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Author Topic: Menstrual periods post-transplant  (Read 5144 times)
KarenInWA
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« on: January 20, 2012, 07:17:08 AM »
Hi Ladies (I'm assuming only ladies will be reading this!)

I had my tx on 11/23/11. On 11/24 I had a period that lasted about 7 days. While I was on dialysis (for 7 months) I never missed a period until I started taking the pill continuously - in hopes that I could avoid them entirely - and I still would have a period about every 3 months or so. In fact, I had a period about 2 weeks before my tx. Periods during HD, as some of you know, is a literal PITA, and the increased flow does not go well with anemia. Now that I am post-tx, and no longer on the pill, I haven't had a period since that one in the hospital. This is unusual for my usually period-happy body.  Now, don't get me wrong, I'm liking it, I'm just curious as to why this is happening!

I brought it up to the dr's at the tx clinic, but they suggested I contact my gyno/PCP. I haven't done that yet. And no, I am not pregnant. Sex is such a small, infrequent part of my life that there is NO way that could ever happen. I have given up on men in my geographical area, because it is apparent that they do not like me and only want to use me for a little bit of sex, then throw me away like yesterdays's garbage. My tx is way too precious to me to get myself wrapped up in that crap ever again. It just ain't worth it!

What have your experiences been with periods post-tx?

KarenInWA
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1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
carol1987
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« Reply #1 on: January 20, 2012, 09:49:51 AM »
 about every few months... however I am peri -menopausal   so I have no idea what should be normal  at this point.  Sorry that I can't really help you...
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
justme15
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« Reply #2 on: January 20, 2012, 10:23:19 AM »
i haven't had a period since July, I think.  it's been a while! and I am not pregnant.  my periods have always been sporadic and intermittent.  my hematologist said that my lack of periods may be my body's response to my severe anemia, by conserving my blood. ( I hadn't heard that one before).  my gyno just said 'it happens in patients with kidney disease'. so in other words no big deal.  so, I am enjoying my period free life, although this also means that my chances of getting pregnant are very low.
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coravh
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« Reply #3 on: January 20, 2012, 10:58:20 AM »
I was the opposite. I didn't have my period for quite a while before transplant (often happens in kidney failure) and once I had the surgery it came back. Yuck! It has since stopped again although I am not yet in menopause. Due to horrific cramps, it's certainly a blessing. Sorry I couldn't be more help.

Cora
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Deanne
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« Reply #4 on: January 20, 2012, 02:43:11 PM »
Mine stopped while I was on prednisone (pre-ESRD), so I wonder if it's the meds that are doing it to you.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
Gerald Lively
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« Reply #5 on: January 20, 2012, 04:50:13 PM »
Yep!  I have PMS.  I wish I knew how to get over it.
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Hodgkin's Lymphoma - 1993
Prostate Cancer - 1994
Gall Bladder - 1995
Prostate Cancer return - 2000
Radiated Prostate 
Cataract Surgery 2010
Hodgkin's Lymphoma return - 2011 - Chemo
Renal Failure - 2011
Renal Function returned after eight months of dialysis - 2012
Hodgkin's Lymphoma returned 2012 - Lifetime Chemo


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have their roots in human needs.

                          Eugene Fitch Ware
MooseMom
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« Reply #6 on: January 20, 2012, 04:56:29 PM »
OMG, I can't imagine having periods while on HD!  Makes me glad I'm too old for that nonsense. :P
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
RichardMEL
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« Reply #7 on: January 24, 2012, 04:53:23 PM »
I had a period when I was on HD... it lasted about 4 and a half years....

 :rofl;

Sorry, couldn't resist!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
bette1
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My dear daughter
« Reply #8 on: January 25, 2012, 11:38:47 AM »
I have been regular while on PD, HD and post transplant.  Periods have gotten shorter and lighter, but may be my age rather than the transplant. 
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Diagnosed with FSGS April of 1987
First Dialysis 11/87 - CAPD
Transplant #1 10/13/94
Second round of Dialysis stated 9/06 - In Center Hemo
Transplant  #2 5/24/10
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