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Author Topic: Second Evaluation Done  (Read 2167 times)
Restorer
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« on: December 01, 2011, 09:46:21 PM »
I had my transplant evaluation at California Pacific Medical Center today. Everything went well, they said I was "an easy patient" - everything looked perfect for putting me on the list there. All I have to do is get my original blood typing from UCLA sent over (which I fear might be a hassle - UCLA hasn't been good at doing anything in a timely, caring manner) and then I'll be on the list up here.

The wait time is supposed to be 6 years. I'm hoping my interested donors get a better chance here than they did at UCLA. If they don't, I might think about transferring my wait time. I'm still waiting to hear a definite answer, but the nephrologist did some calling around and told me that the extra wait time from the SoCal pilot program (backdated to when I started dialysis) "probably wouldn't" be added if I transferred my time, so that might not be worth it. I don't know.
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- Matt - wasabiflux.org
- Dialysis Calculators

3/2007Kidney failure diagnosed5/2010In-center hemodialysis
8/2008Peritoneal catheter placed1/2012Upper arm fistula created
9/2008Peritoneal catheter replaced3/2012Started using fistula
9/2008Began CAPD4/2012Buttonholes created
3/2009Switched to CCPD w/ Newton IQ cycler            4/2012HD catheter removed
7/2009Switched to Liberty cycler            4/2018Transplanted at UCLA!
MooseMom
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« Reply #1 on: December 01, 2011, 10:06:08 PM »
Good for you for getting this underway!  It's all really frustrating, isn't it. ::)
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #2 on: December 02, 2011, 12:25:44 PM »
 :2thumbsup;

I hope they count your wait time!

Good luck!

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Restorer
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« Reply #3 on: December 02, 2011, 12:38:51 PM »
I just got it confirmed, the "extra" wait time won't count if it's transferred. I might still look into the processes of swapping time - if I can move my 1.5 years of actual waiting time up here, and keep the other 2 years of "extra" wait time down there, that might be worth it, but only after I get my living donors evaluated and everything.

I left a message with my coordinator at UCLA to get things sent up to CPMC. As soon as that happens, I'll be listed. I've given my two donors the number to call to start the process. Everything's moving again - I just wish it'd move faster!  :stressed;
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- Matt - wasabiflux.org
- Dialysis Calculators

3/2007Kidney failure diagnosed5/2010In-center hemodialysis
8/2008Peritoneal catheter placed1/2012Upper arm fistula created
9/2008Peritoneal catheter replaced3/2012Started using fistula
9/2008Began CAPD4/2012Buttonholes created
3/2009Switched to CCPD w/ Newton IQ cycler            4/2012HD catheter removed
7/2009Switched to Liberty cycler            4/2018Transplanted at UCLA!
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #4 on: December 02, 2011, 12:40:49 PM »
 :cuddle;
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
boswife
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us and fam easter 2013
« Reply #5 on: December 02, 2011, 01:04:42 PM »
this makes me want to hear/see........ "i got the call" post from you.  I will be jumpin for joy  ;D   So glad things are moven for ya  :cuddle;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Restorer
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« Reply #6 on: December 02, 2011, 01:08:45 PM »
Well, I don't expect to "get the call" for years, but with luck you might see a "donor was accepted, transplant is scheduled" post sooner!
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- Matt - wasabiflux.org
- Dialysis Calculators

3/2007Kidney failure diagnosed5/2010In-center hemodialysis
8/2008Peritoneal catheter placed1/2012Upper arm fistula created
9/2008Peritoneal catheter replaced3/2012Started using fistula
9/2008Began CAPD4/2012Buttonholes created
3/2009Switched to CCPD w/ Newton IQ cycler            4/2012HD catheter removed
7/2009Switched to Liberty cycler            4/2018Transplanted at UCLA!
kevinswife
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« Reply #7 on: December 02, 2011, 04:00:45 PM »
My hubby had a kidney / pancreus transplant at UCLA in 1999.  I don't know how far you live from UCLA, but this info may be helpful to you:  At the time of his tansplant, we lived in Orange County.  After he was released from the hospital, he had to go in for blood work every day for a week or so.  The insurance paid for him to stay at Tiverton House (kind of like a hotel for patients) across the street for the hospital.  They even had a shuttle that took him to and from the transplant clinic.  It saved me from missing work to drive him to UCLA every day.

Best of luck to you. 

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Wife and care partner to Katonsdad. 
May you rest in peace my dear husband.
boswife
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us and fam easter 2013
« Reply #8 on: December 02, 2011, 07:44:31 PM »
hey Restorer,, even better   :2thumbsup;  ;D   I will be so very happy for you..
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
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