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Author Topic: New Member - 27 years old and on dialysis 1 year  (Read 3823 times)
innocence6
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« on: December 15, 2011, 07:27:07 AM »
Hi, I'm Jessi. I'm 27 years old and was started on hemo in January 2011. I switched over to peritoneal dialysis in August 2011. For some reason I'm having several difficulties with pd and my doctors are trying to work out the kinks. I will hopefully receive my supplemental insurance in the next few months and will finally be referred to the list!!!  :yahoo; And, God willing, all this will be over soon. If there is anyone else that had complications with pd, I would really appreciate any suggestions.
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Joosthaegeman
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« Reply #1 on: December 15, 2011, 09:44:28 AM »
Welcome.

I am also new here.
I viewed but never posted. :-)

I am going to switch to pd in the coming months...

greets
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bleija
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« Reply #2 on: December 15, 2011, 10:15:50 AM »
tell us a bit more about whats going on, i am on PD, and i have had so many different problems, but wouldnt trade it for anything other thn a transplant... but maybe we can give u some insight, but dont give up on PD until u've done everythign
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gkcoley
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« Reply #3 on: December 15, 2011, 11:06:50 AM »
i was on pd for about 4-5 years before switchign to hemo when i was little...what kind of issues you having? and welcome : :waving;
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There's No Smile Of An Angel Without The Wrath Of God
Joe
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« Reply #4 on: December 15, 2011, 12:08:21 PM »
 :welcomesign; innocence6! Glad you found us. Do tell, what issues are you having on PD. I'm betting we've all had issues and can provide some insight as you go forward on this journey.
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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
Poppylicious
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« Reply #5 on: December 15, 2011, 02:25:11 PM »
 :welcomesign; Jessi!

My Blokey had a terrible time with PD; he was desperate for it to work but after a couple of months he had to return to haemoD and get a (very much dreaded) fistula.  They never really did get to work out why his body didn't like PD - hope all your kinks get ironed out. 
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
lmunchkin
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"There Is No Place Like Home!"
« Reply #6 on: December 15, 2011, 04:08:07 PM »
Hi Jessi &   :welcomesign; . Hubby did PD for 5 yrs Until  infection took him off.  Now doing home hemo with NxStage.  It has been awhile, but Im sure some doing it at present can help you get things sorted out!  Wishing you good luck with all this.

Again welcome & God Bless,

lmunchkin
 :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
gothiclovemonkey
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« Reply #7 on: December 15, 2011, 10:31:39 PM »
 :welcomesign;
im 28, ive been on since 07!

Good luck with the PD, it didnt work for me but i loved it!
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
TX listed 8/1/11 inactive
LISTED ACTIVE! 11/14/11 !!!
Gerald Lively
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« Reply #8 on: December 15, 2011, 11:08:39 PM »
I was innocent until I got here.  And I am only 37 . . . uh . . . er. . . . small error, 73.
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Hodgkin's Lymphoma - 1993
Prostate Cancer - 1994
Gall Bladder - 1995
Prostate Cancer return - 2000
Radiated Prostate 
Cataract Surgery 2010
Hodgkin's Lymphoma return - 2011 - Chemo
Renal Failure - 2011
Renal Function returned after eight months of dialysis - 2012
Hodgkin's Lymphoma returned 2012 - Lifetime Chemo


Human hopes and human creeds
have their roots in human needs.

                          Eugene Fitch Ware
lou
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« Reply #9 on: December 16, 2011, 12:56:52 PM »
 :waving; big hello! what problems are you having? i was on pd for 6 months. i had quite a few problems to start but got them sorted after a while. what type of pd are you doing?

hope things get better soon and you can get on the list pronto!

x x
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fearless
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« Reply #10 on: December 16, 2011, 06:17:00 PM »
I did PD successfully for 8 years.  I'd be happy to help if I can!
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kporter85db
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« Reply #11 on: December 16, 2011, 07:56:50 PM »
Hi Jessi, there is a lot of PD experience on IHD and I bet everyone of us had to work out issues at one time or another. Tell us more information and certainly someone can help. Are you doing manual exchanges or are you using a cycler. If a cycler, what machine are you using. Are you using Baxter or Fresenius or another supplier(are there others)? The more specific you are with your problems and equipment the better we can help.

Oh yea,  :welcomesign; to IHD.
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May/2010 Sulfa based antibiotics killed my already weakened kidneys, almost
Feb/2011 PD catheter placed
July/2011 Started Peritoneal Dialysis
Nov/2013 Started NxStage 5 days/week

Ken
MomoMcSleepy
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My son Roddy McSleepy at 6 months! sry pic sidewz
« Reply #12 on: March 31, 2012, 06:28:32 PM »
Welcome!  Good luck with your insurance and getting on the list very soon!
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35 years old, first dx w/  chronic renal insufficiency at  28, pre-dialysis

born with persistent cloaca--have you heard of it?  Probably not, that's ok.

lots of surgeries, solitary left kidney (congenital)

chronic uti's/pyelonephritis

AV fistula May 2012
Kidney Transplant from my husband Jan. 16, 2013
Howard the Duck
willowtreewren
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My two beautifull granddaughters

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« Reply #13 on: March 31, 2012, 06:53:39 PM »
Welcome, innocence6!

 :welcomesign;

I've had no experience with PD as my husband did home hemo until his TX.

Best wishes on getting your difficulties all sorted out. There are plenty of folks to help here.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
conchman
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« Reply #14 on: April 02, 2012, 11:23:28 AM »
Welcome Jessi, you will find many people here to help you along your way.

 :welcomesign; :bandance; :welcomesign; :bandance;
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"If I had trouble the warranty said, breathe in, breathe out, move on"- J.Buffett

1991 diagnosed PKD (kidneys, liver)
2010 kidneys at 35% (left 2x size)
2011 kidneys at 30% (left 2x size)
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