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Author Topic: Lonely People???  (Read 3288 times)
gaelicdevil
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« on: October 14, 2011, 05:37:06 PM »

Anybody else out there who can't stand the emptiness? Never knew I was my job until they took it away. My body has betrayed my mind. Can't do any of the things I used to love. Never married, no one to talk to. The people at HD don't come home with you. The nights are endless. Is there a website where you can chat to people? Not Facebook. I want to talk to people I don't know. Never been so lonely in my life....
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Type 1 diabetic, fistula October 2010, Hemodialysis January 2011, triple by-pass heart surgery November 2011, hoping for transplant, O negative, universal donor, still breathing.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: October 14, 2011, 09:04:00 PM »

Anybody else out there who can't stand the emptiness? Never knew I was my job until they took it away. My body has betrayed my mind. Can't do any of the things I used to love. Never married, no one to talk to. The people at HD don't come home with you. The nights are endless. Is there a website where you can chat to people? Not Facebook. I want to talk to people I don't know. Never been so lonely in my life....

I don't know how to help but I want you to know I am willing to listen. Life can really suck sometimes. Chronic illness can be all consuming if you've got nothing to look forward to. Is there any chance of getting a transplant? Do you have any family you can spend time with? I know people sometimes find others to talk to on yahoo chat http://www.ehow.com/how_2032804_join-yahoo-chat.html or yahoo messenger chats http://messenger.yahoo.com/features/chatrooms - I don't know how well they work but it's free and you can find similar interests. Take care.  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
cariad
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What's past is prologue

« Reply #2 on: October 15, 2011, 03:44:41 PM »

I have felt the loneliness you describe in the past. It is just about the worst feeling in the world. I too am happy to listen if it would help.

People seem to like Chat Roulette. Is that still going on? I don't know if you've tried it. I have not, but from what I've heard, it does require a sense of humour about it as there is a high perv content on there. But with a simple click, that person is gone forever and you spin the wheel again. Perhaps not the best option when you're in a low place, however.

Sorry, I really know next to nothing about chat spaces, but feel free to PM me if you want to vent. I hope IHD can get its chat room up and running again, as I know many people looked forward to interacting with other members in real time. Please keep posting here and let us know how you are getting on.  :grouphug;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
monrein
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Might as well smile

« Reply #3 on: October 15, 2011, 04:04:17 PM »

IHD itself is a pretty good place to come and "talk"/type about how you're feeling.  Usually someone can relate and will chime in and, at the very least, you can release the feelings out there so they may not feel quite as burdensome.   :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Riki
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« Reply #4 on: October 15, 2011, 04:09:06 PM »

I use IHD a lot for venting and company.. I don't live alone, but I do spend a lot of time on my own..  You'd never know it, but I"m incredibly shy.  I'd never be able to talk to anyone I didn't know.  I find it much more comforting to come here, as after a short bit of time, those strangers you were posting to are no longer strangers
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
tubes
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Miss you so much Susie. Will always <3 you!

« Reply #5 on: October 15, 2011, 06:01:04 PM »

I feel that way quite often. I immerse myself in online games which helps me out.

I spend a lot of time playing MMORPG's. (Massively Multiplayer Online Role-Playing Game) I look through the forums

for a good guild to join, one that has a voice chat program.  Something like Mumble, Ventrilo or Team Speak. It

makes socializing while playing so much easier. I've met a lot of really cool people from all over the world. Or XBL

can be quite fun. (Xbox Live) I'm such a dork. I love gaming!

Even with all of that - I still get pretty lonely. Talking with people is one thing, but the physical contact is

something I miss. It's been 3 years since I broke up with my bf. I haven't been on a date since.

The different messenger programs are pretty nice. Lets see, Yahoo Messenger, (which was already mentioned)

Aim and MSN Messenger are the ones I know of. You can find different chat rooms. You just have to watch out

for the pervs. So if you ever run into me in one of those - run in the opposite direction.  ;)  IHD has a chat room.

Can be quite fun. But it's been awhile since I've been here. So not sure if it is even used anymore. 

Take care. You'll always find someone here to talk with.   :grouphug;
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"To be happy is the choice I wish to make in spite of the circumstances that are strewn in my path."

1996 - started incenter hemo
a few months later, started PD
2005 - started incenter hemo
AGAIN
  - on transplant list as of August 7, 2009.
2011/June - 15 years on "D"
Transplant - Tuesday October 18th 2011
gothiclovemonkey
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« Reply #6 on: October 15, 2011, 06:41:41 PM »

 :grouphug;

i feel like this alot, single, never married, i have my son, but that isnt exactly conversationalist there lol
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
TX listed 8/1/11 inactive
LISTED ACTIVE! 11/14/11 !!!
billybags
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« Reply #7 on: October 16, 2011, 09:58:21 AM »

gaelicdevil. where to start. First of all   :welcomesign; I haven't read your info, but from your profile you are a fellow. What type of dialysis are you doing? Do you go to a unit or are you doing it at home. Yes, we all get lonely at times, I would hate to be on my own, but people do not come to you, you have to make an effort your self to go out and meet people. There must be some kind of club, church activities, I know you are ill but what do you enjoy doing? Get out there and try some thing.Sounds harsh I know and it is not easy. I volunteer to help school children reading, going into school with all the chit chat  gives you a great sense of worth.
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kellyt
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« Reply #8 on: October 16, 2011, 10:28:13 AM »

 :cuddle;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
cariad
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What's past is prologue

« Reply #9 on: October 18, 2011, 06:53:23 PM »

I really wish you would check in, gaelic. Hope you're feeling a little happier now. Let us know how you're getting on.  :grouphug;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
RichardMEL
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« Reply #10 on: October 19, 2011, 01:12:58 AM »

GaelicDevil - let me tell you something - you're NOT alone.

You might be physically alone but emtionally hopefully you're not. You're part of IHD and people here care.

Sure if you want random chat to forget things go find chat roulette or yahoo or whatever. I would say that folks on here though are very caring and understanding - and as mot of us can relate in one way or another to some of the stuff you have to deal with I feel you could get a lot of support right here (as others have said). You've taken the first step by posting. Look al the responses - people who relate and people offering suggestions. IHD is like that.

Personally I use the place to chat up girls - then I find out they're all married  :rofl; So I faked my own just to join in!!!  >:D

Hang in there. Like I said - you might *feel* alone, but as part of our community you're not.
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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