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Author Topic: He lost the battle  (Read 5945 times)
tee
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« on: March 11, 2012, 04:34:28 PM »

 I have not posted on here in awhile, my fiance Jack who I was with for 26 years passed on 1/13/2012.  The last six months of his life were very difficult, he got an infection in his foot lost June, and they had to amputate his toe, and he seemed to spiral downward after that.  He was in the hospital every month, and I feel that he was just done with all of it, and could not go on any longer.  I spent most of the time running to work, and running to the hospital.  He was losing weight, and when he passed, he only weighed 127, and that was the smallest he had ever been since I have known him. During the last two months, he was unable to drive his truck, and could not even get in a a passenger. He could barely walk, and was losing the function of his hands and arms, and kept having breathing problems, due to fluid in his lungs.  I know he is in a better place now, and is resting, free from illness, but my heart is broken, and I still cannot figure out to do with myself. 
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MooseMom
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« Reply #1 on: March 11, 2012, 04:37:26 PM »
oh no!  I am so very, very sorry.  How much suffering he endured!  I am so glad you posted about this; we understand the pain you must be feeling after losing your fiance of so many years.  I wish we could be there to help you, but we are HERE. :grouphug;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
amanda100wilson
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« Reply #2 on: March 11, 2012, 05:04:27 PM »
I am very sorry to hear this.
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ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
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« Reply #3 on: March 11, 2012, 05:09:10 PM »
I'm sorry to hear this.  You need to take care of you.  Jack is in a much better place.

           :pray;
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okarol
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« Reply #4 on: March 11, 2012, 05:26:26 PM »
 :cuddle; Big HUG for you tee. I am so sorry about Jack. Poor guy, he had tough time. And I know it's hard on you. Please come back and talk, vent, cry, whatever - we're here if you need us.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
YLGuy
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« Reply #5 on: March 11, 2012, 05:37:39 PM »
I am so sorry to hear.  You are both in my thoughts and prayers.
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tee
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« Reply #6 on: March 11, 2012, 05:44:18 PM »
Thank you to all, I know you all understand about Kidney disease, and what a toll it takes on the body, and how rough the Dialysis can be for some people.  Not all understand this, and I have heard many comments that they never thought he was so sick.  So I am glad this site is here.
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del
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« Reply #7 on: March 11, 2012, 05:58:58 PM »
 :cuddle; Thinking of you. 
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Don't take your organs to heaven.  Heaven knows we need them here.
Sluff
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« Reply #8 on: March 11, 2012, 06:07:11 PM »
Please accept my condolences Tee.
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jbeany
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« Reply #9 on: March 11, 2012, 06:44:41 PM »
 :grouphug;
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Animal
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« Reply #10 on: March 11, 2012, 09:20:07 PM »
I am so sorry for your loss  :grouphug;
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Joe
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« Reply #11 on: March 12, 2012, 06:58:27 AM »
My condolences Tee. As has been said, Jack is in a better place, free from pain and worry.
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« Reply #12 on: March 12, 2012, 07:24:28 AM »
Tee,

I am so very sorry for your loss. Take it easy...it's a very hard road ahead for you.

 :grouphug;
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Katonsdad
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« Reply #13 on: March 12, 2012, 08:54:16 AM »
Thank you for the update and I am so sorry for your loss. It is so hard to say goodbye , especially to a loved on.
I am sending prayers and good thought your way,

Katonsdad
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Diabetes 1976
Eye issues 1987
Kidney Failure 1997
CAPD 1997 , Stopped 1997 due to infections evey 28 days
Started In Center Hemo 1997
Received Kidney/Pancreas transplant 1999 at UCLA
Wife and I had son in 2001 , by donor for my part (Stopping the illness train)
Kidney failed 2011 , Back on Hemo . Looking to retransplant as the Kidney is still working



Soft kitty, warm kitty,
 little ball of fur,
happy kitty,sleepy kitty,
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Sheldon and Penny on The Big Bng Theory
cariad
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« Reply #14 on: March 12, 2012, 09:42:55 AM »
Oh, such devastating news. I am truly sorry. Peace and love to you and your precious Jack.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

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big777bill
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« Reply #15 on: March 12, 2012, 01:03:48 PM »
 So sorry to hear about you losing Jack. His pain is over his battle won. Now is the time for you to keep moving and keep your mind occupied. This won't stop the pain but maybe make it just a little easier to deal with. My heart goes out to you and prayers will be sent up for you. God Bless you and keep you, Bill    :grouphug; :grouphug; :grouphug;
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liver transplant 3/22/2005
CKD 2008
 
fistula 11/17/2011
 catheter 2/07/2012
 started  hemo-dialysis in center 2/07/2012
 fistula transposition 3/08/2012
 NxStage at home  3/29/2012
 Using fistula at home 6/25/2012
 Using new NxStage S High-Flow cycler 3/04/2014
looneytunes
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« Reply #16 on: March 13, 2012, 04:25:09 AM »
So sorry for your loss, Tee.   :grouphug;
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"The key to being patient is having something to do in the meantime" AU
Darthvadar
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« Reply #17 on: March 13, 2012, 04:46:10 AM »
How very sad, Tee...

Sincere sympathies...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
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« Reply #18 on: March 13, 2012, 07:23:17 PM »
This is so difficult to hear Tee.  Please keep in touch with us!  Let us know how you are doing and coping with his passing.  It hurts so much to hear this.  Jack IS without the pain, he is at peace now!  Take care of yourself and we are here for you, whenever you need to talk!

lmunchkin
« Last Edit: March 13, 2012, 07:25:03 PM by lmunchkin » Logged
11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
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« Reply #19 on: March 13, 2012, 07:36:43 PM »
I'm so sorry that you lost Jack, Tee.  :cuddle;

I know this is a hard time for you and I wish there were more we could do to help.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
wackywixo
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« Reply #20 on: March 13, 2012, 10:32:55 PM »
I know how you feel,i to just lost someone,my husband of 35yrs just passed from kidney disease and dialysis.on march 4th 2012.i took care of him so i also dont know what to do with myself          sherri
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chook
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« Reply #21 on: March 14, 2012, 01:10:18 AM »
My sympathies to both Tee and Wackywixo on your losses. Not knowing what to do with yourselves is a reflection on your care and concern for your loved ones. As others have said, now is the time to take care of yourselves. Wishing you strength and courage!
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
cassandra
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« Reply #22 on: March 14, 2012, 05:59:23 AM »
I am feeling, and thinking of you both, and I hope all previous suggestions will help a bit.

love Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
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« Reply #23 on: March 14, 2012, 03:53:01 PM »
So sorry tee (and wackywixo).

BIG *huggles* ...
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
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God Bless my donor family!! :)
« Reply #24 on: March 14, 2012, 04:05:36 PM »
Tee,

I'm  so  sorry  for your loss.

Hugs  and  prayers  for you!!!!!!!!
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"Anything is possible, if  you  BELIEVE....."  ~~~Joel  Osteen

"Yesterday is history, Tomorrow is a mystery, Today is a gift..... That is why it is called the present"

*************************************************
 Nov 1979 ~ Diabetes 
Apr. 2004- Nov 2010 ~ CAPD
Nov 9, 2010 ~  Received the  THE  GIFT OF LIFE at 
California Pacific  Medical  center  (CPMC)  in San  Francisco,  CA
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