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Author Topic: My Son is in the clear!  (Read 2064 times)
Cordelia
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« on: October 26, 2011, 05:44:48 PM »
 :bow;     :bow;    :bow;   I am so relieved, I found out this afternoon that my son's ultrasound on HIS kidneys, was normal. At this point, he has no cysts on his kidneys, I was super happy to hear that. It was such good news! (I was getting frustrated tryiing to find out from his paediatrician whether or not his test results were normal and they were. He had the xray way back in Aug)    ::)   

I found out yesterday that my one twin daughter has inherited my PKD gene.     :(   :'(     :(    :'(
« Last Edit: October 26, 2011, 06:22:25 PM by Cordelia » Logged
Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Annig83
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« Reply #1 on: October 26, 2011, 06:16:41 PM »
That's great news about your son, not so good news about your daughter, but at least you found out early right?  What are they reccommending? Or is there like a 50% chance even though she has the gene, that it will pass on without affecting her?  (I don't know much about genetics). 
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*~Annie~*
Any change, even a change for the better, is always accompanied by drawbacks and discomforts.
Arnold Bennett
Even though I have gone through so much with ESRD, my son is my inspiration to keep going.  He was delievered at 28 weeks weighing 1 lb 12 oz and today he is a fun-loving 1 year old, whom I love with all my heart!

Diagnosed with Nephrotic Syndrome Age 13- 1996 Unknown Cause. 35% functioning of both kidneys.
Stable until Age 27; complications with pregnancy, loss of 25% function. (Current functioning is between 5-7%).
December 3, 2010- PD Catheter Placed on Left Side
March 2011- PD Catheter Removal (Due to malfunction)
April 2011- PD Catheter Placement on Right Side
April 2011- Surgery to adjust Catheter and "tacking of fatty tissue"
May 2011- CCPD Started
October 2012- Infection of PD catheter.  PD Cath. removal surgery. Perma-Cath. Placed for Hemodialysis.
Hemodialysis started October 12, 2012.
January 16 2013- First Fistula
On Transplant List in Indiana, awaiting 1st Transplant at IU Health in Indianapolis.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #2 on: October 26, 2011, 10:30:49 PM »
 :2thumbsup; :2thumbsup; :2thumbsup; :2thumbsup; :2thumbsup; :2thumbsup; :2thumbsup; :2thumbsup; :2thumbsup; :2thumbsup; :2thumbsup; :2thumbsup; :2thumbsup; :2thumbsup; :2thumbsup;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Jean
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« Reply #3 on: October 27, 2011, 12:27:13 AM »
Boy, talk about the good news and the bad news. Happy about your son, not so much for your daughter. But, hey, if she needs a transplant, she has a twin.
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One day at a time, thats all I can do.
MooseMom
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« Reply #4 on: October 27, 2011, 09:26:27 AM »
Finally, a bit of good news for you.  :cuddle;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
willowtreewren
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My two beautifull granddaughters

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« Reply #5 on: October 27, 2011, 09:28:03 AM »
Good news that you needed to hear!  :2thumbsup;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Cordelia
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« Reply #6 on: October 31, 2011, 12:55:44 PM »
Thanks so much, everyone, for your best wishes, you all are so very sweet and kind, thanks!!!    :grouphug;      :waving;
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
lmunchkin
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"There Is No Place Like Home!"
« Reply #7 on: October 31, 2011, 01:30:43 PM »
Love it Cordelia.  Wonderful to hear about your son!

lmunchkin
 :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Cordelia
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« Reply #8 on: November 01, 2011, 10:32:36 AM »
Thanks so much, lmunchkin!    :cuddle;
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
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