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Cordelia
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Posts: 2012
« Reply #25 on: October 16, 2011, 10:14:20 AM »
Hi Noob, Thanks for the idea!    :2thumbsup;     :thumbup;    I've never heard of that! Sounds pretty yummy!
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
The Noob
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« Reply #26 on: October 16, 2011, 04:05:17 PM »
well it was by accident i did this. had read can substitute for potatoes. but they turn slight orange when cooked and sweet. i actually prefer them to taters. they are good.  :cuddle;
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Cordelia
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« Reply #27 on: October 16, 2011, 05:29:55 PM »
Sometimes "stumbling" across something by accident can turn out to be the absolute best!    :thumbup;
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Whamo
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« Reply #28 on: November 04, 2011, 05:05:22 PM »
I get it.  This weekend I visit my 87-year old mother and my sister at the beach house.  My mother's favorite activity when we visit is to go out to eat.  I hate restaurants because of the temptation to break my diet.  What makes it worse is my mother always asks the same questions.  Can you eat this?  That?  The other?  Tuesday I go to Disneyland, and I had planned to cheat.  But I have changed my mind.  We get labs taken near that day, and I want to keep my numbers in the target zone.
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Cordelia
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« Reply #29 on: November 06, 2011, 04:19:54 AM »
I hate it when people in my family asking me that question over and over again, too.  It happened to me lastnight: Can you have popcorn?     ::)
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
tbarrett2533
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Me licking my kidneys from my birthday kidney cake
« Reply #30 on: November 06, 2011, 08:57:51 AM »
I consider myself very lucky here in this department.....  :2thumbsup;

it does not bother me that people eat 'forbidden' foods around me.....

this is not their disease, its mine and I say you only live once.........  :2thumbsup;

now, if it really bothers you, what I would do (and I have done/do) when someone is eating something that is unhealthy let them know how unhealthy it is for their kidneys, but it really does not bother me what other people eat. I can not ask others to make exceptions in their diets for my disease (especially when you are eating out......someone should not have to make exceptions just for you, that's crazy, family or not ESPECIALLY when eating out!!  I can tell you, If I was eating out with a vegetarian and all they eat is tofu I sure ain't gunna eat that crap, nor will they Expect me too either
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CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
Cordelia
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Gender: Female
Posts: 2012
« Reply #31 on: November 06, 2011, 10:46:20 AM »
 :rofl;     :rofl;   Nobody will catch me eating tofu, either! LOL! 
Logged
Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
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