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kitkatz
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« on: October 02, 2011, 05:30:27 PM »

For the first time in almost thirteen years I have been invited to a Care Plan meeting with the Docs and team at the dialysis center.  Anything I should ask? I hope I am not being set up for a bad session with these people.  I had to tell them to give me a time when I was NOT working.  They tried for 10 a.m.   I snarled over the phone that I worked 6:45a.m. to 2p.m. and needed a better time.  Geez!  They finally came up with 6:30p.m. Wednesday.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
texasstyle
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« Reply #1 on: October 02, 2011, 06:53:17 PM »

I'm not sure sure what this Care plan is but it sounds like you maybe meet with the Dr.s/techs at your unit to discuss your "case"?  It sound slike something that can have a great outcome if so. I don't think they do that at our center.
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caregiver to husband using in-center dialysis 4 years
billybags
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« Reply #2 on: October 03, 2011, 06:02:47 AM »

That sounds like a good idea. Are you seeing other doctors for other things .Is it to tie every thing together. Our Neph is our main care person.The other specialists we see have to confer with him before they can do any thing, which I think is good.
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pklipe57
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« Reply #3 on: October 03, 2011, 09:44:37 AM »

It sounds like it would be a great thing.  Just for once I would like to have a meeting with anyone that was not while I am in the middle of my treatment with the world listening. 
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Jean
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« Reply #4 on: October 03, 2011, 12:07:50 PM »

Dont know a thing about it Kit, but sincerely hope you post after your meeting and let us know what is up
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One day at a time, thats all I can do.
Cordelia
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« Reply #5 on: October 03, 2011, 12:22:18 PM »

What is a care plan?

Good luck   :)
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
MooseMom
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« Reply #6 on: October 03, 2011, 12:32:13 PM »

They're having this meeting with you after thirteen years?  Geez.  On the one hand, I'd be a bit paranoid that yes, they're setting me up for something bad.  On the other hand, maybe they have made the effort (or had to follow some new Medicare mandate) to review everyone's case with the patient in attendance.  On my third hand, I'd take the opportunity to have my say, either negative or positive, and address any issues that had been bugging me.  Then, I'd run out of hands.

You simply MUST come back and tell us about this meeting because I'm mighty curious!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
msrosefromms
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« Reply #7 on: October 03, 2011, 12:34:23 PM »

Every month at my regular appointment with my neph, I am given my plan of care to read and sign off that it was given to me to read. There are notes from the dietician, social worker and my D nurse. They each say what I need to do this month, such as eat more protein, take my binders and it may say continue EPO to build up my HG. I was told the monthly plan of care was required.
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Less than 15% kidney function Oct 2009
1st PD Catheter July 2010
2nd PD Catheter Aug 2010
Started PD Oct 10 on Baxter Home Choice
Had to switch to Liberty Cycler Apr 2011
Subeat
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« Reply #8 on: October 03, 2011, 12:35:07 PM »

I can't speak for everyone's experience, but we went over my "care plan" last month.  The dietician and social worker had asked me several questions regarding this plan in the weeks before.  Basically, all it consisted of were all of those involved in my care going over my case, and what actions were being taken.  It took just a few extra minutes over the usual neph visit, at the end of my treatment for all to hear if they were interested.  I did have to sign off on having the discussion "publically" as well.  We just went over labs, prescriptions, diet, and any adjustments that needed to made. 
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MooseMom
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« Reply #9 on: October 03, 2011, 12:40:03 PM »

I personally would welcome any review/care plan once I start D.  I intend to keep everyone on their toes, and I intend to lay down the law and make sure the clinic staff are compliant.   :2thumbsup;  They're not going to be able to pin "non-compliance" on me, rather, I'm going to make sure that THEY are the ones who are compliant.  I saw how my mother's clinic treated her; they weren't awful, but I don't think they were particularly pro-active.  She was older and rather frail, and I think they did the bare minimum for her, and she didn't question anything.  I'm not my mom.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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