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rileysmom
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« on: December 10, 2011, 03:33:21 PM »
Hi there everyone, i am new to IHD.. i have had kidney failure since 98 and friday is the big day ..i get my catheter for PD.  I am a little nervous and not sure what to expect or how i am going to feel afterwards. I am a single mom to a special needs 5yr little girl who is the light of my life. and i will be going on a medical leave of absence from my job since i cannot perform my job while i am on dialysis, i am a flight attendant and travel internationally.  i am very grateful i found this sight.
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Razman
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« Reply #1 on: December 10, 2011, 04:14:27 PM »
  It's great that you you joined.  I trust that you will visit often and feel free to ask questons or share with others.  There are a lot of people with a great deal of experience.  I trust that we can help.    :welcomesign;
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willowtreewren
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My two beautifull granddaughters

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« Reply #2 on: December 10, 2011, 05:16:51 PM »
Hi, Rileysmom!

Welcome to IHD!

I have not had any personal experience with PD, so can't help you there, but I'm sure others will jump in!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Joe
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« Reply #3 on: December 10, 2011, 05:43:07 PM »
Hi there rileysmom, and    :welcomesign; ! I responded to your question on the general board. Ask away! Folks here are more than happy to share.



EDITED:  Fixed Smiley - Rerun, Moderator
« Last Edit: December 11, 2011, 08:08:10 AM by Rerun » Logged
Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
Rerun
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« Reply #4 on: December 11, 2011, 08:10:23 AM »
Hi Rileysmom, and welcome to IHD.  I'm so glad you found us.  Are you on the transplant list?  At least you could do your job with a kidney transplant.  Hard to do your job on PD I would think.  Maybe you could .  Riley sounds adorable.

Keep asking questions.

Rerun, Moderator      :welcomesign;
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Poppylicious
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« Reply #5 on: December 12, 2011, 02:40:14 AM »
 :welcomesign; rileysmom!
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- wife of kidney recepient (10/2011) -
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Everything was beautiful, and nothing hurt.
rileysmom
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« Reply #6 on: December 12, 2011, 05:26:52 AM »
Hi Rerun,
yes i am on the transplant list at northwestern memorial and i am going onto the transplant list at university of wisconsin -madison as well. i definitely cannot do my job while i am on dialysis so i will be on a medical leave of absence and will have to file for ssid.. also my complany said if i am still out on medical leave of absence after about 8months they will start the process of trying to find me a new job with in the company, the only down side of that is they could offer me a new job anywhere in the world .. that is one way of them getting round the whole "resonable accomindations" . i am a little stressed because finances are going to be hard especially with riley's special needs but i will try to figure it all out. i am sure my social worker will help me with letting me know of any assistance there may be for me here in illinois. a few more days til surgery. a little nervous.. mostly because of the unknown.
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looneytunes
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« Reply #7 on: December 12, 2011, 07:13:40 AM »
Hi Rileysmom and welcome!   :welcomesign;  I hope things get sorted out for you soon.   :grouphug;
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"The key to being patient is having something to do in the meantime" AU
MooseMom
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« Reply #8 on: December 12, 2011, 08:56:29 AM »
Welcome to IHD.  You sure have a lot on your plate.  I have a son with special needs.  He is 20 now, but when he was 5, life was very scary, and I didn't have either a job nor dialysis to contend with.  I can't imagine what it must be like to be working (or trying to!), to be on dialysis AND raising a child with a disability. :cuddle;  I really hope everything works out for you.  No wonder you are stressed.  Your social worker had better do his/her best for you!

I am listed at Rush, but when I saw my neph last week, he insisted I be listed at Madison, too, so he is starting the paperwork (I hope!  You know how heavy a caseload nephs have these days.  I hope he doesn't drop the ball!).  Have you actually been up to see the people in Madison yet?  I'd be very grateful if you could share with me any information/impressions/opinions you have about that outfit.  The waitlists here in Chicago are monstrous, although NW is better than most, but not THAT much better.

Anyway, I know you have PD questions, and I know that there are plenty of people here who can help you out with that.  I'm really glad you've joined.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
rileysmom
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« Reply #9 on: December 12, 2011, 09:28:39 AM »
I have not been up to madison yet, i did however call them directly and they took some info from me and told me someone will be calling me back in about three weeks to set up a date for me to come up and all the info i will need to get started to be placed ontheir list. yes chicago has a long waiting list NW is a bit long and my social worker told me UW-m is much shorter. so she suggested i call there. the number is 608-263-9531 if you would like to call and leave a message. they are really good about getting back to you with in 24hours. my social worker seems on top of things so hopefully things go smoothly. time will tell.
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lmunchkin
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« Reply #10 on: December 14, 2011, 05:00:33 PM »
Hi & Welcome to IHD. Glad you have joined!

lmunchkin

 :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
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