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Author Topic: where to gain strength  (Read 8611 times)
billybags
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« Reply #25 on: February 09, 2012, 06:22:29 AM »

Looney it is a s day to-day. he managed to get the car out to take me shopping, weekly stuff, I thought he was going to collapse on me. He had to go and sit down he has gone to bed now. I don.t know how my fuc***g heart copes with this. Hope your two are getting through the day alright.
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cassandra
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When all else fails run in circles, shout loudly

« Reply #26 on: February 11, 2012, 03:22:18 PM »

I really hope you both had a M, and G day today and will have those tomorrow
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
kevinswife
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« Reply #27 on: February 11, 2012, 06:34:50 PM »

Boswife,

I cried when I read this post.  It seems like we have some moments of joy, but we are always waiting for the other shoe to drop.  It's like there is a black cloud that follows us around.  One thing that helps me is my faith.  When I am having a bad day, I think of Isaiah 41:10
Fear not, for I am with you;
Be not dismayed, for I am your God.
I will strengthen you,
Yes, I will help you,
I will uphold you with My righteous right hand.

Also, I have been taking time to do something good for myself for a change.  For the past six weeks, I have been going for a walk/jog for about half an hour, three days per week.  I am doing the "Couch to 5K Program".  It is designed to help people go from being a couch potato to running a 5K in nine weeks.  I am on week six. I use a free podcast that I found on C25K.com.  They even have a potcast set to Christian music. I feel like it is helping my heart and lungs.  Also, I feel good mentally after I exercise.  After going for my jog in the morning, I seem to be in a better mood the entire day.  Perhaps this is a "runner's high", but I don't run.  I do a very slow jog.  My goal is to do an 8K next month that supports organ donor awareness.  It is on a Sunday (a non-dialysis day for my husband).  He said he will go to the race and cheer me on!   :bandance;

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Wife and care partner to Katonsdad. 
May you rest in peace my dear husband.
kevinswife
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« Reply #28 on: February 11, 2012, 06:40:20 PM »

Big Bill,
I wonder if smoking pot can hinder one's chance of getting a transplant. 
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Wife and care partner to Katonsdad. 
May you rest in peace my dear husband.
big777bill
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« Reply #29 on: February 12, 2012, 05:21:01 AM »

 Absolutely I was talking tongue in cheek. I have no plans on doing anything illegal to feel alittle better. If you are found to have any trace of any illegal drug in your system that's automatic that nyour kicked off the tx list. You have to be clean for at least 6 months. Some center may want you to be clean longer. I'm not a candidate for a kidney tx anyway. I did have a liver tx 7 years ago.
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liver transplant 3/22/2005
CKD 2008
 
fistula 11/17/2011
 catheter 2/07/2012
 started  hemo-dialysis in center 2/07/2012
 fistula transposition 3/08/2012
 NxStage at home  3/29/2012
 Using fistula at home 6/25/2012
 Using new NxStage S High-Flow cycler 3/04/2014
kevinswife
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« Reply #30 on: February 12, 2012, 06:08:12 AM »

Big Bill,

I am sorry that you are not a candidate for a transplant.  It would be tempting to try medical marijuana to help with the nausea. 

There is a patient at my husband's dialysis center who smokes cigarettes.  He cannot get on the transplant list until he quits smoking and is nicotine free for X amount of time. 

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Wife and care partner to Katonsdad. 
May you rest in peace my dear husband.
big777bill
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« Reply #31 on: February 13, 2012, 03:15:59 AM »

 I wonder if you live in a state where medical marijuana is the law if they would hold it against you for getting a tx? My thought would be how could they as long as the hospital and the patient are from the same state.
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liver transplant 3/22/2005
CKD 2008
 
fistula 11/17/2011
 catheter 2/07/2012
 started  hemo-dialysis in center 2/07/2012
 fistula transposition 3/08/2012
 NxStage at home  3/29/2012
 Using fistula at home 6/25/2012
 Using new NxStage S High-Flow cycler 3/04/2014
Kitty Cat
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Lila & Smudgie

« Reply #32 on: March 05, 2012, 03:18:45 PM »

boswife,

I am so sorry that you or anybody has to go through this. The best any of us can do is our best, tears, frustration and all. Nobody could ever ask more. This is a horrible disease that affects everybody, from the patient right down to the pets in the household. I wish and pray that there would be a cure. So much is done these days and to see people suffer is heart wrenching.

Never apologize for venting, all of us get to that point some time or other. There's always hope...that is what holds us all together.

Hugs to you....
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texasstyle
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« Reply #33 on: March 07, 2012, 11:39:23 AM »

Don't EVEEEEEEEEEEEEERRRRRR fel bad about venting. Holding emotional stress in is so bad for your health. We're human and we need each other and you've got that here.
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caregiver to husband using in-center dialysis 4 years
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