New Documentary called "The Power of Two."

[okarol]

I just got home from a Premiere of a New Documentary called "The Power of Two." It's the story of twin sisters who needed lung transplants because of cystic fibrosis.  Wow - it was amazing - as a mother, you know I cried a lot. I kept thinking of my friend Laura, I never really understood what her teenage son Niko goes through with his CF treatments - I never knew what it is involved - all the pills and breathing machine and coughing, every day. I am so sorry I never asked her more questions. I am horrified that his school was clueless about what an effort it is just to be able to breathe all day, and punished him for being tardy.
I hope this movie opens others eyes as it did mine. I would recommend it to anyone, whther they are interested in organ donation, or CF or the love between 2 sisters. I would have taken my whole family if I had known how powerful it was.
Here's a review http://www.starpulse.com/news/Jason_Coleman/2011/08/17/review_informative_documentary_the_pow
It is in Los Angeles until Thursday, and starts Friday in New York.

[MooseMom]

How many of us have felt bad because no one "understands" CKD/dialysis?  How many of US "understand" what it is like to live with CF?  It seems everyone has some awful, black cloud hanging over them.  Life really is hard, isn't it?

Out of curiosity, do you still speak to your friend, Laura?  How do you think she would feel if you were to call her and tell her about this documentary and how now you have more understanding of what she and her son lived through?  I bet she'd feel grateful.

[okarol]

How many of us have felt bad because no one "understands" CKD/dialysis?  How many of US "understand" what it is like to live with CF?  It seems everyone has some awful, black cloud hanging over them.  Life really is hard, isn't it?

Out of curiosity, do you still speak to your friend, Laura?  How do you think she would feel if you were to call her and tell her about this documentary and how now you have more understanding of what she and her son lived through?  I bet she'd feel grateful.

We were supposed to go together but she's a doctor and could not swap being on call, so she will probably see it on Tuesday. I did send her an email - basically saying what I said here - to let her know I am sorry but I will never forget.

[MooseMom]

I'd bet she will more grateful to hear that than you can imagine.  Although, I bet you CAN imagine it, what with Jenna's own battles.

[okarol]

Here are some photos from the premiere:
Isa Stenzel (one of the twins featured in the movie) and Lori Hartwell
Jack Black and Robert Ziegler
Lori Hartwell and Dr. Terasaki - Scientist and pioneer in tissue tissue typing for organ transplant technology and Professor Emeritus of Surgery at UCLA School of Medicine

[okarol]

Terasaki and Stenzel families
Jack Black, Lori Hartwell and Brad Ellis (from Glee, and heart transplant recipient)

[Ang]

have to keep an eye out, see if it comes too ozzieland

[lmunchkin]

Okarol, my brother, who was a year 1/2 younger than I, died 2/2010 of CF, COPD & emphysema!  He had been waiting for years for a lung transplant. Never happened and he helt no grudges, but it is a suffering that many people do not understand! I do believe people have a better understanding of what Dialysis is, than the actual Kidney failure itself!  Lungs and kidneys are vital organs, and I guess people don't understand the implications of both!

My husband was having his leg amputated when my baby bro died.  I miss him but am glad he is not suffering anymore!     

lmunchkin