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Author Topic: PTSD  (Read 8988 times)
Ladystardust24
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Keep Calm, Carry on.

« on: April 08, 2012, 11:29:18 PM »

Without going to into a super long post about this.

I've had PTSD for a number of years. I have really bad anxiety/panic attacks. My PTSD is related to medical stuff. I get really horrible "nightmares" (Considering it's things that actually happened, I'm not sure if that's really a "nightmare") But anyways, So yea. That's the gist of it.

Does anyone else go through this? What's helped/not helped. Any advice?
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Dialysis 99-01
transplanted 01-04
Dialysis 04-10
Currently Transplant 10-22 +!

Very grateful for my Ziggy Bean.
Jean
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« Reply #1 on: April 09, 2012, 12:45:37 AM »

As I read your other post on the being born with no bladder, I thought, my God, how can she stand it. Now I know. Nightmares. I would think your Dr. maybe can medicate you with anti anxiety pills. ( I also take them ) They do help. My anxieties are just the normal run of the mill little bitty ones, nothing serious, not like you. God Bless you Honey and I hope you can get some help.
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One day at a time, thats all I can do.
jeannea
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« Reply #2 on: April 09, 2012, 04:51:22 AM »

I don't have PTSD but I do have some bad depression. I have a wonderful therapist who helps me so much. Can you find one? It's amazing how great it is to have someone listening just to you.
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cassandra
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When all else fails run in circles, shout loudly

« Reply #3 on: April 09, 2012, 08:51:45 AM »

Yeah I tried the therapist, and am using Diazepam now. Works great

good luck, love Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
cariad
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What's past is prologue

« Reply #4 on: April 09, 2012, 12:39:15 PM »

The only thing that has helped me is time. I had nightmares and what I assume was free-floating anxiety growing up and I still get the occasional nightmare today. I cannot take anti-anxietals because they just put me to sleep. Antidepressants make matters worse, they are notorious for causing vivid dreams. I have two themes for nightmares - drowning and sexual assault. I think they both relate back to being a child in hospital with adults conducting invasive, painful and humiliating examinations with no warning and no way to stop it. I have not been through a fraction of what you have, but I do think there is something unique to going through this as a child when you are trying to develop your understanding of the world and sense of trust. I have often wondered if I have or had PTSD, but most blow that suggestion off. The only person who takes me seriously on that is my husband.

I do not get panic attacks so cannot help there. I think all you can really do is learn as much about yourself as possible - what triggers you and how best to minimize exposure to that stimuli, and then also what sorts of action you can take when panic does strike to calm yourself down. I like tea. I find it very soothing and you cannot really overdose.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Ladystardust24
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« Reply #5 on: April 09, 2012, 02:14:59 PM »

I do have a therapist, she's amazing. I've been seeing her for almost 10 years now.

Meds, that's a iffier subject. I do have ativan if I'm reallyy really not doing well.

@Cariad
I completely agree. I feel in many ways, I have gotten back sense of who I am. But there's times I can't. You're very right. dealing with this all since childhood is so different. I also have issues with "trust" (As in, it takes a while to really get me to trust someone. I'm serious about trust.) "understanding the world around you" Yeah. I mean, I adjust quite well to the world "around me" but sometimes I feel more like a animal that has been locked up in a testing facility and let go, than i actually feel human. The feeling of disassociation with feeling human gets to me a lot.

especially since, it's triggering everytime I have to go back to the hospital. Various degrees, but still. I hate hate being inpatient. If I'm anywhere near surgery/ICU I freak out. Needles make me cry. And just the whole process is draining.

I'm probably going to go see a PTSD shrink. And look into more stable medications. I'm not sure how/what and my exact comfort with them. But depression plays a large part in a lot of this.

I do try to cut down on things that make it worse and have some things in place, but there's times it's so in my mind and terrifying that I can't help but just sit in bed and sob for hours.
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Dialysis 99-01
transplanted 01-04
Dialysis 04-10
Currently Transplant 10-22 +!

Very grateful for my Ziggy Bean.
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