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Author Topic: No longer a lurker  (Read 5267 times)
Pam
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« on: January 20, 2007, 08:39:10 AM »
My name is Pam. I've been lurking here for several months and have to tell all of you that in a way this has been the best education I could ask for. So many of my questions have been answered but then it seems that for every answer 2 more questions appear.

I will soon be 56 yr. and have been a type  1 diabetic for 25 yrs. This is the cause of my kidney failure. I have stayed at 23% function for the last 5 yrs. but I know that can change at any time. So I take it one day at a time and try to be as educated as I can. Even though I have not a clue as to what choice I will make when the time comes.

On a personal side, I have been married 36 yrs. have 2 children and 3 GKDS. None of them live close. I have lived in Michigan all of my life. Have never really worked out side of the home. I guess not worrying about keeping a job can be a good thing. I am a home based seamstress so can do that on my own terms.

I may not post much, but will read here everyday to learn all I can. I just want to thank all of you for the insight and education you have provided.

  :thx; Pam
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Sluff
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« Reply #1 on: January 20, 2007, 08:47:33 AM »
Welcome Pam,

I'm glad your not just a lurker anymore, There is a lot of information here at IHD and it can get overwhelming but hang in there, there is no quiz at the end.

Thanks for taking the time to post an introduction, if you need any help all you have to do is ask a moderator or an administrator and we will be more than happy to help.

Sluff, Moderator
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #2 on: January 20, 2007, 08:51:11 AM »
Welcome to our community, Pam!  Of course, you have already made it yours by your time of lurking!  Joining us now does mean that you have really appreciated what you have seen.  I don't suppose I have to tell you anything about the website, but I do want to ask you to post some.  Let us know what you are going through.  When you want to vent, this is the place.
Tell us what you are doing to maintain your kidney function (in a different section, of course).  I would like to hear that.
We are contemporaries, by the way, as I am now finishing off my 56th year, will be 57 next week.
Welcome again! :grouphug;

[Sluff, how dare you get your post in before me! They even had the audacity to tell me someone just posted before me and maybe I wanted to check before I posted mine!]

Bajanne/Moderator
« Last Edit: January 20, 2007, 08:53:35 AM by bajanne2000 » Logged
"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Zach
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« Reply #3 on: January 20, 2007, 08:52:50 AM »
Welcome Pam!!  Glad you have joined our community.
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Razman
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« Reply #4 on: January 20, 2007, 09:10:07 AM »
Hi Pam. Its great to hear from you.  I am also 56 and not on dialysis yet but I am around 24% and counting the time.  This is a great site where you hear things as they are and where you can share your concerns without anyone thinking that it is no big deal.
(others have been there and they can help you).  Please keep in touch. Let us know how things are going.   Have any of you kids talked to you about donating a kidney? :welcomesign;
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Joe Paul
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« Reply #5 on: January 20, 2007, 09:12:51 AM »
Welcome Pam, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
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angela515
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« Reply #6 on: January 20, 2007, 09:26:38 AM »
 :welcomesign;
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shay_pcb
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« Reply #7 on: January 20, 2007, 03:38:51 PM »
 :welcomesign;
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boxman55
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« Reply #8 on: January 20, 2007, 03:45:05 PM »
Welcome to the site. I am also a diabetic type 2 if i can help at all let me know Boxman55
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
aharris2
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« Reply #9 on: January 20, 2007, 06:11:06 PM »
 :welcomesign; and i hope u enjoy your sty in this wonderful place, i've been on dialysis a little close to 5 yrs, if i maybe of help to you, please let me know...

take care,

rolando
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My dear Rolando, I miss you so much!
Rest in peace my dear brother...
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« Reply #10 on: January 20, 2007, 06:17:35 PM »
Pam, thank you so much for making yourself known.  Please post a question if you have one.  We all learn by sharing.  I hope you have a good support system.  Even with the best support system, family and friends don't know what it is like to be on dialysis.  So, come here anytime to learn and laugh.

Rerun/Moderator                     :welcomesign;
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anja
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« Reply #11 on: January 20, 2007, 10:22:42 PM »
 :welcomesign;  Pam, from another 56 year-old in the community!  I have been on Peritoneal dialysis for 19 months,  couldn't have made the choices I have made without this site to educate me.  Best of luck .
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mcjane
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« Reply #12 on: January 21, 2007, 10:59:34 AM »
Hi Pam, welcome.

I joined, but also lurked for a long time before posting.

 
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goofynina
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He is the love of my life......
« Reply #13 on: January 21, 2007, 01:46:06 PM »
Hi Pam,   Welcome to ihatdialysis.com.  I am glad you decided to "lurk no more" and come and be a part of our awesome community we have here.  Please keep us posted on how your doing and we'd love to see pics of you and your Grandkids ;)  Looking forward to hearing more from you...


Goofynina/Admin.
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....and i think to myself, what a wonderful world....

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Nan
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« Reply #14 on: January 21, 2007, 02:19:38 PM »
Hey Pam....I don't want to be blamed for starting a "clique" in the IHD website.....BUT.....there seems to be quite a group of 56 yr olds!  I guess....we rule....so the rest of you can drool!  Welcome to what I call..."my comfort zone".  I live just north of you in Minneapolis,  :cuddle; married 38yrs...and SEVEN amazing grandchildren! So happy to meet you! :welcomesign;






EDITED: fixed smiley tag error-kitkatz,moderator
« Last Edit: October 21, 2008, 05:39:58 PM by kitkatz » Logged
No matter how your heart is grieving....as long as you keep believing, the dream that you wish will come true!
Diagnosed with PKD in 1994
Started HEMO dialysis June 2006
Started Home Dialysis on cycler February 2007
Had Live donor transplant February 2008
jbeany
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« Reply #15 on: January 21, 2007, 02:50:05 PM »
Welcome to IHD, Pam!

I'm in Michigan, too.  Are you a fellow troll (under the bridge!) or a Yooper?  I'm a type 1 diabetic, too.  I didn't find this site until after my doc said I already needed dialysis, so you are one step ahead of me!

 :welcomesign;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
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« Reply #16 on: January 22, 2007, 08:13:44 AM »
Welcom, Pam!  :welcomesign; Nice to have you here with us!  :grouphug;
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I can't reach the hill like I used to, but I'm not at a standstill yet!
Pam
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« Reply #17 on: January 22, 2007, 09:06:34 AM »
:thx; To all of you for the warm welcomes! I have not started dialysis yet but I know that everything I have learned from this awesome  site will help me to make the best decisions. My support team is very small and 99% will fall on DH. He tends to over react with everything so that is another post in itself! I think one of my biggest problems is going to be the diet. From what I am understanding the diabetic diet and the renal diet are pretty opposite of each other. My goal right now is to keep the blood sugar under control to preserve what function I have left and some days that is an hour to hour job.

Pam
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mallory
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« Reply #18 on: January 22, 2007, 09:12:22 AM »
Welcome, Pam!  Glad to have you here.  This site does have a lot of great information, I know it has been a great help to me and it makes me feel like I'm not so alone.

You may not have as much trouble with the diet as you think, before I was on dialysis they had me limit protein to save what kidney function I had left, but once I started dialysis they had me increase the protein because dialysis takes protein out of your system.  My sister is diabetic and now we're eating the same things, high protein and low carb.

Ask any questions you want, and keep posting!  :welcomesign;
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Sometimes the light’s all shinin’ on me;
Other times I can barely see.
Lately it occurs to me what a long, strange trip it’s been.
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Pam
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« Reply #19 on: January 22, 2007, 11:56:23 AM »
Quote from: jbeany on January 21, 2007, 02:50:05 PM
Welcome to IHD, Pam!

I'm in Michigan, too.  Are you a fellow troll (under the bridge!) or a Yooper?  I'm a type 1 diabetic, too.  I didn't find this site until after my doc said I already needed dialysis, so you are one step ahead of me!

 :welcomesign;
I'm a troll! I live 30 miles SE of Saginaw in the middle of 20 acres.
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angieskidney
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« Reply #20 on: January 22, 2007, 08:34:09 PM »
Quote from: Pam on January 22, 2007, 11:56:23 AM
I'm a troll! I live 30 miles SE of Saginaw in the middle of 20 acres.
Hi Pam! I live across the Detroit River in the cold country ;) lol  :welcomesign;
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FREE Donor List for all Kidney Patients!

diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
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« Reply #21 on: January 23, 2007, 08:14:37 PM »
Quote from: Pam on January 22, 2007, 11:56:23 AM
I'm a troll! I live 30 miles SE of Saginaw in the middle of 20 acres.

Hey, someone who can pronounce "Tittabawassee" !  (SVSU, Class of '93)
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
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