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Author Topic: Irrational Fears  (Read 2993 times)
ToddB0130
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« on: October 22, 2011, 03:52:41 PM »

Has anyone else developed any irrational fears the longer you've been dealing with your illnesses ?

I have.  I am 47 years old and over the past two years,  I've developed real anxiety about driving.  DRIVING.  Something I've done for nearly thirty years.  In the same car I've had for 15 years (I've never been one to 'keep up with the Jones' .... my car just gets me where I need to go) and having driven that car for nearly 150,000 miles (it's a Honda Accord .... they don't die).

It's crazy and I do talk about it with my psychologist.  My own self diagnosis is that it is all about feeling out of control about my illnesses.  (when the anxiety overcomes me,  my mind is racing about my ability to control my car ....it's not about the crazy drivers around me, etc, etc).  When I last talked to my psychologist about it,  he said much of it is about WHERE I'm driving (i.e.,  I've driven into center city Philadelphia a thousand times,  but I also drive that route when seeing some of my doctors and my kidney transplant team).

I try really hard to overcome it,  but fear it is overwhelming me and I might lose the battle.  I'm not housebound by any means and I do work hard to 'suck it up' .... I have mantras I try to use,  I psych myself up (by looking amy my odometer and telling myself I've never had an accident in 30 years)  ..... but sometimes when it hits,  its nearly paralyzing. 

Friends have been great and understanding.  They'll coome to visit me more and will often drive when we're going some distance.   It's a weird thing and I don't know 'the cure'.  My psychologist says the best thing to do it to keep driving and not let the anxiety beat me.  Instead I sometimes sit herre and think about checking into public transportation, (my family leaves 80 miles away, one way .... so that's really not feasible)

Besides having better health,  my biggest wish is to have a driverr at my beck and call.

Anyone else have a similar irrational fear or any advise on dealing with it ??  THANKS SO MUCH.   I really am so happy to have found this board.
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MooseMom
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« Reply #1 on: October 22, 2011, 07:46:59 PM »

I have to say that all of my fears have been very much based in rationality.  I don't need to create any more, thank you very much.

I've always suspected that trauma like chronic illness magnifies your fundamental personality, so if you are by nature an anxious person, chronic illness will probably make you more so.

May I ask...you've alluded to having several illnesses.  Would you mind very much telling us more about what these might be?  CKD is hard enough without having other medical issues to cope with. :cuddle;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
gothiclovemonkey
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« Reply #2 on: October 22, 2011, 07:53:17 PM »

i wwould have to agrree that it does cause me to have more "tics" than i used to, could be knowledge, or age, wisdom idk but seems im more of a nutbag than i was a few years ago
forgive my spelling errors and if this make no sense as i am drugged, perhaps i should stop posting heh
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"Imagine how important death must be to have a prerequisite such as life" Unknown
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Riki
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« Reply #3 on: October 22, 2011, 09:05:46 PM »

I have what I call a paranoid voice, and it lives in my head.  I've only had it for a few years, I think.  I don't remember having it before the last 2 years or so.  It tells me things about the people I love, mostly that they have ulterior motives for the things that they do.   For the most part, I can ignore the voice.  The things that it tells me can sometimes be so ridiculous, it's easy to ignore, but it has gotten me in trouble a few times
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
rsudock
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will of the healthy makes up the fate of the sick.

« Reply #4 on: October 22, 2011, 11:34:47 PM »

I find the older I get the more I have to lose and in general more scared...but I have always had extreme fear about death!!! I would have episodes as a child and cry and cry to my siblings....I am sure it had to do with ESRD...


xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Riki
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« Reply #5 on: October 22, 2011, 11:47:45 PM »

Death is something I don't fear.  I don't welcome it either, in case you're wondering..

When it comes to death, the only fear I have is of dying before my parents do. I really don't want them to have to bury me.
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
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HD - Dec 2008-present
rsudock
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will of the healthy makes up the fate of the sick.

« Reply #6 on: October 23, 2011, 07:14:01 AM »

Death is something I don't fear.  I don't welcome it either, in case you're wondering..

When it comes to death, the only fear I have is of dying before my parents do. I really don't want them to have to bury me.


My mom has a life insurance policy....I hate to say this, but she has already planned to cash in on me!
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Cordelia
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« Reply #7 on: October 23, 2011, 07:34:09 AM »

Meditation can sometimes help. Breathing slowly, meditating, can really help. I suffered from post-traumatic stress disorder after a car accident and I had a huge fear of driving afterwards for months. My phychologist helped me to overcome my fears by doing breathing excersises.
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
texasstyle
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« Reply #8 on: October 23, 2011, 07:40:47 AM »

I am not on D, but a caregiver. I did experience the same thing as yourself when I was battling through something in my life. The feeling of not being in control. It was horrible. Anxiety was soooo bad. I felt a constant weight of the world. The constant what if's, and not knowing. The horrible feeling of having no control. As a person with kidney failure these mental issues probably feel worse than mine did. When I think of others like you, I wonder how they really feel deep inside. It must be scary. One thing I have learned on my crazy journey through life is that there is only today. And that goes for everybody. As I age, I am coming to terms with the fact that death comes in every life. Anxieties are complicated and sure you have discussed them with your Dr/Physc. Sometimes certain anxieties are panic disorders like maybe you're talking about with the driving. The mind is a mysterious thing huh?   We can't always change things, we can find ways to "manage" them differently.
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caregiver to husband using in-center dialysis 4 years
kitkatz
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« Reply #9 on: October 23, 2011, 06:18:49 PM »

I get the oddest ideas in my head sometimes.
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

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Take it one day, one hour, one minute, one second at a time.

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Riki
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« Reply #10 on: October 23, 2011, 06:49:34 PM »

Meditation can sometimes help. Breathing slowly, meditating, can really help. I suffered from post-traumatic stress disorder after a car accident and I had a huge fear of driving afterwards for months. My phychologist helped me to overcome my fears by doing breathing excersises.

My best friend uses breathing and meditation.  She's also suggested yoga to me
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
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