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Author Topic: Introducing myself  (Read 2391 times)
Chrissygled
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« on: March 29, 2012, 08:54:39 AM »

Hello my name is Chrissy and I am 43. I am married to my hero,whom I have known since high school and have a 16 year old son who is amazing. I was diagnosed in November with Renal Cell Carcinoma. In1986 I had bilateral adrenal tumors, called Pheochromocytoma..and had both adrenal glands removed. From that the Dr's found I have Von Hipple Lindau Disease, a genetic mutation where my body does not fight cancer cells properly. A truly horrific disease and thankfully I have few symptoms. I had a partial nephrectomy in November and on April 12 I am having a radical nephrectomy and then I begin dialysis. I am leaving in a few minutes to discuss the procedure for the fistula or graft and the temporary cath. I am feeling very healthy actually, except for the fact I am tired all the time. I used to teach, but I have taken a leave from that, and now I spend my time being a home maker! I always wanted to be a stay at home wife!...I meditate, or try to, do yoga, and read. I also attend a cancer support group which is just incredible. I hope to learn from all of you, and perhaps share where I can.
Many thanks
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conchman
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« Reply #1 on: March 29, 2012, 11:15:42 AM »

Welcome Chrissy.  Sounds like you've been thru the wringer...keep coming around and we will be here if you need us..


 :welcomesign; :bandance; :welcomesign; :bandance;
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"If I had trouble the warranty said, breathe in, breathe out, move on"- J.Buffett

1991 diagnosed PKD (kidneys, liver)
2010 kidneys at 35% (left 2x size)
2011 kidneys at 30% (left 2x size)
willowtreewren
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My two beautifull granddaughters

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« Reply #2 on: March 29, 2012, 11:27:51 AM »

Hi, Chrissy!

 :welcomesign;

This is a great place for information and support. I'm glad you have a good cancer support group, too.  :2thumbsup;

I'm married to my hero, too.  :clap; And best friend.  :laugh:

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
lmunchkin
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"There Is No Place Like Home!"

« Reply #3 on: March 29, 2012, 05:37:18 PM »

Hi & Welcome to IHD, Chrissy.  Sorry you have so much on your plate, but you have once again, found another good support group on this site!  Hope you come often and post, whether it be questions, venting or whatever!  We are here for you!

Again  :welcomesign; & God Bless,
lmunchkin
 :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Poppylicious
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« Reply #4 on: March 30, 2012, 06:41:23 AM »

 :welcomesign; Chrissy!
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
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