can't seem to get phos under control

[sullidog]

I seem to be having a problem getting my phos down to normal levels. I thought it would of been under control this month but it was a 6.7. I'm not sure why I keep having these issues. I take 5 renvela with every meal and take my renvela with snacks as well. I haven't eaten any pizza, chese, icecream, nuts, peanut butter, and stuff like that this month. No dairy either. My calcium seems to be on the high side as well of 10.2. I don't understand how my phos can't be lower then 6.7. Any suggestions to help me better lower my phos? I'm taking my binders before meals, about a minute or 2 before as instructed by my neph and dietition.
This is frustrating me!

[Pam]

Geez...that sounds like an awful lot of binders. I take 3 phoslo with meals and mine was 2.9 for last month. Maybe they need to put you on a different binder. My only suggestion would be, is keep a food journal. Write down everything you eat for a few days and give it to the Dietian. Maybe you are eating something that is higher phos than you think. Good luck.
Pam

[brandi1leigh]

I have to take 6 binders per meal. So I totally understand. Do you eat a lot of prepackaged foods? Things like frozen dinners, fast food, etc have phosphorus added to help keep them "fresh." My dietitian gets on my case for eating prepackaged food, but I just don't have the energy to make a home cooked meal every night.

[Marina]

How's your  IPTH?     
If  phos  and  calcium  are  high,  there's  a good  chance your  PTH  level  is  elevated  as  well.   
As  soon  as  that  get's  controlled  it  will  make  a difference on    both  Phos  and  Calcium levels.

But,  like  brandi1leigh  mentions.   if you're  eating    prepackaged  and/or  frozen   foods  your  levels  will be  out of  whack.

Take care!   

Marina 

[Quickfeet]

my neph told me a high pth will drive your phos up.

[sullidog]

I do eat a lot of precooked foods because I'm blind and don't know how to cook all that well. I've been doing this though for 2 years and never had a problem til now, hmmm just guess I got lucky? What would you recommend for someone that has to do this because they can't cook very well? Is there a binder that will work better then the other? My PTH is 200 something.

[brandi1leigh]

I do eat a lot of precooked foods because I'm blind and don't know how to cook all that well. I've been doing this though for 2 years and never had a problem til now, hmmm just guess I got lucky? What would you recommend for someone that has to do this because they can't cook very well? Is there a binder that will work better then the other? My PTH is 200 something.

I wish I had an answer. I'm not blind and can't cook very well. Maybe your dietitian can give you some suggestions of foods that are easy to prepare and low in phosphorus. Good luck!

[Arcticat2000]

I had the exact same problem a few years ago and i think Marina is on the right track...have your doctor check your PTH, if it's elevated he may prescribe Sensipar. That took my PTH level to normal and my Phos came down with it.  I also take 4 Renvela with every meal and snack.  My Calcium is still a little off and for that the doctor has me chew two Tums before i go to bed every night.  So the calcium, not binding to food, goes into your bloodstream to raise levels.

[sullidog]

My PTH is now 300 something,
however my neph said they just raised the protocall, not sure why and when did they do this?

[Riki]

Phosphorus is in EVERYTHING. I was surprised to see all the stuff that has phosphorus in it.  Even store bought cake donuts have phosphorus in them. Prepackaged foods are a big one, though.  I suppose it depends on how bad your vision is on whether or not you can cut down on them.  I have cataracts and no peripheral vision, but if I pay attention to what I'm doing and not rush, I can cook a meal for myself.  I just happen to be lucky enough that I live with my mom, and she can cook for me. *G*

[sullidog]

my dietition said rice chrispy treats don't have phos, but I bet the store ones do.