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Author Topic: Kidney Failure claims another victim  (Read 4717 times)
willowtreewren
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« on: March 14, 2012, 04:34:06 PM »
We got the call from our nephew this afternoon that Carl's sister had taken her life. Our brother-in-law found her when he got home from work today.  She had been on dialysis for about 6 years, but had much trouble. Her bones were like egg shells and the day before Carl's transplant she broke both hips when she missed her chair and hit the floor. Although she had a willing donor lined up for a paired exchange, she was deemed too weak to survive the surgery.

She was in lots of pain and I think it just became too much.

I hate this disease.

When death comes into our lives, it is important to take stock, though. Life is sweet and precious. Live each day and be glad for each morning that you wake up and have another day to enjoy.

RIP Deborah. Your fight is over. I wish you could have had an easier path like your brother. I know it was hard for you to see him lead such  a healthy life despite kidney failure. It wasn't fair that you suffered so much. I also wish you had found your way here for the support you could have found. I knew that if I told you about IHD, you never would have visited, but I did tell your dear husband. I do wish things could have been better for you.

xoxoxoxox   :'(

Aleta
« Last Edit: March 15, 2012, 03:56:17 PM by willowtreewren » Logged
Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Cordelia
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« Reply #1 on: March 14, 2012, 04:48:30 PM »
I'm so sorry for your loss.        :(      My condolensces to you and your family.       :grouphug;
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
conchman
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« Reply #2 on: March 14, 2012, 05:02:29 PM »
Prayers to you and yours Willow...a new angel is born... :angel;



Conchman,
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"If I had trouble the warranty said, breathe in, breathe out, move on"- J.Buffett

1991 diagnosed PKD (kidneys, liver)
2010 kidneys at 35% (left 2x size)
2011 kidneys at 30% (left 2x size)
lmunchkin
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"There Is No Place Like Home!"
« Reply #3 on: March 14, 2012, 05:13:45 PM »
Sorry Aleta. This is such an awful disease for sure!  May she RIP, and now has no more burdens to bear!

lmunchkin
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
jbeany
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Cattitude
« Reply #4 on: March 14, 2012, 05:14:58 PM »
 :grouphug; :grouphug; :grouphug;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
willowtreewren
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« Reply #5 on: March 14, 2012, 05:21:12 PM »
Thank you....

We are still in shock.
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
jeannea
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« Reply #6 on: March 14, 2012, 08:31:11 PM »
That's so sad. I hope she has found peace. My sympathies to the family.
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Desert Dancer
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« Reply #7 on: March 14, 2012, 10:27:29 PM »
Oh, Aleta, I'm so sorry.  :grouphug;
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
Darthvadar
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« Reply #8 on: March 15, 2012, 02:23:58 AM »
How terribly sad, Aleta...

May she rest in peace...

Darth...

God saw the road was getting rough,
 The hill was hard to climb;
 He gently closed those loving eyes
 And whispered “Peace Be Thine.”


The weary hours, the days of pain,
 The sleepless nights have passed;
 The ever patient worn-out frame
 Has found sweet rest at last.


God Saw that you were weary
 So He did what He knows best.
 He came and stood beside you,
 And whispered, “Come and rest.”


You bid no one a last farewell,
 Not even a goodbye.
 You were gone before we knew it,
 And only God knows why.
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
natnnnat
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« Reply #9 on: March 15, 2012, 03:28:02 AM »
That's hard news Aleta.   :grouphug; :grouphug;  Thinking of you and Carl.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
amanda100wilson
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« Reply #10 on: March 15, 2012, 03:31:15 AM »
That is so very sad.

Garth, that is a beautiful poem.
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ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
Rerun
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Going through life tied to a chair!
« Reply #11 on: March 15, 2012, 04:31:41 AM »
I'm so sorry for your loss.

   :pray;
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Traveller1947
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« Reply #12 on: March 15, 2012, 05:29:52 AM »
Aleta, I'm so sorry to hear about the death of your sister-in-law.   Life IS sweet and precious, as you have wisely said.  Deborah was part of this community, whether she joined or not.  In that sense, your loss is our loss too.  God bless you and Carl.
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plugger
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« Reply #13 on: March 15, 2012, 06:08:46 AM »
I wanted to offer my condolences.  It can be a fine line between when life is worth living and when it's not - I'm sorry to hear she crossed that line.
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technicians in Colorado - bill passed, renewed in 2012 and 2019

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Riverwhispering
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« Reply #14 on: March 15, 2012, 06:23:23 AM »
Aleta my heart is with you and your loved ones.  It's so sad  :grouphug;
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Poppylicious
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« Reply #15 on: March 15, 2012, 06:50:01 AM »
Moe *huggles* for both of you.
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
willowtreewren
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My two beautifull granddaughters

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« Reply #16 on: March 15, 2012, 07:27:54 AM »
Poppy, thanks for the huggles, and more of them..... That means so much.

And everyone, kidney failure affects all of us.... we need to stand strong against it.  :cuddle;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
willowtreewren
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My two beautifull granddaughters

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« Reply #17 on: March 15, 2012, 08:41:57 AM »
We just heard from our niece. There is not going to be a funeral. And oh, the irony. All of our brother-in-law's family will be visiting for his son's wedding on Saturday. So sad.

Plugger, I so get what you are saying..... She had a very hard time of it, and I realize that it just got to be more than she could bear.

She had been giving hints that her husband took as casual comments.....

Thanks everyone for caring.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
billybags
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« Reply #18 on: March 15, 2012, 12:32:09 PM »
willowtreewren, That is so sad. Thinking about you and your family.
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galvo
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« Reply #19 on: March 15, 2012, 02:54:51 PM »
So so sad. But so understandable. My condolences, aleta.
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Galvo
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« Reply #20 on: March 15, 2012, 03:32:47 PM »
I wish for you and your family to have peace of heart. I am sorry for your loss.  :grouphug;
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kevinswife
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« Reply #21 on: March 15, 2012, 07:12:04 PM »
This sad news is making my cry.   :'(   I am so sorry for your loss.  My heart goes out to her husband and the family. 
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Wife and care partner to Katonsdad. 
May you rest in peace my dear husband.
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« Reply #22 on: March 15, 2012, 11:56:21 PM »
 :cuddle; So sorry Aleta, best wishes to you and Carl.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Whamo
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« Reply #23 on: March 16, 2012, 06:11:51 AM »
God bless her soul.  I'm sorry for your loss.  It sounds like she was suffering so at least that came to an end.   :grouphug;
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kitkatz
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« Reply #24 on: March 16, 2012, 06:22:44 AM »
It is sad when a loved one goes. Hugs to your family.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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