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Author Topic: Hello from Pittsburgh  (Read 2120 times)
dstevens
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« on: January 26, 2012, 12:40:13 PM »
My name is Donny and I am 34 years old. I live in Pittsburgh PA. I was diagnosed with kidney failure when I was 27 years old. I was on dialysis for 6 months before I was unbelievably lucky enough to find a donor on MySpace of all places. I received my transplant and things were really rough for awhile. I also have diabetes and cystic fibrosis so the surgery really took a toll on me and I was in and out of the hospital with pneumonia and a potentially fatal fungus in my lungs multiple times over the course of the following year. I eventually got better and things were pretty good for the following 5 years. Until now....unfortunately my kidney has failed again. To say I am devastated doesn't begin to describe it, but I'm sure plently of people on here can relate. I'm going to put up another post explaining my current situation because it's somewhat complicated and I did have a few questions I was hopiing to get some input on. I'm really hoping this site can help. I've been reading a lot of the posts on here and they seem really helpful. I don't really know where else to turn. In advance, thank you for listening.
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Joe
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« Reply #1 on: January 26, 2012, 12:46:32 PM »
 :welcomesign; to the site Donny! Bummer about your transplant failing, having to go through this twice would be quite unnerving. As away, there are some really knowledgeable folks hanging about this site, and they love to share their experiences.
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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
willowtreewren
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My two beautifull granddaughters

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« Reply #2 on: January 26, 2012, 01:57:37 PM »
Hi, Donny!

 :welcomesign;

I've read your other post, but don't have time to answer just yet. You have been through it, though.

 :cuddle;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Poppylicious
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« Reply #3 on: January 26, 2012, 03:11:20 PM »
 :welcomesign; Donny!
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
YLGuy
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« Reply #4 on: January 26, 2012, 03:15:50 PM »
 :welcomesign; Welcome to IHD! Please do ask away.  There are a lot of very knowledgeable people with a wide range of experiences with ESRD.
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Rerun
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Going through life tied to a chair!
« Reply #5 on: January 26, 2012, 03:42:10 PM »
Hi Donny, and welcome to IHD.  I'm so glad you have turned to us.  It is beyond words to lose a transplant.  But, we walk on.  I hope you find your answers here and also able to help someone.  You have lots of experience.

Thank you,

Rerun, Moderator        :welcomesign;
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chook
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Born to be a Granma!
« Reply #6 on: January 26, 2012, 04:08:55 PM »
 :welcomesign; Donny! Sad to read that you are on a downhill run at the moment. Sending  :cuddle;
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
lmunchkin
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"There Is No Place Like Home!"
« Reply #7 on: January 26, 2012, 06:20:35 PM »
Welcome &  :grouphug;  to you Donnie!  Youv'e had a rough go of things.  Iam so sorry for that!

Again Welcome & God Bless,
lmunchkin
 :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
ToddB0130
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« Reply #8 on: January 27, 2012, 07:09:13 PM »
Donnie --- I'm really glad you found this board.  There are a lot of really supportive people and plenty of information.  So sorry to hear about the failing kidney .... that sucks.  But I'm most interested in hearing more about your live donor via MySpace ..........was it a friend or relative who donated after you posted or was it a stranger ?   I hope that luck strikes twice for you and you get a donor again.  I guess it's good that you have some experience already with dialysis to help you through this traumatic transition.  Again --- WELCOME.  I hope you'll contribute a lot to the board.  Seems you've certainly had plenty of experiences to share with the rest of us.
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No day but today
Ang
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« Reply #9 on: January 28, 2012, 07:40:03 PM »
 :welcomesign; Donnie


  ask away , some one will be able to answer your questions
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live  life  to  the  full  and you won't  die  wondering
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