MJB
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« on: January 23, 2007, 11:10:16 AM » |
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I just wanted to take the time to introduce myself. My name is Mike. I am 38 y.o. I live in the far western suburbs of Chicago. I lost my kidneys from PKD. I am a home hemo patient on NxStage and Pureflow for about 9 months now. Previously I have been an in center patient and have been on PD. I started on dialysis when I was 27 y.o. I have dialyzed for about 8 years now in between 2 transplants that eventually failed and brought me here to where I am today. I have not worked in over 5 years, previously I was a sales manager for AT&T the old AT&T. I really would like to get working again but am very scared about loosing disability benefits and trying to find an employer that would put up with more than the average absences. Any ideas would be great.... I am waiting for another transplant; however I have a very high PRA and the wait seems as if it is going to be a long time. I really enjoy the freedom that home hemo allows for. I hope the long term health benefits will be as good. I am very excited to join this forum and look forward to learning and also adding to the great information that I have found on this site.
Talk to you soon,
Mike
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« Last Edit: January 23, 2007, 11:17:05 AM by MJB »
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Mike
1994-1998 CCPD
1998-2002 Transplant
2002-2004 In-Center Hemo
2004-2006 Transplant
April 2006 NxStage System One
September 2006 NxStage PureFlow
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Joe Paul
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« Reply #1 on: January 23, 2007, 11:15:40 AM » |
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Welcome Mike, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
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Sluff
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« Reply #2 on: January 23, 2007, 11:27:20 AM » |
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Welcome Mike, Glad you made it to IHD. Here you will find the resources to answer any questions that you might have along with support from like minded people. I am sure you have plenty of stories to share with the years of experience you have. If you haven't already done so you can check out the site rules here http://ihatedialysis.com/forum/index.php?board=34.0Well it's great to have you here. Sluff, Moderator |
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angela515
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« Reply #3 on: January 23, 2007, 12:27:14 PM » |
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
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Razman
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« Reply #4 on: January 23, 2007, 02:58:30 PM » |
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Welcome aboard. With 8 years of expertise (sounds better that way) it will be great to read your comments and advise.
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shay_pcb
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« Reply #5 on: January 23, 2007, 03:06:35 PM » |
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aharris2
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« Reply #6 on: January 23, 2007, 03:33:24 PM » |
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 mike n i hope u enjoy ur stay in this great place, hope to hear more from u. take care, Rolando |
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend
Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
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goofynina
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« Reply #7 on: January 23, 2007, 03:42:58 PM » |
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Hey MJB, Welcome to ihatedialysis.com, i know you will enjoy your stay here and i look forward to hearing more from you. Please dont hesitate to ask questions and post any comments and/or concerns of your own. I hope you get another transplant soon and get back to work, i havent worked in almost 4 years now and i miss it also. Here's hoping the best for ya my friend  Goofynina/Admin. |
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« Last Edit: January 23, 2007, 03:51:51 PM by goofynina »
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MJB
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« Reply #8 on: January 23, 2007, 04:18:59 PM » |
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Thank's everyone for the GREAT Welcome!!! I really like the info on this site. Talk to you soon...  Mike |
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Mike
1994-1998 CCPD
1998-2002 Transplant
2002-2004 In-Center Hemo
2004-2006 Transplant
April 2006 NxStage System One
September 2006 NxStage PureFlow
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boxman55
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« Reply #9 on: January 23, 2007, 04:22:14 PM » |
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Welcome Mike, I am sitting right above you here in Wisconsin. I am still working but thinking about stopping not sure though. Boxman55
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 "Be the change you wished to be" Started Hemodialysis 8/14/06 Lost lower right leg 5/16/08 due to Diabetes Sister was denied donation to me for medical reasons 1/2008 |
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BigSky
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« Reply #10 on: January 23, 2007, 06:37:14 PM » |
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Bajanne
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« Reply #11 on: January 23, 2007, 07:41:31 PM » |
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Welcome to our community, MJB. We are very glad to have you hear. This is the place to be if you are any connected to renal failure. This site is so full of information, caring people, interesting posts. You yourself have a lot of experience. We are looking forward to hearing a great deal from you.
Welcome!
Bajanne/Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith" I LOVE my IHD family!  |
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jbeany
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« Reply #12 on: January 23, 2007, 08:28:33 PM » |
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Welcome to IHD!
I'm hoping to go back to work when I get on the NxStage as well. I understand wha tyou mean about the worry of losing disability, but I really want to feel like I'm being productive again!
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"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality. |
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jasperkat
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« Reply #13 on: January 24, 2007, 06:07:18 AM » |
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Welcome Mike. If you are interested in returning to work and get Social Security Disability there are work incentives to help you. You can contact your local SSA to find out about them or find your local Work Incentives Planning an assistance Rep. Let me know if you need help finding this info. Good Luck, Jasperkat
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MJB
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« Reply #14 on: January 24, 2007, 07:25:01 AM » |
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Thank you...I will look into that. It might really help me make the move back into the workforce. I will attempt to find through the SSA website if I have no luck I will let you know.
Mike
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Mike
1994-1998 CCPD
1998-2002 Transplant
2002-2004 In-Center Hemo
2004-2006 Transplant
April 2006 NxStage System One
September 2006 NxStage PureFlow
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anja
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« Reply #15 on: January 24, 2007, 08:35:47 PM » |
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MJB, glad to have you here. My son and family also live in a Chitown suburb, Algonquin. Hope you enjoy sharing, adding support and asking questions on this site as much as I do!
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MJB
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« Reply #16 on: January 25, 2007, 08:52:09 AM » |
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anja, As they say....Just a stones throw away!!! Thank's for the welcome everyone. |
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Mike
1994-1998 CCPD
1998-2002 Transplant
2002-2004 In-Center Hemo
2004-2006 Transplant
April 2006 NxStage System One
September 2006 NxStage PureFlow
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kelliOR
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« Reply #17 on: January 25, 2007, 09:13:22 AM » |
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Hi Mike!
kelli
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Shoot for the Moon.....Even if you miss, you'll end up among the Stars ........
Denied PKD for years (Boy, was I good at it!)
Dragged kicking and screaming to dialysis (in center hemo)
Transplant from a friend March 24, 2006 at OHSU
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Rerun
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« Reply #18 on: January 26, 2007, 01:19:31 PM » |
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Hello Mike. MJB reminds me of when my Mom would make coffee.  Welcome to our site. Sounds like you have tried every form of treatment also. If hemo was fun everyone would be on it hua? I've been to Chicago with my x-job. Good memories but that is all I have of work. Hope you enjoy this site. You will laugh and learn. Rerun / Moderator |
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tamara
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« Reply #19 on: January 26, 2007, 04:22:43 PM » |
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Hi Mike and Good to see you here!  Catch you around Tamara xxx ooo  |
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
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angieskidney
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« Reply #20 on: January 30, 2007, 01:18:55 AM » |
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Hi Mike! |
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Zach
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« Reply #21 on: January 30, 2007, 04:46:20 AM » |
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Welcome to the community! Looking forward to your posts. |
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !! ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ No transplant. Not yet, anyway. Only decided to be listed on 11/9/06. Inactive at the moment.  I make films. Just the facts: 70.0 kgs. (about 154 lbs.) Treatment: Tue-Thur-Sat 5.5 hours, 2x/wk, 6 hours, 1x/wk Dialysate flow (Qd)=600; Blood pump speed(Qb)=315 Fresenius Optiflux-180 filter--without reuse Fresenius 2008T dialysis machine My KDOQI Nutrition (+/ -): 2,450 Calories, 84 grams Protein/day. "Living a life, not an apology." |
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nextnoel
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« Reply #22 on: February 02, 2007, 08:27:38 AM » |
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Welcome to IHD, Mike! Good to have you with us! |
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I can't reach the hill like I used to, but I'm not at a standstill yet!
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