Reply #25 on: April 04, 2012, 04:22:43 AM »
I am happy to report no problems.

 :bandance;     :bandance;      :bandance;
Logged
Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
cassandra
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When all else fails run in circles, shout loudly
« Reply #26 on: April 05, 2012, 02:27:35 PM »
Glad to hear that, and now you also now the term 'bad blocker', (yes I made that one up myself)

good luck Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Whamo
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« Reply #27 on: April 05, 2012, 05:12:57 PM »
I try to get 15 minutes of sunshine, at least, a day, in addition to 2,000 IU per day in supplement form.  Sunshine on the skin is the best way to get Vitamin D, IMHO.
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Chris
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« Reply #28 on: April 05, 2012, 10:23:12 PM »
That's good no problems taking the Vitamin.
 
I have no funny comments at this time tho. :banghead;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Riverwhispering
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« Reply #29 on: April 06, 2012, 10:23:57 AM »
Whamo what's sunshine?
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It's only one step from the Jungle to the Zoo
Joe
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« Reply #30 on: April 06, 2012, 10:41:43 AM »
For you folks in Washington and Oregon, it is a foreign concept.
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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
Cordelia
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Posts: 2012
« Reply #31 on: April 06, 2012, 11:26:36 AM »
 :rofl;       :rofl;    yeah, what's sunshine? LOL I live in Canada, North of the U.S       :rofl;    We get 6 months of winter         :rofl;     Brrrr cold!         :rofl;
Logged
Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Cordelia
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Gender: Female
Posts: 2012
« Reply #32 on: April 06, 2012, 11:35:32 AM »
I forgot to ask: Whamo, where are you?       lol
Logged
Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Riverwhispering
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Posts: 257
« Reply #33 on: April 06, 2012, 03:21:25 PM »
I wonder when I move back to California if my Vitamin D will go up a bit with the sunshine.  It's supposed to snow tonight here in WA  :stressed;
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It's only one step from the Jungle to the Zoo
Cordelia
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Posts: 2012
« Reply #34 on: April 07, 2012, 08:15:17 AM »
Oh, my! Did you get snow?

I can imagine people get more Vitamin D with being in California.       
Logged
Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Riverwhispering
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Gender: Female
Posts: 257
« Reply #35 on: April 07, 2012, 09:14:02 AM »
It didn't snow yesterday but this morning it snowed for all of maybe 10 minutes and that bright light is in the sky.... thinking it might be that sunshine?  :clap; :clap;
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It's only one step from the Jungle to the Zoo
Chris
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Posts: 9219


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« Reply #36 on: April 07, 2012, 10:51:28 AM »
I was told it snowed in Portland, Oregon a couple days ago which is where I will be flying to Wednesday. I am not prepared for cold weather,  am having my good leather coat being repaired..
 
More sun not always good post tx, then you otta worry about cancer :stressed;  Catch 22, need sun, but will kill ya! :rofl;  Just cover up, wear a good hat, put some gooey sun block on and enjoy being outside, yeah right! :rofl;
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
cassandra
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Gender: Female
Posts: 4974


When all else fails run in circles, shout loudly
« Reply #37 on: April 07, 2012, 03:31:22 PM »
Oooo, In the good old days of my time of being 'post tx' I used to use a lovely smelling, deliciously lovely to apply factor 50 sunblock called Delial. That will cheer you up no end.

xx Cas
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Chris
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Gender: Male
Posts: 9219


WWW
« Reply #38 on: April 07, 2012, 06:29:31 PM »
Quote from: cassandra on April 07, 2012, 03:31:22 PM
Oooo, In the good old days of my time of being 'post tx' I used to use a lovely smelling, deliciously lovely to apply factor 50 sunblock called Delial. That will cheer you up no end.

xx Cas

Thought that said Denial before zooming in on text :oops;
I'm not much for fragrances to most of them burn my nose when I smell them (probably due to the mall entrance where there is always the overzealous perfume counters with the clerks spray happy)
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Jean
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Gender: Female
Posts: 6114
« Reply #39 on: April 08, 2012, 12:58:15 AM »
All of the comments made me want to look at my Vit. D levels and it is 33, which looks good to me, since 30 and up is normal, but on the other hand, I do have a friend who developed the bone problems while on PD and it got so bad she fell and broke her back!!! So, okay then, I will take the OTC and it better darned well work!!!
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One day at a time, thats all I can do.
Cordelia
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Posts: 2012
« Reply #40 on: April 08, 2012, 05:26:07 AM »
Well said, Jean. I am hoping and praying mine will help prevent bone disease too!          :bow;
Logged
Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
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