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Author Topic: Hi from WV  (Read 2720 times)
wvgirl
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« on: January 30, 2012, 02:34:30 PM »
Hi, my name is Jeanne. I found out I had Kidney Disease when I was 21 years old. I started out seeing a Nephrologist yearly. About 6 years ago, when I was 39 it changed to monthly, then every 3 months and now I am 45 years old and am going monthly. I was diagnosed with IGM Nephropathy and still have 11% of my function left. I have had my fistula since October and my Doctor said it is almost ready to use. I am trying to get on the transplant list. It takes alot more time than I realized! I am not on dialysis yet.
I have been lurking on this sight for a few months and would like to thank you all for the great information I have gotten.  :)
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Jeanne
1988- Chronic Kidney Disease
2005- Biopsy showed IGM Nephropathy
10/2011- Fistula surgery, transplant evaluation-gfr 13
02/2012- On transplant list
05/2012- Started in center dialysis with gfr 9
2 calls for a transplant but still waiting...
Sluff
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« Reply #1 on: January 30, 2012, 02:46:54 PM »
Welcome to IHD lil miss wvgirl.

Good to see you finally came out of the closet. Now repeat after me... My name is wvgirl and I am a IHD addict.
I am also pre dialysis. Hope you find everything you need here, see you in the forums.

Sluff/Admin
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Traveller1947
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« Reply #2 on: January 30, 2012, 03:32:54 PM »
Hi, wvgirl, and welcome! 
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willowtreewren
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My two beautifull granddaughters

WWW
« Reply #3 on: January 30, 2012, 04:21:09 PM »
Hi, wvgirl!

 :welcomesign;

It's nice that you have de-lurked!  :2thumbsup;

Now we can get to know YOU! (since you probably already know a bit about us!)  :rofl;

How are you feeling with only 11% function? Keep using that squeezy ball to strengthen your fistula!

Cheers!

Aleta
 
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Rerun
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Going through life tied to a chair!
« Reply #4 on: January 30, 2012, 04:37:49 PM »
Hi wvgirl and welcome to IHD.  I'm so glad you like this forum.  Keep reading and learning so you can stay a head of the doctors. 

               :cheer:

Rerun, Moderator     :welcomesign;
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wvgirl
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« Reply #5 on: January 30, 2012, 06:49:26 PM »
It feels great to be out of the closet instead of lurking quietly. I still feel pretty good most of the time. Epo shots every other week are keeping the hemo up. My potassium and phosphorus are high right now, which is pretty new for me so I am really trying hard with the diet. My doctor said the binders will be needed my next appt if it doesn't come down. Even though my hemo is up, the past week I have felt very tired and I am having mild headaches daily. BP is great and has always been. I know dialysis is getting very near for me. At my blood test this morning, for the first time I watched the needle go in. It was actually easier that way. I read on one of the posts on this site that it helps to watch. I was pretty tough today, or at least I thought I was.  :boxing;  hehehe I love those little guys!!
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Jeanne
1988- Chronic Kidney Disease
2005- Biopsy showed IGM Nephropathy
10/2011- Fistula surgery, transplant evaluation-gfr 13
02/2012- On transplant list
05/2012- Started in center dialysis with gfr 9
2 calls for a transplant but still waiting...
Chris
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WWW
« Reply #6 on: January 30, 2012, 08:20:59 PM »
Hello
man of few wards unless a thoughts comes to mind
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
lmunchkin
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Posts: 2471

"There Is No Place Like Home!"
« Reply #7 on: February 01, 2012, 03:25:40 PM »
Welcome WVgirl.  So you been peering in and not contributing eeeh?  :shy; :waiting; Well glad you finally came out of your Shell! :yahoo;  Welcome Aboard!!!! :welcomesign;

Ask anything you like, we are here for you!
lmunchkin
 :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Poppylicious
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WWW
« Reply #8 on: February 02, 2012, 02:47:41 AM »
 :welcomesign; wvgirl!  Lovely to 'meet' you now you've delurked ...

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
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