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Author Topic: My first PET test results are in!!!  (Read 6036 times)
tbarrett2533
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Me licking my kidneys from my birthday kidney cake
« on: October 05, 2011, 05:08:47 PM »
I had my first PET test Thursday and today I met with my Neph to go over the results and this is what he said:

1.  Creatinine and Urea are being removed!!!!   :bandance;
2.  I do not absorb
3.  I can continue to fill with 2000ml, 4 exchanges (CAPD) with the last exchange of the day being green, but I can choose whatever I want(yellow's Green's) for the remainder of the day just to keep my weight & BP in check.

He then looks over my labs which are PREFECT  :angel; has Mandy check my BP, Pulse, Weight, listens to my lungs, checks my ankles then says, "Well I can't seem to find anything wrong with you."   :2thumbsup; :yahoo; :clap; :bandance;

Next clinic visit is 10-19-11!!!!!!!!!!!

They (the D staff and Techs) when I was doing in-center hemo used to call me the "dialysis princess"  I think I will rename myself the Peritoneal Dialysis princess  :flower;
   
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CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
drgirlfriend
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« Reply #1 on: October 05, 2011, 06:14:19 PM »
 :yahoo;

All Hail the PD Princess!!!    :bow;
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Boyfriend diagnosed with renal failure Feb. 2011. Cause unknown.
PD Catheter "installed" June 30, 2011.
Began CAPD August 11, 2011.
On transplant list 11/23/11.
Started Liberty Cycler 12/1/11.
mcclane
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« Reply #2 on: October 06, 2011, 08:06:02 AM »
congrats !!  :2thumbsup;
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wbdoug
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« Reply #3 on: October 06, 2011, 08:12:25 AM »
I am so glad to hear that. With all the problems you were having, it’s great that everything is pulling together so well. LONG LIVE PD! I was rooting for you all the way.
I do my first PET test on Friday. I hope I my results come out as good as yours.

Bill
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8/3/2011 PD Cath installed
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tbarrett2533
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Me licking my kidneys from my birthday kidney cake
« Reply #4 on: October 06, 2011, 10:02:32 AM »
Quote from: wbdoug on October 06, 2011, 08:12:25 AM
I am so glad to hear that. With all the problems you were having, it’s great that everything is pulling together so well. LONG LIVE PD! I was rooting for you all the way.
I do my first PET test on Friday. I hope I my results come out as good as yours.

Bill

Me too Bill!! good luck
and as always remember to post your results so all of us nosy Dialysis patients can keep tabs on you!!   :rofl;
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CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
billybags
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« Reply #5 on: October 06, 2011, 10:47:27 AM »
So pleased for you. You must be doing all the right things,well I hope you are.
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willowtreewren
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« Reply #6 on: October 06, 2011, 04:07:28 PM »
 :2thumbsup; :2thumbsup;

Great news! Keep doing whatever you are doing!  :clap;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
HouseOfDialysis
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« Reply #7 on: October 06, 2011, 06:30:09 PM »
Woot!

I hope you continue the reign as PD Princess!

All Hail The Princess!
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Diagnosed with Alport Syndrome in 2004.
AV fistula surgery June 9th, 2010.
PD Catheter surgery February 7th, 2011.
Began CAPD on February 21st, 2011.
Began CCPD on April 29th, 2011.
On Transplant List since June 2010.
tbarrett2533
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Me licking my kidneys from my birthday kidney cake
« Reply #8 on: October 06, 2011, 11:34:30 PM »
Thank you, thank you, thank you
the PD princess is leaving the building  ;D
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CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
Joe
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« Reply #9 on: October 07, 2011, 05:49:32 PM »
That is super news! I do my first CCPD PET test next week. Hoping I'm somewhere as good as yours were.
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tbarrett2533
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Me licking my kidneys from my birthday kidney cake
« Reply #10 on: October 07, 2011, 10:23:25 PM »
Quote from: Joe on October 07, 2011, 05:49:32 PM
That is super news! I do my first CCPD PET test next week. Hoping I'm somewhere as good as yours were.

Good luck Joe!!!! :2thumbsup;

Be sure to post your experiences right here for all of us to see!!!!

 :grouphug;
Logged
CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
wbdoug
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« Reply #11 on: October 12, 2011, 01:20:51 PM »
Here are the results of my first PET  test:

High average membrane = which means the cycler is the best suited treatment modality for you because your membrane characteristics :
- very efficient membrane
-transports solutes quickly
- increased glucose concentration
- may have difficulty achieving ultrafiltration ( fluid removal ) especially on a long dwell ,being absorb by your body and that's where fluid gain comes in
- at risk for low serum albumin.

Apparently I’m filtering too good (a good thing?) because my phos went  from 4.1 to 2.6, potassium is down to 3.3 and my albumin went from 5.1 to 3.6.

Guess I’m going to have to stock up on more beer cheese and meat :beer1;
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8/3/2011 PD Cath installed
Life keeps interfering with my plans
tbarrett2533
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Me licking my kidneys from my birthday kidney cake
« Reply #12 on: October 14, 2011, 10:49:54 PM »
Quote from: wbdoug on October 12, 2011, 01:20:51 PM
Here are the results of my first PET  test:

High average membrane = which means the cycler is the best suited treatment modality for you because your membrane characteristics :
- very efficient membrane
-transports solutes quickly
- increased glucose concentration
- may have difficulty achieving ultrafiltration ( fluid removal ) especially on a long dwell ,being absorb by your body and that's where fluid gain comes in
- at risk for low serum albumin.

Apparently I’m filtering too good (a good thing?) because my phos went  from 4.1 to 2.6, potassium is down to 3.3 and my albumin went from 5.1 to 3.6.

Guess I’m going to have to stock up on more beer cheese and meat :beer1;



GREAT!!!
but please don't get to crazy with the cheese, throw in some milk and let us not forget about the peanut butter  :bandance; ;D
Logged
CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
JLM
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« Reply #13 on: October 15, 2011, 12:49:25 AM »
My PET test is on Tuesday.  Looking for a book to study up on it.    :boxing;
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I'm just where God wants me to be, not one step ahead nor one step behind.
wbdoug
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« Reply #14 on: October 15, 2011, 09:40:47 AM »
Quote from: JLM on October 15, 2011, 12:49:25 AM
My PET test is on Tuesday.  Looking for a book to study up on it.    :boxing;

I think it's called the book of life.

Bill

P.S. I hope it goes as good for you as it did for tbarrett and myself, good luck.
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8/3/2011 PD Cath installed
Life keeps interfering with my plans
tbarrett2533
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Me licking my kidneys from my birthday kidney cake
« Reply #15 on: October 15, 2011, 08:33:49 PM »
Quote from: JLM on October 15, 2011, 12:49:25 AM
My PET test is on Tuesday.  Looking for a book to study up on it.    :boxing;

Be sure to post your results here  :2thumbsup;

also,

some advice.....ask 300 questions and there is no need to study up  ;D

good luck!!!!!
Logged
CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
MooseMom
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« Reply #16 on: October 15, 2011, 08:36:33 PM »
I don't know anything about PD, but congrats to you all!  Outstanding! :2thumbsup;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
tbarrett2533
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Me licking my kidneys from my birthday kidney cake
« Reply #17 on: October 15, 2011, 08:51:00 PM »
Quote from: MooseMom on October 15, 2011, 08:36:33 PM
I don't know anything about PD, but congrats to you all!  Outstanding! :2thumbsup;

thank you.....
basically what it means we (or at least I am) totally stoked that I got rockin membrane and I do not absorb and I am getting a good dialysis treatment!!!!!!!!!!!!!!! :bandance;  ;D
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CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
MooseMom
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« Reply #18 on: October 15, 2011, 10:13:23 PM »
Huzzah for rockin' membranes!!!  :yahoo; :yahoo; :yahoo;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
tbarrett2533
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Me licking my kidneys from my birthday kidney cake
« Reply #19 on: October 16, 2011, 02:27:40 PM »
Quote from: MooseMom on October 15, 2011, 10:13:23 PM
Huzzah for rockin' membranes!!!  :yahoo; :yahoo; :yahoo;

LMAO!!!! :bandance; ;D :rofl; :rofl;
Logged
CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
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