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Author Topic: Anybody cruise with their NxStage?  (Read 3864 times)
justjen321
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« on: January 22, 2012, 07:47:48 AM »
Hubby and I are avid cruisers, and as we are getting ready to move from PD to NxStage, I'm curious if any of you have cruised with your NxStage. The wording on the FAQ's is ambiguous.

Anyone been cruising with their machine?

Jen
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TIA reveals failed kidneys (completely unexpected) January 2011
Husband on home PD since May, 2011
Switching to NxStage Home Hemo Nocturnal early spring of 2011

http://failedbeans.blogspot.com/
lmunchkin
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« Reply #1 on: January 22, 2012, 02:50:41 PM »
Not yet, but would love to one day.  Just don't see to manage it right now.  With new year comes owed taxes and huge out of pockets. But maybe jus maybe...........

lmunch
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
willowtreewren
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« Reply #2 on: January 22, 2012, 05:30:18 PM »
Jen, NxStagers often go on cruises and even plan cruises together.

 :2thumbsup;

Aleta
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Wife to Carl, who has PKD.
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Carl transplanted with cadaveric kidney, February 3, 2011. :)
Bill Peckham
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« Reply #3 on: January 22, 2012, 09:00:34 PM »
There is a video
http://www.youtube.com/watch?v=hwdrxPlbuMk


and here is one of a different sort of water based adventure
http://www.youtube.com/watch?v=rZ1NYEg46uE&
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
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justjen321
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« Reply #4 on: January 23, 2012, 12:06:30 PM »
Thank you thank you. :)

Now I know when we switch to NxStage we don't have to stop cruising!

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TIA reveals failed kidneys (completely unexpected) January 2011
Husband on home PD since May, 2011
Switching to NxStage Home Hemo Nocturnal early spring of 2011

http://failedbeans.blogspot.com/
jimvaughan
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« Reply #5 on: January 27, 2012, 11:45:47 AM »
I took a 12 day cruise out of Barcelona with my Nxstage machine. You need to be aware that your supplies need to be shipped by you to the port of embarkation if it is out of country. Cost me $1200! Much better to embark from a U.S. port as you avoid this cost. However even with the extra cost it was cheaper than going on a dialysis cruise. Had a lot of fun!
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justjen321
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« Reply #6 on: January 28, 2012, 06:22:34 AM »
Thanks, Jim.

Currently, we go to ports we can drive to, because I'm far more comfortable having all his supplies in my possession. Too many horror stories of ships losing deliveries. :(

We are like you, we never wanted to do Dialysis at Sea. Having been cruising so many times, we don't like the limited itineraries and such, nor the inflated prices!

Jen
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TIA reveals failed kidneys (completely unexpected) January 2011
Husband on home PD since May, 2011
Switching to NxStage Home Hemo Nocturnal early spring of 2011

http://failedbeans.blogspot.com/
vcarmody
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« Reply #7 on: January 31, 2012, 08:07:26 PM »
My husband has been using NxStage for almost two years. We have taken 4 cruise and are leaving on our 5th one March 16 and have our 6th one planned for Oct 21. 
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justjen321
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« Reply #8 on: January 31, 2012, 08:10:50 PM »
@vcarmody - Oh awesome! If you don't mind my asking, which line do you usually use?

We've been on 9 cruises with Carnival, and actually went on NCL as well, once. We have a cruise here in Feb (while still on PD) and it will be our platinum cruise with Carnival. Yay for Platinum perks.
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TIA reveals failed kidneys (completely unexpected) January 2011
Husband on home PD since May, 2011
Switching to NxStage Home Hemo Nocturnal early spring of 2011

http://failedbeans.blogspot.com/
vcarmody
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« Reply #9 on: January 31, 2012, 08:32:26 PM »
We used to only travel Royal Caribbean but they gave us a hard time and decided they did not want to let us sail anymore, so we started going on Carnival.  Carnival is the best, they are so accommodating.  FYI book a handicap room they are so much bigger on Carnival better for all the boxes.  Our March Cruise is on RC and Oct is on Carnival out of Baltimore.   
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Caregiver to husband Chris, NxStage 11-2009
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