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Author Topic: I need some advice about my access  (Read 2733 times)
pagandialysis
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« on: March 23, 2012, 09:23:31 PM »
Long story short my fistula is screwed. It will work for a little longer and that's all.

I have been given two options:

1) Get a graft that will last 2-3 years according to the doctor.
2) I have this massive return vein that is bigger then a fistula needs to be at the bottom of my arm. It would last for 5-8 years.

My issues are:

1) Although the graft sound nice it has to replaced often.
2) The vein would have to be moved in a two stage operation. It would take two months and I would have to go back to a catheter while they do it. It bothers me that they have to cut a line from my elbow to my shoulder and lift the vein on top.

Any input?
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Dining on Dialysis - www.diningondialysis.com
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Kidney Transplant (December 31, 2014),
Dialysis-Hemo (Started May 17, 2011. Ended December 29, 2014),
AV Fistula #2 (This one is a Basilic Transposition),
CKD (IgA Nephropathy) Stage 5,
Hypertension (Under Control)
Rerun
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« Reply #1 on: March 23, 2012, 10:23:45 PM »
I would go for the graft.  That gives thhem 2 years to think of something better!

                            :yahoo;       
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Traveller1947
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« Reply #2 on: March 24, 2012, 02:28:29 AM »
My graft has lasted seven years and counting...
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amanda100wilson
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« Reply #3 on: March 24, 2012, 12:16:22 PM »
I would go for the fistula.  I had my vein lifted.  It hurt like hell but it really isn't such a big deal.  They were trying to push me towards a graft but I was adament that I wanted a fistula.  Now it is working just fine.
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ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
lmunchkin
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« Reply #4 on: March 24, 2012, 04:40:35 PM »
What does your VS recommend?

lmunch
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
cassandra
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« Reply #5 on: March 24, 2012, 05:13:32 PM »
Mmm yup, difficult. I go with Immunchkin, and go with the VS.

Good luck, and love Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
pagandialysis
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« Reply #6 on: March 24, 2012, 05:21:58 PM »
My VS is full of BS. He has screwed up my arm every time he has touched it....yet the say he is the best in the area.

I have yet to consult with him as I just found all of this out. I am still debating if I should switch surgeons.
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Dining on Dialysis - www.diningondialysis.com
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Kidney Transplant (December 31, 2014),
Dialysis-Hemo (Started May 17, 2011. Ended December 29, 2014),
AV Fistula #2 (This one is a Basilic Transposition),
CKD (IgA Nephropathy) Stage 5,
Hypertension (Under Control)
cassandra
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« Reply #7 on: March 24, 2012, 05:23:47 PM »
fair enough, is that a difficult process? If not I would definitely do that.
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
lmunchkin
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"There Is No Place Like Home!"
« Reply #8 on: March 24, 2012, 07:22:24 PM »
It is your right to switch, Pagan.  If you do not like this "excellent" surgeon, then switch!  Find one that is good and has a heart for his patients.  You will know, the minute he/she speaks!

God Bless,
lmunchkin
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
sullidog
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« Reply #9 on: March 24, 2012, 09:48:40 PM »
I have a graft, but a fistula is best. My graft will be 2 years in april, it's had some ups and downs, but with a good surgeon and good care it should last a long time!
If you have a good vein for the fistula then I'd go with it as that is the best access option, and get a good surgeon.
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
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