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Author Topic: Access Problems  (Read 13939 times)
kitkatz
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« on: May 27, 2012, 09:57:08 PM »
I just spent 21 hours in Kaiser, Fontana getting my fistula rebooted. My arm hurts.  I have sutures in it and bandaids on it.
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
mogee
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« Reply #1 on: May 28, 2012, 12:14:40 AM »
I am the king of access problems.  I've had about thirty fistulagrams.  I have had two fistulas, a graft and three central lines.
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PKD and IgA Glomerularnephritis
Nocturnal Home Hemo since 2004
Deceased Donor Transplant November 6, 2012
MooseMom
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« Reply #2 on: May 28, 2012, 12:39:53 AM »
Oh kitkatz, that's not a good way in which to spend the holiday weekend...in the hospital!
 
How exactly was it rebooted?  Is it ok to use?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Jean
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« Reply #3 on: May 28, 2012, 01:02:20 AM »
WHAT???? Didnt you JUST get that sucker fixed??? What happened this time???
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willowtreewren
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« Reply #4 on: May 28, 2012, 05:13:06 AM »
I was NOT happy to read this.  :thumbdown;

I hate dialysis!

Hoping this reboot lasts a long time.  :cuddle; :cuddle; :cuddle;

Aleta
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Wife to Carl, who has PKD.
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Carl transplanted with cadaveric kidney, February 3, 2011. :)
kitkatz
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« Reply #5 on: May 28, 2012, 09:36:32 PM »
Reboot failed. I am back to Kaiser in the morning!  Sucks, sucks, sucks!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
MooseMom
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« Reply #6 on: May 28, 2012, 09:40:29 PM »
Oh, you're joking.  I can't believe it.  What the hell happened?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
kitkatz
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« Reply #7 on: May 28, 2012, 09:46:27 PM »
My low BP caused a lot of these problems. I went to ER with 85/59 blood pressure.   They look at me like I am nuts.  I calling vascular surgeon in the morning.  See if he wants to see me or send me to ER.
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Jean
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« Reply #8 on: May 28, 2012, 11:20:43 PM »
Is there some kind of law some where that says you must become seriously ill when your Dr.'s office is closed? Best of luck to you Kit, this is nt good news from yu. Keep us posted, will ya??
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One day at a time, thats all I can do.
kitkatz
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« Reply #9 on: May 31, 2012, 08:00:03 PM »
Spent Tuesday from 8 a.m. to 4 a.m. in ER. Most of it waiting for Radiology to have space in their schedule for me.  Hurt me when they worked on my fistula in my arm.  They were chasing clots down into my lower arm.  One got loose from them, so far no side effects from it.  I was crying while they worked on me.  The ER tried to turn me into a pin cushion.  Has a pushy ER doc yell at me. I was crying and in pain and she yells at me.  WTF!!!  Finally got enough blood to check my potassium and sent me home. I am exhausted.  Sore and tired. 
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
MooseMom
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« Reply #10 on: May 31, 2012, 08:03:42 PM »
Quote from: kitkatz on May 31, 2012, 08:00:03 PM
Spent Tuesday from 8 a.m. to 4 a.m. in ER. Most of it waiting for Radiology to have space in their schedule for me.  Hurt me when they worked on my fistula in my arm.  They were chasing clots down into my lower arm.  One got loose from them, so far no side effects from it.  I was crying while they worked on me.  The ER tried to turn me into a pin cushion.  Has a pushy ER doc yell at me. I was crying and in pain and she yells at me.  WTF!!!  Finally got enough blood to check my potassium and sent me home. I am exhausted.  Sore and tired.

Oh gosh, that sounds just dreadful.  I can't believe the ER doc treated you that way.  That's abysmal, it really is.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
okarol
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« Reply #11 on: May 31, 2012, 08:30:45 PM »
No pain meds?? UGH! So sorry Kit!  ???
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
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News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kitkatz
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« Reply #12 on: June 03, 2012, 01:30:42 PM »
They finally gave me morphine and Ativan, ten came and got my blood for the third time in half and hour.  Geez!  I was crying by the time I was up from xray.  No one asked me if I needed something until I was yelling at the doc who was yelling at me!
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
cassandra
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« Reply #13 on: June 03, 2012, 02:26:29 PM »
OMG so, so sorry for you Kitkatz, I'll be thinking of you! (I'm sorry, can't ask my dad for prayers anymore, cos he 'went over to the other side' a week ago).

Lots of strength, and love

Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
kitkatz
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« Reply #14 on: June 03, 2012, 04:00:16 PM »
Finally showered all of the hospital off of me today.  Arm is sore, but running.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
okarol
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« Reply #15 on: June 03, 2012, 04:44:26 PM »
 :cuddle; So sorry, sounds grim. Hope it keeps working just fine.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Jean
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« Reply #16 on: June 04, 2012, 11:47:40 PM »
Well, I am glad you are able to be upright anyways. Hope you continue to improve. So sorry this happened to you.
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One day at a time, thats all I can do.
kitkatz
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« Reply #17 on: June 07, 2012, 10:17:30 PM »
I feel better. Stitches are out of the arm now.  Now back to establishing new buttonholes.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #18 on: June 07, 2012, 11:34:24 PM »
 :thumbup; Good news, hope it keeps buzzing along!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Jean
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« Reply #19 on: June 08, 2012, 12:11:35 AM »
Glad you feel better too.
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One day at a time, thats all I can do.
kitkatz
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« Reply #20 on: June 10, 2012, 10:22:13 PM »
A pic of my arm after surgery.  Looks better now.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Jean
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« Reply #21 on: June 11, 2012, 12:39:55 AM »
Well, at least it looks better than when you had the bad infection in your arm. ( she says, trying to be optimistic ) Hope you feel better soon Kit.
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Big E
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« Reply #22 on: June 12, 2012, 10:29:09 AM »
Kit, I,m so sorry you had such a tough time, and I don't know why it had to hurt so much.  I had a fistulagram at Kaiser West LA and it was horribly painful.  Why are they so stingy with the anesthesia, that's what I'd like to know! 
Somebody should make that mean ER doc go through what you did, and then maybe she'd think twice before yelling at you or any other patient.
 :Kit n Stik;
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PKD diagnosed June 1996
Started in-center hemodialysis May 2010
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