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Author Topic: I love my husband...I hate his illnesses!  (Read 3903 times)
Nameless
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« on: August 18, 2011, 08:16:39 AM »
My name is Misty (age 30). I am caregiver to my husband Chris (age 40)and my son Jason (age 11). My husband started dialysis August 17, 2011. He has diabetic related ESRD. My son Jason is Autistic/ADHD with bipolar issues. We living in a little town called Hemet in California. We have Kaiser Permanente currently. Chris and I have been together for 12 years.
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Dannyboy
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« Reply #1 on: August 18, 2011, 08:19:20 AM »
Welcome Misty.   

 :welcomesign;

---Dan
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ESRD Summer 2011
Started using NxStage September, 2011
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Rerun
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« Reply #2 on: August 18, 2011, 08:40:30 AM »
Hi Misty.  This is a tough one.  You guys are new to dialysis.  It will get better for you.  You are overwhelmed right now.  Stick with us.  We will support you and answer your questions, which are many right now.  I'm so glad you found us.

Rerun, Moderator       :welcomesign;
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boswife
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« Reply #3 on: August 18, 2011, 08:49:06 AM »
Welcome  :welcomesign;  and Hemet... Yea!  I lived in Idyllwild in my teen years WAY BACK  :shy;  Sorry you had to come here (ie... illness) but you are in good company :)  you'll learn lots and get a lot more comfortable with 'what it is'.   :cuddle;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
MooseMom
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« Reply #4 on: August 18, 2011, 09:27:04 AM »
I've been to Hemet!  I have an aunt and uncle who lived there for a while not too long ago.  Small world.

I have a son who is autistic, so I understand the challenges.

Bet you're feeling a little overwhelmed.  Does your husband get his dialysis at home or in a clinic?

Glad you're here, and I hope we can help.  Just ask.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
billybags
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« Reply #5 on: August 18, 2011, 10:57:19 AM »
Misty, Welcome to the site.  :welcomesign; It will seem over whelming and scarey to start with but you will get use to it. You did not say what kind of dialysis your husband is on. Which ever, there is always some one on here that will be able to answer any questions you have. You are not a lone.
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monrein
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« Reply #6 on: August 18, 2011, 10:58:35 AM »
 :welcomesign;
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willowtreewren
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« Reply #7 on: August 18, 2011, 11:30:15 AM »
Hi, Misty!

You have your hands full!  :cuddle;

Welcome to IHD!

 :welcomesign;

Aleta
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Ang
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« Reply #8 on: August 18, 2011, 04:42:39 PM »
 :welcomesign;
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« Reply #9 on: August 18, 2011, 07:27:01 PM »
 :welcomesign;

You've come to the right place!

jbeany, Moderator
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Nameless
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« Reply #10 on: August 18, 2011, 09:49:14 PM »
Right now all I know is he has the neck catheter and he is still in the hospital. He is being released tomorrow but we are having problems with our insurance. They are not saying when he is getting his permanent one. He is still very ill and I am scared to have him come back so soon. Our house isn't exactly sterile. We found out he has uremia today and he has a really bad infection on his foot...I am also worried they are going to send out adult protective services again. It just upsets him...always helpful when we are transitioning him home from a hospital stay.
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MooseMom
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« Reply #11 on: August 18, 2011, 10:00:58 PM »
I'm not familiar with Adult Protective Services and with what they do?  Are they in a position to offer practical help to you?  I'm wondering if your husband is too ill to be released from the hospital.  Are your insurance problems a factor in his early release, do you think?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Nameless
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« Reply #12 on: August 19, 2011, 08:02:56 AM »
Adult protective services is suppose to protect older adults and persons with disabilities from abuse, neglect and exploitation by investigating and providing or arranging for services as necessary to alleviate or prevent further maltreatment. They have done absolutely nothing for us...they make me drug test (i have been sober for almost ten years)...they threaten to take my son...the threaten to charge me with elder abuse, but have never done anything useful. Kaiser says they can't do anything further for him right now.
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Bajanne
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« Reply #13 on: August 19, 2011, 08:38:47 AM »
Welcome to our community, Misty!  You have been given a great deal to handle at your age!  But I am always impressed with the strength of the human spirit when faced with such challenges.  Now you have your IHD family to be there for you  :grouphug;  This is an excellent place for information, support and encouragement.
 We have a lovely group of caregivers here on IHD - check out that section - supportive, caring and sharing.
Please read as much as you can, and post as much as you can.  We want to know how your husband (and you too!) is doing.




Bajanne, Moderator
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I LOVE  my IHD family! :grouphug;
Nameless
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« Reply #14 on: August 19, 2011, 06:55:54 PM »
My husband will be doing his dialysis at Davita. He is finally home. Thank the Gods. :cheer:
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MooseMom
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« Reply #15 on: August 19, 2011, 09:10:55 PM »
I'm so pleased to hear that!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
looneytunes
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« Reply #16 on: August 20, 2011, 12:29:05 PM »
Hi Misty and welcome to our group.  Glad you found us and sure hope we can help you along the way.   :welcomesign;
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"The key to being patient is having something to do in the meantime" AU
texasstyle
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« Reply #17 on: August 20, 2011, 07:01:46 PM »
I hate the illness too. It makes me angry mostly.
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caregiver to husband using in-center dialysis 4 years
Poppylicious
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« Reply #18 on: August 21, 2011, 09:50:24 AM »
 :welcomesign; Misty.  It's a pleasure to 'meet' you, although a shame about the circumstances.  I'm pleased that hubby is now home. Hopefully the insurance will sort itself out and you can start getting used to this new life living with dialysis.
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
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Everything was beautiful, and nothing hurt.
Iwannabean
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« Reply #19 on: September 12, 2011, 09:59:17 AM »
 :welcomesign; Misty, hope you can learn a lot out here.  Hang in there, things sometimes have a way of working out.

Iwannabean
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Lindia
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« Reply #20 on: September 12, 2011, 05:05:09 PM »
Hi Misty  -   my hubby started dialysis in May at a DaVita center, and its been QUITE a ride.   My hubby is also diabetic,   how is your husbands foot ?     I had a lot of questions when he started dialysis, and the people here have REALLY helped me.       :grouphug;          hang in there -    Linda
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lmunchkin
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« Reply #21 on: September 12, 2011, 07:49:57 PM »
Welcome to IHD, Misty! My husband has this disease also, and I hate it for him! Glad you found us!

lmunchkin :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
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