hi,I'm new here

[migaguiar]

I had some trouble registering a few weeks ago but i'm good now.

I'm Miguel. I'm doing dialysis right now while I post. Well, anyways...
I was diagnosed with Alports syndrome when i was 19 yo. My kidneys were @ 8 or 9% at that time so basically they were almost gone. Alports is a genetic disorder that kicks in at late teens. Its usually accompanied with hearing loss! Talk about kicking me while I'm down , huh? Its like winning the lotto twice. 

I had a short stay in the hemo centers because I received a kidney from my father within 4 months. So, that was really nice of him. I especially know now because I'm back here doing this again after 14 1/2 years. I was aiming for 20 years. I felt that 15 years was good too so no complaints on my part. I know I'm lucky so i wont procrastinate and offend you guys who have had it harder.

BUT MAN I REALLY DO HATE DIALYSIS.

I'm grateful but.....lets just say its not something u cant get used to.

I started a blog at blogger to hopefully show some of the difficulties and the things we experience as esrd patients. My goal is to show that if i can do it maybe others who are afraid or are hesitant can overcome that fear. Also, it would  show that were not just #'s. Our problem affects us more than just having toxins in our blood. I want empathy! Not sympathy.

I would walk away totally fulfilled if i knew that somehow i helped a young boy/girl overcome their fear and for him/her know that they are not alone.

Can i post the link or will that be spamming?

If i cant thats alright. I could find another method.
I do have a bunch of questions so I'll jump to the forums now.

Thanks!
mig

[willieandwinnie]

migaguiar. Glad you found us. I am sure you can tell many a story about your experiences. I'm sure the moderators will let you know about a link for your site. Please check us out and post often. 

[monrein]

  look forward to getting to know you through your posts so come here often.

[twirl]

how do you do dialysis and post at the same time?

Welcome and we have a thread for people around 18.
I know you will help someone, your courage is incredible.
You have a good heart and will be honest and that is the best way to be.

thanks for coming to IHD

[migaguiar]

thanks for the welcome.
twirl, I type very slowly with 1 hand.
I'm getting kind of good at it, actually.

mig

[Romona]

 

[thegrammalady]

   this is a great place to land. you will find lots of usefull information and lots of fun.

[Ang]

buenos  diaz  miguel,  welcome  from australia.

[kitkatz]

Welcome to the site!  Lots of things to read and do here on the boards.  Come back often and post.  There is a lot of support here for everyone.  Opinions, too.


kitkatz,moderator