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Author Topic: Anybody with a child on dialysis or who has gone through transplant?  (Read 2166 times)
KidneyMommy
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« on: January 10, 2007, 06:57:45 AM »
Hi everyone...

I'm fairly new to this board.  I was just wondering if there are many folks out there who's CHILD is on dialysis or has gone through/is going through a transplant...

My 2-year-old had a transplant about a year ago, and I'm finding that there aren't many people that have been in my boat, at least in the "real world"...I'm hoping to connect with some people who have youngsters that can identify!!!
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Jessica--Proud Mommy to Gavin
"What lies behind us and what lies before us are tiny matters compared to what lies with in us." --Ralph Waldo Emerson
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: January 10, 2007, 08:07:35 AM »
Hi Jessica - Good to see you here! I  know you from caringbridge!
I cannot believe Gavin is already 2 years old - such a cute guy!
Have you also posted with The National Kidney Foundation? There are
message forums for transplant recipients and patients - you may find
someone there http://www.kidney.org/patients/mboards.cfm.  You may
find parents of young recipients that post here - and they sometimes have
a chat http://www.kidney.org/transplantation/livingDonors/shareEmail.cfm
There's also a email discussion for living donors - I know there are a few parent's
on the NKF listserve http://www.kidney.org/transplantation/livingDonors/index.cfm.
I think Gavin's story is unique but I am sure there must be someone with a
similar story.
Best wishes!
Karol
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #2 on: January 10, 2007, 08:31:54 AM »
Here's another option http://www.aakp.org/aakp-library/Parents-Support/index.cfm
it's a listserve for parents of kids with kidney problems.
« Last Edit: January 10, 2007, 09:00:33 AM by okarol » Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
KidneyMommy
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« Reply #3 on: January 10, 2007, 08:54:21 AM »
HI Karol!  Good to see you here!






EDITED: Moved Thread to Proper Topic, Dialysis General Discussion - Sluff, Moderator
« Last Edit: January 10, 2007, 12:01:48 PM by sluff » Logged
Jessica--Proud Mommy to Gavin
"What lies behind us and what lies before us are tiny matters compared to what lies with in us." --Ralph Waldo Emerson
carolyn77531
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« Reply #4 on: February 08, 2007, 04:44:14 AM »
i understand your situation..my daughter received a transplant when she was 5yrs old.....we went thru dialysis before the transsplant...there wasnt hardly any sites i know about...i didnt want to take the time to know another parent..i just wanted a normal life...so, i kinda shut myself out.but., im going thru this again...she rejected her kidney  back in oct of 2006..back on dialysis.....getting back on the list soon..i made a promise this time i will find people who are in the same boat..
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