I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
October 16, 2024, 05:19:08 AM

Login with username, password and session length
Search:     Advanced search
532606 Posts in 33561 Topics by 12678 Members
Latest Member: astrobridge
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Dialysis Discussion
| |-+  Dialysis: General Discussion
| | |-+  back on the Merry Go Round again		 0 Members and 1 Guest are viewing this topic. « previous next »
Pages: [1] Go Down Print
Author Topic: back on the Merry Go Round again  (Read 2651 times)
billybags
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2190
« on: October 12, 2011, 11:41:01 AM »
For the last 3 weeks my husband has seemed really well. After months of being ill, not eating, losing weight and generally feeling crap he has started to pick up. weight up, eating better but here we are again on the merry go round. His lungs are filling with fluid again and he feels no how.To-morrow he has to go and get his lung tapped again. We know he has a bad heart and there is nothing they can do, even the cardiologist has discharged us, I think they are waiting for him to have another heart attack and good bye Vienna. It is so frustrating because he try's so hard. This is a shitty disease. Sorry for moaning.
Logged
MooseMom
Member for Life
******
Offline Offline

Gender: Female
Posts: 11325
« Reply #1 on: October 12, 2011, 11:52:13 AM »
I apologize for not knowing the answer to this, but which came first, the bad kidneys or the bad heart?

You are right..this is a shitty disease.  Can't put a spin on that.   :cuddle;
Logged
"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
willowtreewren
Member for Life
******
Offline Offline

Gender: Female
Posts: 6928


My two beautifull granddaughters

WWW
« Reply #2 on: October 12, 2011, 12:01:20 PM »
 :grouphug; :grouphug;

Billybags. You need this hug!

I wish there were something to do. I'm glad he has been feeling some better, but not that he is going down again.

 :grouphug; :grouphug;

Aleta
Logged
Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
thegrammalady
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3788
« Reply #3 on: October 12, 2011, 12:22:13 PM »
not a single one of us has a problem with you moaning! we just wish things would go better for you, i too don't have any answers, just hugs!
 :cuddle; :cuddle; :cuddle;
Logged
s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
monrein
Member for Life
******
Offline Offline

Gender: Female
Posts: 8323


Might as well smile
« Reply #4 on: October 12, 2011, 02:31:59 PM »
 :grouphug;  I do wish things weren't so tough for you both.
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
jbeany
Member for Life
******
Offline Offline

Gender: Female
Posts: 7536


Cattitude
« Reply #5 on: October 12, 2011, 03:16:05 PM »
 :grouphug;
Logged
"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
looneytunes
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2071


Wishin' I was Fishin'
« Reply #6 on: October 12, 2011, 03:19:05 PM »
Aw BB...the Merry Go Round does go round, doesn't it? Just when it seems things are getting a little better, well..here we go again.  My prayers are with you my friend.   :cuddle;
Logged
"The key to being patient is having something to do in the meantime" AU
boswife
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2644


us and fam easter 2013
« Reply #7 on: October 12, 2011, 03:51:16 PM »
this stuff is so hard.  I really feel for you,( and him of course) as i do know your spot.  It hurts  :'(   My hubby too just reciently had the 'tap' and seems to be doing well with it but who knows. We'er all in limbo it seems.   I will ask.............. because of hemo, we can take extra fluid off during sessions and keep it off a bit easier than with PD.  Is that right? Would it be of any benifit to go hemo? We are right now having tests done to see if it's more heart, or kidney that caused that need for the tap.    All in all, i feel so bad for where you are with this and can only pray for some answers and healing of sorts for you both.  I have needed to vent myself but not had the energy to do so :(  (looking a bit up now though)    :grouphug;
Logged
im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Rerun
Member for Life
******
Offline Offline

Gender: Female
Posts: 12242


Going through life tied to a chair!
« Reply #8 on: October 12, 2011, 04:41:33 PM »
As long as he is trying, then they need to try.  Kick some butt next time you are alone with one. 

            :Kit n Stik;
Logged
natnnnat
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1281


WWW
« Reply #9 on: October 12, 2011, 05:57:06 PM »
 :(
 :grouphug;
It really is so unfair.
Logged
Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
billybags
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2190
« Reply #10 on: October 13, 2011, 05:33:14 AM »
Thanks for your concerns gang, I was really feeling pissed off when I posted yesterday. He went and had his tap this morning and every thing went OK his breathing is a little better and they said it would be an on going problem. They think as we do that it is his heart not pumping enough but they are also testing to see if it is a leak from his peritoneum, heaven forbid because his heart is not strong enough to do hemo.His heart was fine, well we surmised it was, before he started dialysis 3 years ago and since then he has had 2 heart attacks which weakened it.To-day is another day, so I will get on with it.Once again thanks, I know I can come here and moan away.
Logged
Bajanne
Member for Life
******
Offline Offline

Gender: Female
Posts: 5337


Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #11 on: October 13, 2011, 04:39:25 PM »
That's what this place is for!!!  Here's a hug from me to you- :cuddle;
Logged
"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
del
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2683


del and willowtreewren meet
« Reply #12 on: October 13, 2011, 05:52:49 PM »
 :grouphug; :cuddle;
Logged
Don't take your organs to heaven.  Heaven knows we need them here.
Pages: [1] Go Up Print 
« previous next »
 
Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!